@article{KurfessCorstenNickeletal., author = {Kurfess, Christina and Corsten, Sabine and Nickel, Maren and Kreiter, Daniel and Lauer, Norina}, title = {Improving health-related quality of life for people with aphasia through peer support using the digital network PeerPAL}, series = {Aphasiology}, journal = {Aphasiology}, publisher = {Taylor \& Francis}, doi = {10.1080/02687038.2025.2505641}, pages = {1 -- 24}, abstract = {Background: Aphasia is often associated with psychosocial changes that may affect health-related quality of life, risk of depression or social participation. One possible intervention to address these psychosocial changes is peer contact. However, this often requires professional support (e.g. supervised support groups), whereas a digital option may allow for autonomous, asynchronous peer contact. Therefore, we developed an app adapted to the specific needs of people with aphasia to stimulate digital and analogue interactions. Aims: The aim of the study was to evaluate a tailored app for people with aphasia that can be used to establish peer contact and enable digital and analogue interactions. The impact of using the app on health-related quality of life, social participation and depression prevention was analysed. Methods \& Procedures: The study design was a pre-post wait-list-controlled comparison in which half of the participants (n = 18) waited three months before starting the intervention, and the other half of the participants (n = 18) started the intervention immediately. During the intervention, the app was used by all participants (n = 36) for three months after a training session, followed by three months of optional app use until follow-up. Health-related quality of life (SAQOL39g, GHQ-12), communicative participation (CPIB), social support (F-SozU), depression markers (GDS, DISCs), and activity in the app were recorded at each time point. Analyses were mainly non-parametric to calculate changes during the intervention and to compare the intervention with the waiting period. The study is registered in the German Register of Clinical Trials (DRKS00023855). Outcomes \& Results: SAQOL-39g data improved significantly for the whole group during the intervention period (z = -3.043, p = 0.002, r = -0.598), but not during the waiting period (z = 0.402, p = 0.705). Scores remained stable until follow-up, and there was no worsening of depression markers over the entire period. No linear correlation was found between the improvement in SAQOL-39g and activity in the app (p = 0.329, r = 0.167). Conclusions: People with aphasia were able to use the app and showed an intervention-specific effect on health-related quality of life. The amount of activity in the app seems to be less critical for changes. Other factors, such as feeling connected to peers, appear to be relevant. Future studies should explore who might benefit most from the app.}, subject = {Aphasie}, language = {en} } @article{GiordanoLauerLeuschetal., author = {Giordano, Katharina and Lauer, Norina and Leusch, Vera and Danner, C{\"a}cilia and Kreiter, Daniel and Corsten, Sabine}, title = {Pr{\"a}ventionsforschung mit Menschen im Alter}, series = {Forum Logop{\"a}die}, volume = {37}, journal = {Forum Logop{\"a}die}, number = {7}, doi = {10.2443/skv-s-2023-53020230104}, pages = {26 -- 31}, abstract = {Mit dem demografischen Wandel wird der Anteil der institutionalisierten Menschen im hohen Alter in den kommenden Jahrzehnten stark zunehmen. Sie sind oftmals betroffen von altersbedingten Einschr{\"a}nkungen in der Kommunikation, dem Erleben von Einsamkeit, Einbußen in der Lebensqualit{\"a}t und tragen ein erh{\"o}htes Risiko, an einer Demenz zu erkranken. Mit Blick auf die m{\"o}gliche Entwicklung logop{\"a}disch relevanter Beeintr{\"a}chtigungen erscheint es sinnvoll, entsprechende Pr{\"a}ventionsmaßnahmen zu erarbeiten. Die Rekrutierung und Einbindung der Zielgruppe gestaltet sich durch ihre institutionelle Einbettung und besonderen Bedarfe komplex. Barrieren und potenzielle F{\"o}rderfaktoren f{\"u}r die Forschung mit Bewohner*innen von Senioreneinrichtungen werden anhand der aktuellen Literatur und der Erfahrungen aus dem Forschungsprojekt BaSeTaLK vorgestellt. Es werden erste Ideen generiert, wie sich die genannten Herausforderungen durch die Einbindung von Logop{\"a}d*innen an der Schnittstelle von Forschung und Praxis {\"u}berwinden lassen und welche besondere Rolle auch Studierende der Logop{\"a}die in der geriatrischen Forschung einnehmen k{\"o}nnen. Außerdem wird der Mehrwert f{\"u}r die klinisch-praktische Versorgung diskutiert.}, subject = {Pr{\"a}vention}, language = {de} } @article{KurfessLauerKnieriemenetal., author = {Kurfeß, Christina and Lauer, Norina and Knieriemen, Marie and Kreiter, Daniel and Corsten, Sabine}, title = {Gut vernetzt ist halb befreundet!?}, series = {Forum Logop{\"a}die}, volume = {36}, journal = {Forum Logop{\"a}die}, number = {3}, publisher = {Schulz-Kirchner-Verlag}, pages = {6 -- 11}, abstract = {Die Entwicklung einer an die spezifischen Bed{\"u}rfnisse von Menschen mit Aphasie angepassten Smartphone-basierten App erfordert einen umfangreichen Entwicklungsprozess. Dabei ist es wichtig, die Zielgruppe von Anfang an in den Prozess einzubeziehen, um die spezifischen W{\"u}nsche und Anforderungen an die App erfassen und in den Entwicklungsprozess integrieren zu k{\"o}nnen. In diesem Beitrag wird die nutzerzentrierte, partizipative Entwicklung der App PeerPAL vorgestellt. Mit der App sollen neben einem digitalen Austausch auch reale Face-to-Face-Treffen stimuliert werden mit dem Ziel, die autonome Vernetzung unter den Betroffenen zu f{\"o}rdern und dadurch die Lebensqualit{\"a}t von Menschen mit Aphasie zu steigern.