TY - JOUR A1 - Prodinger, Birgit A1 - Darzins, S. A1 - Magasi, S. A1 - Baptiste, S. T1 - The International Classification of Functioning, Disability and Health (ICF): Opportunities and Challenges to the Use of the ICF for Occupational Therapy JF - World Federation of Occupational Therapists Bulletin N2 - The occupational therapy community has been receptive to the World Health Organisation's International Classification of Functioning, Disability and Health (ICF) published in 2001. Building upon results of a survey (2008–2009) and subsequent workshop (2010) conducted by the World Federation of Occupational Therapists on the use and utility of the ICF for occupational therapists, this paper addresses some of the opportunities and challenges to strengthening the use of the ICF in occupational therapy practice. Attaining further clarity on the relationship of occupational therapy concepts and the ICF and developing crosswalk tables to exemplify linkages between occupational therapy terminology and the ICF will strengthen utility of the ICF for occupational therapy. Enhanced clarity about the concepts within occupational therapy that correspond to the ICF will ultimately assist other professions and disciplines in their understanding about occupational therapy and occupational therapists’ roles in health and related systems. KW - ICF KW - Occupational therapy KW - Standardization KW - Health care terminology KW - Rehabilitation Y1 - 2015 UR - https://doi.org/10.1179/2056607715Y.0000000003 VL - 71 IS - 2 SP - 108 EP - 114 ER - TY - JOUR A1 - Shaw, L. A1 - Jacobs, K. A1 - Rudmann, D. A1 - Magalhaes, L. A1 - Huot, S. A1 - Prodinger, Birgit A1 - Mandich, A. A1 - Hocking, C. A1 - Akande, V. A1 - Backmann, C. A1 - Bossers, A. A1 - Bragg, M. A1 - Bryson, M. A1 - Cowls, J. A1 - Stone, S. D. A1 - Dawe, E. A1 - Dennhardt, S. A1 - Dennis, D. A1 - Foster, J. A1 - Friesen, M. A1 - Galheigo, S. A1 - Gichuri, J. A1 - Hughes, I. A1 - Isaac, A. A1 - Jarus, T. A1 - Kinsella, A. A1 - Klinger, L. A1 - Leyshon, R. A1 - Lysaght, R. A1 - McKay, E. A1 - Orchard, T. A1 - Phelan, S. A1 - Ravenek, M. A1 - Gruhl, K. R. A1 - Robb, L. A1 - Stadnyk, R. A1 - Sumsion, T. A1 - Suto, M. T1 - Directions for advancing the study of work transitions in the 21st century JF - Work N2 - Objectives: The purpose of this article is to share the details, outcomes and deliverables from an international workshop on work transitions in London, Ontario, Canada. Participants: Researchers, graduate students, and community group members met to identity ways to advance the knowledge base of strategies to enhance work participation for those in the most disadvantaged groups within society. Methods: A participatory approach was used in this workshop with presentations by researchers and graduate students. This approach included dialogue and discussion with community members. In addition, small group dialogue and debate, world cafe discussions, written summaries of group discussion and reflection boards were used to bring new ideas to the discussion and to build upon what we know. Findings: Two research imperatives and six research recommendations were identified to advance global dialogue on work transitions and to advance the knowledge base. Occupational justice can be used to support future research directions in the study of work transitions. Conclusions: Moving forward requires a commitment of community of researchers, clinicians and stakeholders to address work disparities and implement solutions to promote participation in work. KW - Work disparities KW - occupational justice KW - Occupational transitions Y1 - 2012 UR - https://doi.org/10.3233/WOR-2012-1438 VL - 41 IS - 4 SP - 369 EP - 377 ER - TY - JOUR A1 - Prodinger, Birgit A1 - Ballert, C. S. A1 - Cieza, A. T1 - Setting up a cohort study of functioning: From classification to measurement JF - Journal of Rehabilitation Medicine N2 - Objective: Cohort studies are an appropriate method for the collection of population-based longitudinal data to track people's health and functioning over time. However, describing and understanding functioning in its complexity with all its determinants is one of the biggest challenges faced by clinicians and researchers. Design: This paper focuses on the development of a cohort study on functioning, outlining the relevant steps and related methods, and illustrating these with reference to the Swiss Spinal Cord Injury Cohort Study (SwiSCI). Methods and results: In setting up a cohort study the initial step is to specify which variables are to be included, i.e. what to assess. The International Classification of Functioning, Disability and Health (ICF) is valuable in this process. The second step is to identify how to assess the specified ICF categories. Existing instruments and assessments can then be linked to the ICF. Conclusion: The methods outlined here enable the development of a cohort study to be based on a comprehensive perspective of health, operationalized through functioning as conceptualized and classified in the ICF, yet to remain efficient and feasible to administer. KW - Disability and health KW - Cohort study KW - Epidemiology KW - International classification of functioning KW - Standardized Reporting Y1 - 2016 UR - https://doi.org/10.2340/16501977-2030 VL - 48 IS - 2 SP - 131 EP - 140 ER - TY - JOUR A1 - Ballert, C.S. A1 - Hopfe, M. A1 - Kus, M. A1 - Mader, L. A1 - Prodinger, Birgit T1 - Using the refined ICF Linking Rules to compare the content of existing instruments and assessments: a systematic review and exemplary analysis of instruments measuring