@article{DorjbalCiezaGmuenderetal.2016, author = {Dorjbal, D. and Cieza, A. and Gm{\"u}nder, H.-P- and Scheel-Sailer, A. and Stucki, G. and {\"U}st{\"u}n, T.B. and Prodinger, Birgit}, title = {Strengthening quality of care through standardized reporting based on the World Health Organization's reference classifications}, series = {International Journal of Quality in Health}, volume = {28}, journal = {International Journal of Quality in Health}, number = {5}, pages = {626 -- 633}, year = {2016}, abstract = {Quality issue Responding to person's health and related needs requires the availability of health information that reflects relevant aspects of a health condition and how this health condition impacts on a person's daily life. Initial assessment Health information is routinely collected at different time points by diverse professionals, in different settings for various purposes with varying methods. Consequently, health information is not always comparable, posing a challenge to the regular monitoring of quality. Choice of solution The World Health Organization's (WHO) International Classification of Diseases (ICD), International Classification of Functioning, Disability and Health (ICF), and International Classification of Health Interventions (ICHI; under development) are complementary and serve as meaningful reference classifications for comparing data on persons' health and related interventions across health systems. Implementation We developed a systematic approach of translating routinely collected information into a standardized report based on the three WHO reference classifications and the Rehab-Cycle®. Subsequently, we have demonstrated its application using five random case records of individuals attending a rehabilitation program. Evaluation All identified concepts were able to be linked to WHO's reference classifications. The ICF served as a tool to standardize information on rehabilitation goals and their achievement. The ICHI served as the basis for reporting the interventions that were documented in the case records, including the intervention targets that were derived from the ICF codes. Lessons learned Our experience shows that, it is possible to translate routinely collected information into standardized reports by linking existing narrative records with WHO's reference classifications.}, language = {en} } @article{ProdingerTennantStuckietal.2016, author = {Prodinger, Birgit and Tennant, A. and Stucki, G. and Cieza, A. and {\"U}st{\"u}n, T.B.}, title = {Harmonizing routinely collected health information for strengthening quality management in health systems: requirements and practice}, series = {Journal of Health Services Research \& Policy}, volume = {21}, journal = {Journal of Health Services Research \& Policy}, number = {4}, pages = {223 -- 228}, year = {2016}, abstract = {Objective Our aim was to specify the requirements of an architecture to serve as the foundation for standardized reporting of health information and to provide an exemplary application of this architecture. Methods The World Health Organization's International Classification of Functioning, Disability and Health (ICF) served as the conceptual framework. Methods to establish content comparability were the ICF Linking Rules. The Rasch measurement model, as a special case of additive conjoint measurement, which satisfies the required criteria for fundamental measurement, allowed for the development of a common metric foundation for measurement unit conversion. Secondary analysis of data from the North Yorkshire Survey was used to illustrate these methods. Patients completed three instruments and the items were linked to the ICF. The Rasch measurement model was applied, first to each scale, and then to items across scales which were linked to a common domain. Results Based on the linking of items to the ICF, the majority of items were grouped into two domains, Mobility and Self-care. Analysis of the individual scales and of items linked to a common domain across scales satisfied the requirements of the Rasch measurement model. The measurement unit conversion between items from the three instruments linked to the Mobility and Self-care domains, respectively, was demonstrated. Conclusions The realization of an ICF-based architecture for information on patients' functioning enables harmonization of health information while allowing clinicians and researchers to continue using their existing instruments. This architecture will facilitate access to comprehensive and consistently reported health information to serve as the foundation for informed decision-making.}, language = {en} } @article{ProdingerCiezaOberhauseretal.2016, author = {Prodinger, Birgit and Cieza, A. and Oberhauser, C. and Bickenbach, J. and {\"U}st{\"u}n, T.B. and Chatterji, S. and Stucki, G.}, title = {Toward the International Classification of Functioning, Disability and Health (ICF) Rehabilitation Set: A Minimal Generic Set of Domains for Rehabilitation as a Health Strategy}, series = {Archives of Physical Medicine and Rehabilitation}, volume = {97}, journal = {Archives of Physical Medicine and Rehabilitation}, number = {6}, pages = {875 -- 884}, year = {2016}, language = {en} } @article{ProdingerBallertBrachetal.2016, author = {Prodinger, Birgit and Ballert, C. S. and Brach, M. and Brinkhof, M. W. G. and Cieza, A. and Hug, K. and Jordan, X. and Post, M. W. M. and Scheel-Sailer, A. and Schubert, M. and Tennant, A. and Stucki, G.}, title = {Toward standardized reporting for a cohort study on functioning: The Swiss Spinal Cord Injury Cohort Study}, series = {Journal of Rehabilitation Medicine}, volume = {48}, journal = {Journal of Rehabilitation Medicine}, number = {2}, pages = {189 -- 196}, year = {2016}, abstract = {Objective: Functioning is an important outcome to measure in cohort studies. Clear and operational outcomes are needed to judge the quality of a cohort study. This paper outlines guiding principles for reporting functioning in cohort studies and addresses some outstanding issues. Design: Principles of how to standardize reporting of data from a cohort study on functioning, by deriving scores that are most useful for further statistical analysis and reporting, are outlined. The Swiss Spinal Cord Injury Cohort Study Community Survey serves as a case in point to provide a practical application of these principles. Methods and Results: Development of reporting scores must be conceptually coherent and metrically sound. The International Classification of Functioning, Disability and Health (ICF) can serve as the frame of reference for this, with its categories serving as reference units for reporting. To derive a score for further statistical analysis and reporting, items measuring a single latent trait must be invariant across groups. The Rasch measurement model is well suited to test these assumptions. Conclusion: Our approach is a valuable guide for researchers and clinicians, as it fosters comparability of data, strengthens the comprehensiveness of scope, and provides invariant, interval-scaled data for further statistical analyses of functioning.}, language = {en} } @article{ProdingerBallertCieza2016, author = {Prodinger, Birgit and Ballert, C. S. and Cieza, A.}, title = {Setting up a cohort study of functioning: From classification to measurement}, series = {Journal of Rehabilitation Medicine}, volume = {48}, journal = {Journal of Rehabilitation Medicine}, number = {2}, pages = {131 -- 140}, year = {2016}, abstract = {Objective: Cohort studies are an appropriate method for the collection of population-based longitudinal data to track people's health and functioning over time. However, describing and understanding functioning in its complexity with all its determinants is one of the biggest challenges faced by clinicians and researchers. Design: This paper focuses on the development of a cohort study on functioning, outlining the relevant steps and related methods, and illustrating these with reference to the Swiss Spinal Cord Injury Cohort Study (SwiSCI). Methods and results: In setting up a cohort study the initial step is to specify which variables are to be included, i.e. what to assess. The International Classification of Functioning, Disability and Health (ICF) is valuable in this process. The second step is to identify how to assess the specified ICF categories. Existing instruments and assessments can then be linked to the ICF. Conclusion: The methods outlined here enable the development of a cohort study to be based on a comprehensive perspective of health, operationalized through functioning as conceptualized and classified in the ICF, yet to remain efficient and feasible to administer.}, language = {en} }