}, subject = {Aphasie}, language = {de} } @article{KnieriemenLauerGiordanoetal., author = {Knieriemen, Marie and Lauer, Norina and Giordano, Katharina and Kreiter, Daniel and Corsten, Sabine}, title = {In den Austausch kommen}, series = {Pflegezeitschrift}, volume = {75}, journal = {Pflegezeitschrift}, number = {10}, publisher = {Springer Nature}, doi = {10.1007/s41906-022-1922-4}, pages = {58 -- 63}, abstract = {Mit der BaSeTaLK-App wird eine Tablet-gest{\"u}tzte Biographiearbeit f{\"u}r institutionalisierte {\"a}ltere Menschen zur Steigerung der Lebensqualit{\"a}t erm{\"o}glicht. Um Gelingensbedingungen f{\"u}r die Erprobung und die m{\"o}gliche Implementierung der Maßnahme zu bestimmen, wurde die Perspektive von Mitarbeitenden einer Pflegeeinrichtung eingeholt. Insbesondere eine umfassende Informationsvermittlung und eine flexible, enge Zusammenarbeit mit den Forschenden wurden hervorgehoben.}, subject = {Biografieforschung}, language = {de} } @article{LeuschCorstenGiordanoetal., author = {Leusch, Vera and Corsten, Sabine and Giordano, Katharina and Kreiter, Daniel and Lauer, Norina}, title = {App erleichtert Gespr{\"a}che {\"u}ber das Leben}, series = {Aktivieren : das Magazin f{\"u}r die soziale Betreuung}, volume = {8}, journal = {Aktivieren : das Magazin f{\"u}r die soziale Betreuung}, number = {5}, publisher = {Vincentz}, address = {Hannover}, issn = {2364-303X}, pages = {32 -- 35}, abstract = {Das Forschungsteam BaSeTaLK hat gemeinsam mit Menschen im Alter eine App zur Biografiearbeit fr Bewohner:innen in Senioreneinrichtungen entwickelt. Sie bef{\"a}higt insbesondere Ehrenamtliche, biografische Gespr{\"a}che zu f{\"u}hren.}, subject = {Biografieforschung}, language = {de} } @article{KurfessCorstenNickeletal., author = {Kurfess, Christina and Corsten, Sabine and Nickel, Maren and Knieriemen, Marie and Kreiter, Daniel and Lauer, Norina}, title = {Peer-to-peer support: digital networking in aphasia to improve quality of life (PeerPAL)}, series = {Frontiers in Communication}, volume = {8}, journal = {Frontiers in Communication}, publisher = {Frontiers Media S.A.}, doi = {10.3389/fcomm.2023.1187233}, url = {http://nbn-resolving.de/urn:nbn:de:bvb:898-opus4-64881}, abstract = {Background: People with aphasia (PWA) often suffer from reduced participation and quality of life. Nevertheless, there are currently only a few specific interventions that respond to this problem. Participation and quality of life could be increased by interacting with peers who have similar experiences. Digital social networks could stimulate an autonomous interaction. However, digital social networks need to be adapted to the specific needs of PWA. Therefore, a participatory, agile process involving the target group should be chosen to develop such a olution, i.e., an app. The research project consists of a total of three phases. In the first phase—app development—the app was developed and programmed including the target group. In the second phase—app testing—the usability and user-friendliness of the app were evaluated with four PWA. In the third phase—feasibility and preliminary effcacy—that will be described in the article, the impact of the app on PWA will be evaluated. Aims: The overarching aim of our study is to provide preliminary effcacy of the intervention. Digital social interaction with other PWA can lead to increased social integration. In addition to digital interaction, personal encounters between PWA should be encouraged. As a result, we expect an improvement in quality of life of PWA. Additionally, we focus on identification of the most appropriate measurements to discover changes associated with the intervention. Methods: The evaluation, which is described in this paper, takes place in a pre-test - post-test design with a total of n = 48 PWA. Participants will be recruited in regional clusters to facilitate face-to-face meetings. Half of the participants will be assigned to the delayed intervention group and the other half to the immediate intervention group. Participants in the delayed intervention group will go through a 3-month waiting period before using the app, while the participants of the immediate intervention group will start using the app for 3 months right away. Inclusion criteria are the presence of chronic aphasia (at least 6 months) and possession of a smartphone with internet access. Questionnaires on quality of life (SAQOL-39, GHQ-12), depression (GDS, DISCs), communicative participation (CPIB), and social support (F-SozU) will be conducted at inclusion (t0), after 3 months of app use (t1), and after another 3 months for follow-up (t2). Participants in the delayed intervention group will be assessed twice before the intervention, before the 3-month waiting period (t0a) and after the waiting period (t0b). In addition to the quantitative measures, interviews will take place with 6 to 8 selected participants after 3 months of app use. Responses will be analysed using Thematic Analysis. Discussion: The app will be the first social network tool that is systematically developed with PWA. Initial indications from the first phases are that the app can be used by PWA, so that the evaluation of this app version can take place in the third phase. Results of this study can provide an initial indication of whether social network support is a suitable intervention. Findings will help provide information on the feasibility of digital connectivity for PWA. Preliminary findings on its impact on the participation and quality of life of PWA could be made available.