participation. JF - Disability and Rehabilitation N2 - Background: Existing instruments measuring participation may vary with respect to various aspects. This study aimed to examine the comparability of existing instruments measuring participation based on the International Classification of Functioning, Disability and Health (ICF) by considering aspects of content, the perspective adopted and the categorization of response options. Methods: A systematic literature review was conducted to identify instruments that have been commonly used to measure participation. Concepts of identified instruments were then linked to the ICF following the refined ICF Linking Rules. Aspects of content, perspective adopted and categorization of response options were documented. Results: Out of 315 instruments identified in the full-text screening, 41 instruments were included. Concepts of six instruments were linked entirely to the ICF component Activities and Participation; of 10 instruments still 80% of their concepts. A descriptive perspective was adopted in most items across instruments (75%), mostly in combination with an intensity rating. An appraisal perspective was found in 18% and questions from a need or dependency perspective were least frequent (7%). Conclusion: Accounting for aspects of content, perspective and categorization of responses in the linking of instruments to the ICF provides detailed information for the comparison of instruments and guidance on narrowing down the choices of suitable instruments from a content point of view. Implications for Rehabilitation For clinicians and researchers who need to identify a specific instrument for a given purpose, the findings of this review can serve as a screening tool for instruments measuring participation in terms of the following: • Their content covered based on the ICF. • The perspective adopted in the instrument (e.g., descriptive, need/dependency or appraisal). • The categorization of their response options (e.g., intensity or frequency). KW - Comparability KW - International Classification of Functioning KW - Disability and health KW - Outcome measures Y1 - 2019 UR - https://doi.org/10.1080/09638288.2016.1198433 VL - 41 IS - 5 SP - 584 EP - 600 ER - TY - JOUR A1 - Bauernfeind, B. A1 - Aringer, M. A1 - Prodinger, Birgit A1 - Kirchberger, I. A1 - Machold, K. A1 - Smolen, J. A1 - Stamm, T. T1 - Identification of relevant concepts of functioning in daily life in people with systematic Lupus Erythematosus: A patient Delphi exercise JF - Arthritis Care & Research N2 - Objective To identify the most important and relevant concepts of daily functioning from the perspective of patients with systemic lupus erythematosus (SLE). Methods We conducted a consensus‐building, 3‐round, electronic mail survey with SLE patients using the Delphi technique. The Delphi technique is a structured communication process with 4 key characteristics: anonymity, iteration with controlled feedback, statistical group response, and informed input. The concepts contained in the answers of the patients were extracted and linked to the International Classification of Functioning, Disability and Health (ICF). Results Of the total 225 participants, 194 (86.2%) completed the questionnaires from all 3 Delphi rounds. In total, after the third Delphi round, 307 concepts were identified. Ninety concepts (55 in the domain body functions and structures, 16 in activities and participation, and 19 in environmental factors) were considered relevant by at least 50% of the participants in the third round and linked to the ICF. Twelve concepts were considered important by at least 75% of the participants. Conclusion The high number of concepts resulting from this large‐scale patient Delphi approach underlines the great variety of SLE patients' problems in daily functioning. The results of this patient Delphi project supplement the findings of our focus‐group study in establishing a comprehensive overview of the patient perspective in SLE. KW - Systemic lupus erythematosus KW - Patient Delphi exercise KW - Functioning in daily life Y1 - 2009 UR - https://doi.org/10.1002/art.24165 VL - 61 IS - 1 SP - 21 EP - 28 ER - TY - JOUR A1 - Prodinger, Birgit A1 - Ndosi, M. A1 - Nordenskiöld, U. A1 - Stamm, T. A1 - Persson, G. A1 - Andreasson, I. A1 - Lundgren-Nilsson, A. T1 - Rehabilitation provided to patients with rheumatoid arthritis: A comparison of three different Rheumatology clinics in Austria, Sweden and the UK from the perspectives of patients and health professionals JF - Journal of Rehabilitation Medicine N2 - Objective: To explore patients’ and health professionals’ views of outpatient rehabilitation services for patients with rheumatoid arthritis in 3 different rheumatology sites across Europe. Methods: A qualitative multi-method study was conducted with patients and health professionals in Vienna (Austria), Gothenburg (Sweden) and Leeds (UK). Data collection was carried out during focus groups with patients and health professionals. Patients’ hospital records were integrated into the analysis. Data were analysed for site and findings were compared across sites. Results: A total of 20 patients and 20 health professionals participated in 12 focus groups. Although the 3 sites were all publicly funded university clinics, there were differences between sites regarding the structure and content of rehabilitation services. The themes that emerged in the focus groups were: referrals; continuity in rehabilitation; information provided to patients; patients’ organizations; documentation and communication amongst