<?xml version="1.0" encoding="utf-8"?>
<export-example>
  <doc>
    <id>8078</id>
    <completedYear/>
    <publishedYear>2025</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst>1</pageFirst>
    <pageLast>24</pageLast>
    <pageNumber/>
    <edition/>
    <issue/>
    <volume/>
    <type>article</type>
    <publisherName>Taylor &amp; Francis</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>0</belongsToBibliography>
    <completedDate>2025-05-16</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Improving health-related quality of life for people with aphasia through peer support using the digital network PeerPAL</title>
    <abstract language="eng">Background: &#13;
Aphasia is often associated with psychosocial changes that may affect health-related quality of life, risk of depression or social participation. One possible intervention to address these psychosocial changes is peer contact. However, this often requires professional support (e.g. supervised support groups), whereas a digital option may allow for autonomous, asynchronous peer contact. Therefore, we developed an app adapted to the specific needs of people with aphasia to stimulate digital and analogue interactions. &#13;
Aims: &#13;
The aim of the study was to evaluate a tailored app for people with aphasia that can be used to establish peer contact and enable digital and analogue interactions. The impact of using the app on health-related quality of life, social participation and depression prevention was analysed. &#13;
Methods &amp; Procedures: &#13;
The study design was a pre-post wait-list-controlled comparison in which half of the participants (n = 18) waited three months before starting the intervention, and the other half of the participants (n = 18) started the intervention immediately. During the intervention, the app was used by all participants (n = 36) for three months after a training session, followed by three months of optional app use until follow-up. Health-related quality of life (SAQOL39g, GHQ-12), communicative participation (CPIB), social support (F-SozU), depression markers (GDS, DISCs), and activity in the app were recorded at each time point. Analyses were mainly non-parametric to calculate changes during the intervention and to compare the intervention with the waiting period. The study is registered in the German Register of Clinical Trials (DRKS00023855). &#13;
Outcomes &amp; Results: &#13;
SAQOL-39g data improved significantly for the whole group during the intervention period (z = -3.043, p = 0.002, r = -0.598), but not during the waiting period (z = 0.402, p = 0.705). Scores remained stable until follow-up, and there was no worsening of depression markers over the entire period. No linear correlation was found between the improvement in SAQOL-39g and activity in the app (p = 0.329, r = 0.167). &#13;
Conclusions: &#13;
People with aphasia were able to use the app and showed an intervention-specific effect on health-related quality of life. The amount of activity in the app seems to be less critical for changes. Other factors, such as feeling connected to peers, appear to be relevant. Future studies should explore who might benefit most from the app.</abstract>
    <parentTitle language="eng">Aphasiology</parentTitle>
    <identifier type="doi">10.1080/02687038.2025.2505641</identifier>
    <enrichment key="BegutachtungStatus">peer-reviewed</enrichment>
    <enrichment key="Kostentraeger">Labor Logopädie</enrichment>
    <enrichment key="opus.source">publish</enrichment>
    <licence>Keine Lizenz - Es gilt das deutsche Urheberrecht: § 53 UrhG</licence>
    <author>Christina Kurfess</author>
    <author>Sabine Corsten</author>
    <author>Maren Nickel</author>
    <author>Daniel Kreiter</author>
    <author>Norina Lauer</author>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Aphasie</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Partizipation</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Lebensqualität</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Inklusion</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>aphasia</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>digital inclusion</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>digital network</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>peer support</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>health-related quality of life</value>
    </subject>
    <collection role="institutes" number="FakSoz">Fakultät Sozial- und Gesundheitswissenschaften</collection>
    <collection role="institutes" number="RCHST">Regensburg Center of Health Sciences and Technology - RCHST</collection>
