Improving health-related quality of life for people with aphasia through peer support using the digital network PeerPAL

  • Background: Aphasia is often associated with psychosocial changes that may affect health-related quality of life, risk of depression or social participation. One possible intervention to address these psychosocial changes is peer contact. However, this often requires professional support (e.g. supervised support groups), whereas a digital option may allow for autonomous, asynchronous peerBackground: Aphasia is often associated with psychosocial changes that may affect health-related quality of life, risk of depression or social participation. One possible intervention to address these psychosocial changes is peer contact. However, this often requires professional support (e.g. supervised support groups), whereas a digital option may allow for autonomous, asynchronous peer contact. Therefore, we developed an app adapted to the specific needs of people with aphasia to stimulate digital and analogue interactions. Aims: The aim of the study was to evaluate a tailored app for people with aphasia that can be used to establish peer contact and enable digital and analogue interactions. The impact of using the app on health-related quality of life, social participation and depression prevention was analysed. Methods & Procedures: The study design was a pre-post wait-list-controlled comparison in which half of the participants (n = 18) waited three months before starting the intervention, and the other half of the participants (n = 18) started the intervention immediately. During the intervention, the app was used by all participants (n = 36) for three months after a training session, followed by three months of optional app use until follow-up. Health-related quality of life (SAQOL39g, GHQ-12), communicative participation (CPIB), social support (F-SozU), depression markers (GDS, DISCs), and activity in the app were recorded at each time point. Analyses were mainly non-parametric to calculate changes during the intervention and to compare the intervention with the waiting period. The study is registered in the German Register of Clinical Trials (DRKS00023855). Outcomes & Results: SAQOL-39g data improved significantly for the whole group during the intervention period (z = -3.043, p = 0.002, r = -0.598), but not during the waiting period (z = 0.402, p = 0.705). Scores remained stable until follow-up, and there was no worsening of depression markers over the entire period. No linear correlation was found between the improvement in SAQOL-39g and activity in the app (p = 0.329, r = 0.167). Conclusions: People with aphasia were able to use the app and showed an intervention-specific effect on health-related quality of life. The amount of activity in the app seems to be less critical for changes. Other factors, such as feeling connected to peers, appear to be relevant. Future studies should explore who might benefit most from the app.show moreshow less

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Author:Christina KurfessORCiD, Sabine CorstenORCiDGND, Maren NickelORCiD, Daniel KreiterORCiD, Norina LauerORCiDGND
DOI:https://doi.org/10.1080/02687038.2025.2505641
Parent Title (English):Aphasiology
Publisher:Taylor & Francis
Document Type:Article
Language:English
Year of first Publication:2025
Release Date:2025/05/16
Tag:aphasia; digital inclusion; digital network; health-related quality of life; peer support
GND Keyword:Aphasie; Partizipation; Lebensqualität; Inklusion
First Page:1
Last Page:24
Institutes:Fakultät Sozial- und Gesundheitswissenschaften
Research Center of Health Sciences and Technology - RCHST
Fakultät Sozial- und Gesundheitswissenschaften / Labor Logopädie (LP)
Begutachtungsstatus:peer-reviewed
Kostenträger (Forschungsprojekt, Labor, Einrichtung etc.):Labor Logopädie
research focus:Lebenswissenschaften und Ethik
Licence (German):Keine Lizenz - Es gilt das deutsche Urheberrecht: § 53 UrhG
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