health professionals; interface between primary and specialist care; and prescription practices. Most themes were addressed at all 3 sites, but there were variations in the specifics within themes. Conclusion: Integration of patients’ and health professionals’ views on how rehabilitation services are coordinated and how (parts of) processes are set up elsewhere provide valuable information for the further optimization of rehabilitation services. KW - Delivery of Healthcare KW - Interdisciplinary Communication KW - Multi-centre study KW - Patient perspective KW - Rehabilitation Y1 - 2015 UR - https://doi.org/10.2340/16501977-1914 VL - 47 IS - 2 SP - 174 EP - 182 ER - TY - JOUR A1 - Castrejon, I. A1 - Carmona, L. A1 - Agrinier, N. A1 - Andres, M. A1 - Briot, K. A1 - Caron, M. A1 - Christensen, R. A1 - Consolaro, A. A1 - Curbelo, R. A1 - Ferrer, M. A1 - Foltz, V. A1 - Gonzalez, C. A1 - Guillemin, F. A1 - Machado, P. A1 - Prodinger, Birgit A1 - Ravellil, A. A1 - Scholte-Voshaar, M. A1 - Uhlig, T. A1 - van Tuyl, L. A1 - Zink, A. A1 - Gossec, L. T1 - The EULAR Outcome Measures Library: development and an example from a systematic review for systemic lupus erythematous instruments JF - Clinical and Experimental Rheumatology N2 - Objective: Patient reported outcomes (PROs) are relevant in rheumatology. Variable accessibility and validity of commonly used PROs are obstacles to homogeneity in evidence synthesis. The objective of this project was to provide a comprehensive library of “validated PROs”. Methods: A launch meeting with rheumatologists, PROs methodological experts, and patients, was held to define the library’s aims and scope, and basic requirements. To feed the library we performed systematic reviews on selected diseases and domains. Relevant information on PROs was collected using standardised data collection forms based on the COSMIN checklist. Results: The EULAR Outcomes Measures Library (OML), whose aims are to provide and to advise on PROs on a user-friendly manner albeit based on scientific grounds, has been launched and made accessible to all. PROs currently included cover any domain and, are generic or specifically target to the following diseases: rheumatoid arthritis, osteoarthritis, spondyloarthritis, low back pain, systemic lupus erythematosus, gout, osteoporosis, juvenile idiopathic arthritis, and fibromyalgia. Up to 236 instruments (106 generic and 130 specific) have been identified, evaluated, and included. The systematic review for SLE, which yielded 10 specific instruments, is presented here as an example. The OML website includes, for each PRO, information on the construct being measured and the extent of validation, recommendations for use, and available versions; it also contains a glossary on common validation terms. Conclusion: The OML is an in progress library led by rheumatologists, related professionals and patients, that will help to better understand and apply PROs in rheumatic and musculoskeletal diseases. KW - Rheuma KW - Lupus erythematous KW - Outcome measures KW - Systematic Review Y1 - 2015 VL - 33 IS - 6 SP - 910 EP - 916 ER - TY - JOUR A1 - Maritz, R. A1 - Aronsky, D. A1 - Prodinger, Birgit T1 - The Implementation of the International Classification of Functioning, Disability and Health (ICF) in Electronic Health Records - A Systematic Review JF - Applied Clinical Informatics N2 - Background: The International Classification of Functioning, Disability and Health (ICF) is the World Health Organization’s standard for describing health and health-related states. Examples of how the ICF has been used in Electronic Health Records (EHRs) have not been systematically summarized and described yet. Objectives: To provide a systematic review of peer-reviewed literature about the ICF’s use in EHRs, including related challenges and benefits. Methods: Peer-reviewed literature, published between January 2001 and July 2015 was retrieved from Medline®, CINAHL®, Scopus®, and ProQuest® Social Sciences using search terms related to ICF and EHR concepts. Publications were categorized according to three groups: Requirement specification, development and implementation. Information extraction was conducted according to a qualitative content analysis method, deductively informed by the evaluation framework for Health Information Systems: Human, Organization and Technology-fit (HOT-fit). Results: Of 325 retrieved articles, 17 publications were included; 4 were categorized as requirement specification, 7 as development, and 6 as implementation publications. Information regarding the HOT-fit evaluation framework was summarized. Main benefits of using the ICF in EHRs were its unique comprehensive perspective on health and its interdisciplinary focus. Main challenges included the fact that the ICF is not structured as a formal terminology as well as the need for a reduced number of ICF codes for more feasible and practical use. Conclusion: Different approaches and technical solutions exist for integrating the ICF in EHRs, such as combining the ICF with other existing standards for EHR or selecting ICF codes with natural language processing. Though the use of the ICF in EHRs is beneficial as this review revealed, the ICF could profit from further improvements such as formalizing the knowledge representation in the ICF to support and enhance interoperability. KW - International Classification of Functioning KW - Disability and health KW - Electronic health records KW - Reference standards KW - Medical Informatics Y1 - 2017 UR - https://doi.org/10.4338/ACI2017050078 VL - 8 IS - 3 SP - 964 EP - 980 ER -