TY - JOUR A1 - Lenk, Christian A1 - Duttge, Gunnar A1 - Flatau, Laura A1 - Frommeld, Debora A1 - Poser, Wolfgang A1 - Reitt, Markus A1 - Schulze, Thomas A1 - Weber, Alexandra A1 - Zoll, Barbara T1 - A look into the future? Patients' and health care staff's perception and evaluation of genetic information and the right not to know JF - American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics N2 - The progress of medical genetics leads to a significant increase in genetic knowledge and a vast expansion of genetic diagnostics. However, it is still unknown how these changes will be integrated into medical practice and how they will change patients' and healthy persons' perception and evaluation of genetic diagnoses and genetic knowledge. Therefore, we carried out a comprehensive questionnaire survey with more than 500 patients, clients seeking genetic counseling, health care staff, and healthy persons (N = 523). The questionnaire survey covered detailed questions on the value of genetic diagnoses for the different groups of study participants, the right to know or not to know genetic diagnoses, possible differences between genetic and other medical diagnoses, and the practical use and implications of genetic knowledge with a special focus on hereditary neuropsychiatric diseases. A huge majority of the participants (90.7%) stated to have a right to learn every aspect of her or his genetic make-up. Similarly, study participants showed high interest (81.8%) in incidental health care findings-independent of whether the diseases are treatable or not. One can derive from the data outcome that study participants did not follow the implications of a "genetic exceptionalism" and often considered genetic findings as equivalent in relation to other medical diagnoses. KW - Attitude of Health Personnel KW - Female KW - Genetic Counseling/methods KW - Genetic Testing/ethics KW - Health Knowledge, Attitudes, Practice KW - Humans KW - Incidental Findings KW - Male KW - Middle Aged KW - Surveys and Questionnaires Y1 - 2019 U6 - https://doi.org/10.1002/ajmg.b.32751 VL - 180 IS - 8 SP - 576 EP - 588 PB - Wiley ER - TY - CHAP A1 - Chow, Rosan A1 - Frommeld, Debora A1 - Glanz, Jessica A1 - Boettger, Lars A1 - Stadlbauer, Jana A1 - Weber, Karsten ED - Palinko, Oskar T1 - Envision a Future of Living with Robots through Participatory Theatre BT - A Field Report T2 - Social Robotics N2 - With the goal to facilitate societal discussion, the interactive exhibitioin “Living with Robots”, open to the public at the Science Night in Regens-burg, Germany in 2024 gave visitors the opportunity to imagine a life with robots at home, at work, for care, and education. It was set up with multiple stations of which an improvisation theatre was the highlight. Most of public presentations of robots emphasize the power of technology; the exhibition was intentionally designed to set apart from this. We chose theatric play as the medium of engagement and communication, and it was shown to be fruitful. In this paper, we draw implications from our experiences and present some preliminary results on the public opinions of living with robots. Y1 - 2025 SN - 978-981-96-3519-1 U6 - https://doi.org/10.1007/978-981-96-3519-1_42 SN - 1611-3349 SP - 470 EP - 475 PB - Springer Nature CY - Singapore ER - TY - JOUR A1 - Weber, Karsten A1 - Frommeld, Debora A1 - Gerhards, Helene A1 - Krug, Henriette A1 - Kokott, Linda Ellen A1 - Bittner, Uta T1 - Speaking about enhancement – methodological issues and historical examples JF - American Journal of Bioethics Neuroscience Y1 - 2020 U6 - https://doi.org/10.1080/21507740.2020.1831650 VL - 11 IS - 4 SP - 254 EP - 256 ER -