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Background: In Germany, more than 4.65 million people are currently living with a cancer diagnosis. Patients can benefit from a healthy lifestyle both during and after therapy. In order to provide patients with practical and scientifically based information on health behavior, the authors developed “Aktiv leben mit Krebs” (ALMIK) using participatory program planning.
Methods: A non-blinded randomized controlled trial with intervention (IG) and wait list control group (WCG) was conducted at NCT/UCC Dresden and UCCSH in Kiel in 2022/2023 with a convenience sample of n=227 patients during and after therapy (65.7 years ± 11.7, 54.2% male). IG and WCG received a questionnaire at baseline and after 1 month. IG received the ALMIK brochure and a link to the website with videos. Changes in health literacy (HLS-EU Q) and acceptance were assessed.
Result: Acceptance of ALMIK in IG was high: 94.1% of all n=109 patients in the IG reported having used the brochure. 40.4% had visited the website. Videos were used by 36.7%. Almost all patients rated the brochure as understandable (97.8%), relevant (90.3%) and clearly presented (98.9%).
Patients also rated the website as well-structured (95.6%) and attractively designed (97.6%), and the videos as understandable (93.0%) and relevant (79.1%). Overall, 97.8% were satisfied with the program and 98.9% would recommend it to others. Patients of IG did not achieve higher HLS-score
in comparison to WCG (p=0.75).
Discussion: The brochure was used by many patients and was very well accepted. The website and videos were used less frequently, but overall by more than one-third of patients, who were also satisfied with them. Health literacy was not increased by ALMIK, which may be due to the low
intervention strength.
Conclusion: The high number of participants who used ALMIK indicates a high need for health behavior information for cancer patients. Patient involvement has proven to be an important component in creating well accepted program materials