    <collection role="persons" number="lauerlp">Lauer, Norina (Prof. Dr.) - Labor Logopädie</collection>
    <collection role="othforschungsschwerpunkt" number="16314">Lebenswissenschaften und Ethik</collection>
    <collection role="institutes" number="">Labor Logopädie (LP)</collection>
    <collection role="DFGFachsystematik" number="2">Geistes- und Sozialwissenschaften</collection>
  </doc>
  <doc>
    <id>3595</id>
    <completedYear/>
    <publishedYear>2022</publishedYear>
    <thesisYearAccepted/>
    <language>deu</language>
    <pageFirst>6</pageFirst>
    <pageLast>11</pageLast>
    <pageNumber/>
    <edition/>
    <issue>3</issue>
    <volume>36</volume>
    <type>article</type>
    <publisherName>Schulz-Kirchner-Verlag</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>0</belongsToBibliography>
    <completedDate>2022-05-01</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="deu">Gut vernetzt ist halb befreundet!?</title>
    <abstract language="deu">Die Entwicklung einer an die spezifischen Bedürfnisse von Menschen mit Aphasie angepassten Smartphone-basierten App erfordert einen umfangreichen Entwicklungsprozess. Dabei ist es wichtig, die Zielgruppe von Anfang an in den Prozess einzubeziehen, um die spezifischen Wünsche und Anforderungen an die App erfassen und in den Entwicklungsprozess integrieren zu können. In diesem Beitrag wird die nutzerzentrierte, partizipative Entwicklung der App PeerPAL vorgestellt. Mit der App sollen neben einem digitalen Austausch auch reale Face-to-Face-Treffen stimuliert werden mit dem Ziel, die autonome Vernetzung unter den Betroffenen zu fördern und dadurch die Lebensqualität von Menschen mit Aphasie zu steigern.</abstract>
    <parentTitle language="deu">Forum Logopädie</parentTitle>
    <subTitle language="deu">Partizipative Entwicklung eines Smartphone-basierten sozialen Netzwerks für Menschen mit Aphasie</subTitle>
    <identifier type="url">https://www.dbl-ev.de/wp-content/uploads/2025/03/22_03_6-11_Kurfess_Gut_vernetzt_ist_halb_befreundet.pdf</identifier>
    <enrichment key="opus.source">publish</enrichment>
    <licence>Keine Lizenz - Es gilt das deutsche Urheberrecht: § 53 UrhG</licence>
    <author>Christina Kurfeß</author>
    <author>Norina Lauer</author>
    <author>Marie Knieriemen</author>
    <author>Daniel Kreiter</author>
    <author>Sabine Corsten</author>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Aphasie</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Digitalisierung</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Partizipation</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>uncontrolled</type>
      <value>App-Entwicklung</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>uncontrolled</type>
      <value>Peer-Befriending</value>
    </subject>
    <collection role="ddc" number="61">Medizin und Gesundheit</collection>
    <collection role="institutes" number="FakSoz">Fakultät Sozial- und Gesundheitswissenschaften</collection>
    <collection role="institutes" number="RCHST">Regensburg Center of Health Sciences and Technology - RCHST</collection>
    <collection role="persons" number="lauerlp">Lauer, Norina (Prof. Dr.) - Labor Logopädie</collection>
    <collection role="othforschungsschwerpunkt" number="16314">Lebenswissenschaften und Ethik</collection>
    <collection role="institutes" number="">Labor Logopädie (LP)</collection>
  </doc>
  <doc>
    <id>6488</id>
    <completedYear/>
    <publishedYear>2023</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue/>
    <volume>8</volume>
    <type>article</type>
    <publisherName>Frontiers Media S.A.</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>0</belongsToBibliography>
    <completedDate>2023-09-19</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Peer-to-peer support: digital networking in aphasia to improve quality of life (PeerPAL)</title>
    <abstract language="eng">Background: &#13;
People with aphasia (PWA) often suffer from reduced participation and quality of life. Nevertheless, there are currently only a few specific interventions that respond to this problem. Participation and quality of life could be increased by interacting with peers who have similar experiences. Digital social networks could stimulate an autonomous interaction. However, digital social networks need to be adapted to the specific needs of PWA. Therefore, a participatory, agile process involving the target group should be chosen to develop such a olution, i.e., an app. The research project consists of a total of three phases. In the first phase—app development—the app was developed and programmed including the target group. In the second phase—app testing—the usability and user-friendliness of the app were evaluated with four PWA. In the third phase—feasibility and preliminary effcacy—that will be described in the article, the impact of the app on PWA will be evaluated.&#13;
