TY - JOUR A1 - Odell-Miller, Helen A1 - Blauth, Laura A1 - Bloska, Jodie A1 - Bukowska, Anna A. A1 - Clark, Imogen N. A1 - Crabtree, Sarah A1 - Engen, Runa B. A1 - Knardal, Solgunn A1 - Kvamme, Tone K. A1 - McMahon, Kate A1 - Petrowitz, Carina A1 - Smrokowska-Reichmann, Agnieszka A1 - Stensæth, Karette A1 - Tamplin, Jeanette A1 - Wosch, Thomas A1 - Wollersberger, Nina A1 - Baker, Felicity A. T1 - The HOMESIDE Music Intervention: A Training Protocol for Family Carers of People Living with Dementia JF - European Journal of Investigation in Health, Psychology and Education N2 - Background: The number of people living with dementia (PwD) worldwide is expected to double every 20 years. Many continue living at home, receiving support from family caregivers who may experience significant stress, simultaneously to that of the PwD. Meaningful and effective home-based interventions to support PwD and their caregivers are needed. The development of a theory- and practice-driven online home-based music intervention (MI) is delivered by credentialed music therapists, nested within the HOMESIDE RCT trial. Methods: Dyads including the PwD and their family carer are randomised to MI, reading (RI) or standard care (SC). MI aims to support health wellbeing and quality of life by training caregivers to intentionally use music (singing, instrument playing, movement/dancing, and music listening) with their family member (PwD) in daily routines. MI is underpinned by cognitive, relational, social, and psychological theories of mechanisms of change. Results: Preliminary sub-cohort results analyses show MI can be delivered and is accepted well by participants and music-therapist interventionists across five countries. Conclusions: The specialist skills of a music therapist through MI enable carers to access music when music therapists are not present, to meet carer and PwD needs. Music therapists embrace this changing professional role, observing therapeutic change for members of the dyads. Y1 - 2022 U6 - https://doi.org/10.3390/ejihpe12120127 SN - 2254-9625 VL - 12 IS - 12 SP - 1812 EP - 1832 PB - MDPI AG ER - TY - JOUR A1 - Crabtree, Sarah A1 - Baker, Felicity Anne A1 - Bukowska, Anna A. A1 - Hsu, Ming-Hung A1 - Kvamme, Tone A1 - McMahon, Kate A1 - Odell-Miller, Helen A1 - Sousa, Tanara A1 - Stensæth, Karette A1 - Wosch, Thomas A1 - Tamplin, Jeanette T1 - Exploring the use of musical activities implemented in home-based dementia care as part of the HOMESIDE study JF - Arts & Health Y1 - 2025 U6 - https://doi.org/10.1080/17533015.2025.2525334 SN - 1753-3015 SP - 1 EP - 18 PB - Informa UK Limited ER - TY - JOUR A1 - Bloska, Jodie A1 - Crabtree, Sarah A1 - Wollersberger, Nina A1 - Mitchell, Oti A1 - Coles, Jenny A1 - Halsey, Caroline A1 - Parry, Geraldine A1 - Stewart, Robert A1 - Thacker, Susan A1 - Thacker, Mark A1 - Claydon-Mueller, Leica A1 - Winnard, Yvette A1 - McMahon, Kate A1 - Petrowitz, Carina A1 - Smrokowska-Reichmann, Agnieszka A1 - van Doorn, Beatrix A1 - Baker, Felicity A. A1 - Blauth, Laura A1 - Bukowska, Anna A. A1 - Stensæth, Karette A1 - Tamplin, Jeanette A1 - Wosch, Thomas A1 - Odell-Miller, Helen T1 - Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers JF - Research Involvement and Engagement N2 - Background This study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that investigated music and reading interventions for people living with dementia and their family caregivers across five countries: Australia, Germany, Norway, Poland, and the UK. The aim was to capture experiences of PPI across the five countries, explore the benefits and challenges of PPI in dementia research, and identify contributions made to the study. Methods We surveyed PPI members and academic researchers who collaborated on the HOMESIDE study. The survey was co-designed through consultation with PPI members and academics, alongside a small scoping literature review. Survey questions covered four topics: (1) expectations for PPI, (2) perceived contributions of PPI to the research study, (3) benefits and challenges of PPI, and (4) recommendations for future PPI in dementia research. Results There were 23 responses, representing 50% of the PPI members (n = 16) and 29% of academics (n = 7). PPI was found to be beneficial to the research and individuals involved. Contributions to the research included supporting recruitment and publicity, advising on the design of participant-facing materials, guiding the design and delivery of the interventions, and identifying cultural differences affecting research delivery. PPI members benefited from building connections, sharing experiences and receiving support, learning about dementia and research, and gaining new unexpected experiences. Academics learned about the realities of living with dementia, which they felt informed and grounded their work. Several challenges were identified, including the need for clear expectations and objectives, inconsistency of PPI members across research stages, limitations of meeting online versus in-person, scheduling difficulties, and language barriers. Conclusions This study identifies important considerations for implementing PPI within dementia studies and international healthcare research more broadly. Our findings guided the development of five recommendations: (1) involve PPI members as early as possible and throughout the research process; (2) create a space for constructive criticism and feedback; (3) have clear tasks, roles, and expectations for PPI members; (4) involve PPI members with a diverse range of experiences and backgrounds; and (5) embed infrastructure and planning to support PPI. Y1 - 2024 U6 - https://doi.org/10.1186/s40900-024-00574-2 SN - 2056-7529 VL - 10 IS - 1 PB - Springer Science and Business Media LLC ER -