}, subject = {Aphasie}, language = {en} } @article{GreinerLauerSchedeletal., author = {Greiner, Nina and Lauer, Norina and Schedel, Valentin and Pfingsten, Andrea}, title = {Group rehabilitation for adults with acquired neurological disorders: A systematic review of mono- and interdisciplinary interventions in physical and speech-language therapy}, series = {PM\&R}, journal = {PM\&R}, publisher = {Wiley}, doi = {10.1002/pmrj.70006}, pages = {17}, abstract = {Background: Group treatments and interdisciplinary collaboration are recommended in evidence-based guidelines for neurorehabilitation, including physical and speech-language therapy. Evidence suggests that activating overlapping neural networks for upper extremity motor control and speechlanguage processing produces synergistic effects during therapy. This systematic review aims to overview and appraise the efficacy of group treatments in traditional rehabilitation and telerehabilitation. In addition to summarizing evidence on monodisciplinary approaches in physical and speech-language therapy, it seeks data on integrative approaches involving one or both disciplines to inform further interdisciplinary collaboration. Methods: The review was registered with PROSPERO (CRD42021288012) and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Systematic searches were conducted in PubMed, CINAHL, and the Cochrane Library. Two reviewers independently screened studies, extracted data, and assessed quality using AMSTAR 2, the Physiotherapy Evidence Database (PEDro) scale, or the Joanna Briggs Institute (JBI) Checklist, as appropriate. The evidence was summarized in a systematic narrative synthesis and its certainty rated based on the Grading of Recommendations Assessment, Development, and Evaluation (GRADE) approach. Results: A total of 29 studies were included: 16 on speech-language therapy (861 participants) and 13 on physical therapy (1757 participants). No studies addressed interdisciplinary group interventions, and only two evaluated group telerehabilitation. Outcome domains and measures varied across studies and the certainty of evidence was predominantly low. However, moderate-certainty evidence supports that group speech-language therapy improves quality of life, communication, and language in stroke survivors, especially when interventions emphasize verbal production in communicative settings with multimodal materials and cueing. In physical therapy, circuit class training may be more effective than other group approaches for enhancing quality of life and mobility. Conclusion: Group treatments in neurorehabilitation show some benefits, but further research is needed - especially regarding interdisciplinary approaches and telerehabilitation.}, subject = {Gruppentherapie}, language = {en} } @article{NickelLauerKurfessetal., author = {Nickel, Maren T. and Lauer, Norina and Kurfess, Christina and Kreiter, Daniel and Corsten, Sabine}, title = {Peer-to-peer support in Aphasia: the participants' perspective on the digital network PeerPAL}, series = {Qualitative Research in Communication Differences and Disorders}, volume = {16}, journal = {Qualitative Research in Communication Differences and Disorders}, number = {1}, publisher = {University of Toronto Press}, pages = {43 -- 81}, abstract = {Background: Aphasia can affect health-related quality of life (HRQL), identity, and social participation. Peer contact can have a positive impact on all three aspects. However, there are barriers to the available offers (e.g., professional guidance), whereas a digital solution enables autonomous peer contact. Therefore, we developed and evaluated a customized application for autonomous, asynchronous peer contact that encourages social activities and interaction. The qualitative evaluation in this study includes evaluation of the application and psychosocial changes during the intervention. Quantitative data are published elsewhere. Method: We conducted interviews with 11 people with aphasia who had participated in our pre-post mixed-methods study. The interviews were analyzed using thematic analysis guided by a codebook. Results: Responses were categorized into use and evaluation of the application (three themes) and psychosocial changes during the intervention (four themes). Most interviewees reported that they would like to use the application in the future. The benefits of peer contact, digital exchange, and, thereby, social activities were positively highlighted. Moreover, there are indications of improvements in HRQL and a change in identity. Negative aspects included a lack of feedback from other participants, too few peers in the geographical area, and missing features and bugs in the application. Discussion/Conclusions: The application is suitable for establishing peer contact, which can lead to psychosocial improvements. It remains to be analyzed who benefits most from the application and at what phase of aphasia. Time since onset, social environment, and previous peer contact should be considered. In the future, a larger sample should be analyzed.}, subject = {Aphasie}, language = {en} }