Aims: &#13;
The overarching aim of our study is to provide preliminary effcacy of the intervention. Digital social interaction with other PWA can lead to increased social integration. In addition to digital interaction, personal encounters between PWA should be encouraged. As a result, we expect an improvement in quality of life of PWA. Additionally, we focus on identification of the most appropriate measurements to discover changes associated with the intervention.&#13;
Methods: &#13;
The evaluation, which is described in this paper, takes place in a pre-test - post-test design with a total of n = 48 PWA. Participants will be recruited in regional clusters to facilitate face-to-face meetings. Half of the participants will be assigned to the delayed intervention group and the other half to the immediate intervention group. Participants in the delayed intervention group will go through a 3-month waiting period before using the app, while the participants of the immediate intervention group will start using the app for 3 months right away. Inclusion criteria are the presence of chronic aphasia (at least 6 months) and possession of a smartphone with internet access. Questionnaires on quality of life (SAQOL-39, GHQ-12), depression (GDS, DISCs), communicative participation (CPIB), and social support (F-SozU) will be conducted at inclusion (t0), after 3 months of app use (t1), and after another 3 months for follow-up (t2). Participants in the delayed intervention group will be assessed twice before the intervention, before the 3-month waiting period (t0a) and after the waiting period (t0b). In addition to the quantitative measures, interviews will take place with 6 to 8 selected participants after 3 months of app use. Responses will be analysed using Thematic Analysis.&#13;
Discussion: &#13;
The app will be the first social network tool that is systematically developed with PWA. Initial indications from the first phases are that the app can be used by PWA, so that the evaluation of this app version can take place in the third phase. Results of this study can provide an initial indication of whether social network support is a suitable intervention. Findings will help provide information on the feasibility of digital connectivity for PWA. Preliminary findings on its impact on the participation and quality of life of PWA could be made available.</abstract>
    <parentTitle language="eng">Frontiers in Communication</parentTitle>
    <identifier type="doi">10.3389/fcomm.2023.1187233</identifier>
    <identifier type="urn">urn:nbn:de:bvb:898-opus4-64881</identifier>
    <enrichment key="BegutachtungStatus">peer-reviewed</enrichment>
    <enrichment key="opus.source">publish</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <licence>Creative Commons - CC BY - Namensnennung 4.0 International</licence>
    <author>Christina Kurfess</author>
    <author>Sabine Corsten</author>
    <author>Maren Nickel</author>
    <author>Marie Knieriemen</author>
    <author>Daniel Kreiter</author>
    <author>Norina Lauer</author>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Aphasie</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Partizipation</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Lebensqualität</value>
    </subject>
    <subject>
      <language>deu</language>
      <type>swd</type>
      <value>Soziales Netzwerk</value>
    </subject>
    <subject>
      <language>eng</language>
      <type>uncontrolled</type>
      <value>peer-to-peer support</value>
    </subject>
    <collection role="institutes" number="FakSoz">Fakultät Sozial- und Gesundheitswissenschaften</collection>
    <collection role="institutes" number="RCHST">Regensburg Center of Health Sciences and Technology - RCHST</collection>
    <collection role="oaweg" number="">Gold Open Access- Erstveröffentlichung in einem/als Open-Access-Medium</collection>
    <collection role="persons" number="lauerlp">Lauer, Norina (Prof. Dr.) - Labor Logopädie</collection>
    <collection role="othforschungsschwerpunkt" number="16314">Lebenswissenschaften und Ethik</collection>
    <thesisPublisher>Ostbayerische Technische Hochschule Regensburg</thesisPublisher>
    <file>https://opus4.kobv.de/opus4-oth-regensburg/files/6488/Kurfess-ea_2023_PeerPAL.pdf</file>
  </doc>
</export-example>
