<?xml version="1.0" encoding="utf-8"?>
<export-example>
  <doc>
    <id>798</id>
    <completedYear>2017</completedYear>
    <publishedYear/>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst>S5</pageFirst>
    <pageLast>S16</pageLast>
    <pageNumber/>
    <edition/>
    <issue>2</issue>
    <volume>96</volume>
    <type>article</type>
    <publisherName/>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>0</belongsToBibliography>
    <completedDate>2018-06-04</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">A structured approach to capture the lived experience of spinal cord injury: Data model and questionnaire of the International Spinal Cord Injury Community Survey (InSCI)</title>
    <abstract language="eng">The International Spinal Cord Injury (InSCI) community survey has been developed to collect internationally comparable data on the lived experience of persons with spinal cord injury (SCI) in all 6 WHO regions. &#13;
&#13;
The InSCI survey provides a crucial first step to generate evidence on functioning, health maintenance, and subjective well-being in persons with SCI globally. &#13;
A major challenge in setting up the InSCI community survey was to develop a data model and questionnaire that comprehensively captures what matters to people and, at the same time, is feasible and parsimonious in terms of participant’s burden. &#13;
&#13;
This paper outlines the components of the InSCI data model and presents the question selection to operationalize the data model along the 4 guiding principles of efficiency, feasibility, comparability, and truth and discrimination. &#13;
&#13;
The data model consists of 6 components operationalized with 125 questions including functioning (n = 28 body functions and structures; n = 42 activities and participation), contextual factors (n = 26 environmental; n = 19 personal factors), lesion characteristics (n = 2), and appraisal of health and well-being (n = 8). &#13;
&#13;
The InSCI questionnaire presents an efficient and feasible solution with satisfying comparability to other populations; however, its validity and reliability still needs to be confirmed.</abstract>
    <parentTitle language="eng">American Journal of physical and rehabilitation medicine</parentTitle>
    <identifier type="url">https://doi.org/10.1097/PHM.0000000000000622</identifier>
    <enrichment key="PeerReviewed">Ja</enrichment>
    <author>C. Fekete</author>
    <author>M. Post</author>
    <author>J. Bickenbach</author>
    <author>J. Middleton</author>
    <author>Birgit Prodinger</author>
    <author>M. Selb</author>
    <author>G. Stucki</author>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>International Spinal Cord Injury</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>Comparability of spinal cord injury</value>
    </subject>
    <collection role="ddc" number="610">Medizin und Gesundheit</collection>
    <collection role="institutes" number="">Fakultät für Angewandte Gesundheits- und Sozialwissenschaften</collection>
    <thesisPublisher>Technische Hochschule Rosenheim</thesisPublisher>
  </doc>
</export-example>
