<?xml version="1.0" encoding="utf-8"?>
<export-example>
  <doc>
    <id>6329</id>
    <completedYear/>
    <publishedYear>2025</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue>1</issue>
    <volume>15</volume>
    <type>article</type>
    <publisherName>Springer Science and Business Media LLC</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Relationship between dementia diagnostic characteristics and severity of depressive symptoms in a cross-sectional analysis of HOMESIDE baseline data</title>
    <parentTitle language="eng">Scientific Reports</parentTitle>
    <identifier type="issn">2045-2322</identifier>
    <identifier type="doi">10.1038/s41598-025-20385-z</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T20:55:23Z","timestamp":1761166523148,"version":"build-2065373602"},"reference-count":38,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T00:00:00Z","timestamp":1761004800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T00:00:00Z","timestamp":1761004800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"funder":[{"name":"The National Centre for Research and Development, Poland","award":["JPND\/04\/2019"]},{"name":"National Health and Medical Research Council, Australia","award":["GNT1169867"]},{"name":"Alzheimer\u2019s Society, UK","award":["grant no. 462"]},{"DOI":"10.13039\/501100005416","name":"Norwegian Research Council","doi-asserted-by":"crossref","award":["Project number 298995"],"id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Federal Ministry of Education and Research Germany","award":["01ED1901"]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Sci Rep"],"DOI":"10.1038\/s41598-025-20385-z","type":"journal-article","created":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T09:13:25Z","timestamp":1761038005000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Relationship between dementia diagnostic characteristics and severity of depressive symptoms in a cross-sectional analysis of HOMESIDE baseline data"],"prefix":"10.1038","volume":"15","clinical-trial-number":[{"clinical-trial-number":"actrn12618001799246","registry":"10.18810\/anzctr"},{"clinical-trial-number":"nct03907748","registry":"10.18810\/clinical-trials-gov"}],"author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1840-3070","authenticated-orcid":false,"given":"Anna A.","family":"Bukowska","sequence":"first","affiliation":[]},{"given":"Edyta","family":"Janus","sequence":"additional","affiliation":[]},{"given":"Vanessa Pac","family":"Soo","sequence":"additional","affiliation":[]},{"given":"Agnieszka","family":"Smrokowska-Reichmann","sequence":"additional","affiliation":[]},{"given":"Ming Hung","family":"Hsu","sequence":"additional","affiliation":[]},{"given":"Karette A.","family":"Stens\u00e6th","sequence":"additional","affiliation":[]},{"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[]},{"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[]},{"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[]},{"given":"Karen E.","family":"Lamb","sequence":"additional","affiliation":[]},{"given":"Sabine","family":"Braat","sequence":"additional","affiliation":[]},{"given":"Felicity A.","family":"Baker","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2025,10,21]]},"reference":[{"issue":"11","key":"20385_CR1","doi-asserted-by":"publisher","first-page":"634","DOI":"10.1038\/nrneurol.2014.181","volume":"10","author":"PS Sachdev","year":"2014","unstructured":"Sachdev, P. S. et al. Classifying neurocognitive disorders: the DSM-5 approach. Nat. Rev. Neurol. 10(11), 634\u2013642. https:\/\/doi.org\/10.1038\/nrneurol.2014.181 (2014).","journal-title":"Nat. Rev. Neurol."},{"key":"20385_CR2","doi-asserted-by":"publisher","first-page":"857","DOI":"10.1176\/appi.ajp.160.5.857","volume":"160","author":"GS Zubenko","year":"2003","unstructured":"Zubenko, G. S. et al. A collaborative study of the emergence and clinical features of the major depressive syndrome of Alzheimer\u2019s disease. Am. J. Psychiatry. 160, 857\u2013866. https:\/\/doi.org\/10.1176\/appi.ajp.160.5.857 (2003).","journal-title":"Am. J. Psychiatry."},{"issue":"12","key":"20385_CR3","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2015-008853","volume":"5","author":"N Cherbuin","year":"2015","unstructured":"Cherbuin, N., Kim, S. &amp; Anstey, K. J. Dementia risk estimates associated with measures of depression: a systematic review and meta-analysis. BMJ Open 5(12), e008853. https:\/\/doi.org\/10.1136\/bmjopen-2015-008853 (2015).","journal-title":"BMJ Open"},{"issue":"12","key":"20385_CR4","doi-asserted-by":"publisher","first-page":"493","DOI":"10.33588\/rn.6812.2018398","volume":"68","author":"J Santabarbara","year":"2019","unstructured":"Santabarbara, J., Sevil-Perez, A., Olaya, B., Gracia-Garc\u00eda, P. &amp; L\u00f3pez-Ant\u00f3n, R. Clinically relevant late-life depression as risk factor of dementia: a systematic review and meta-analysis of prospective cohort studies. Rev. Neurol. 68(12), 493\u2013502. https:\/\/doi.org\/10.33588\/rn.6812.2018398 (2019).","journal-title":"Rev. Neurol."},{"issue":"2","key":"20385_CR5","doi-asserted-by":"publisher","first-page":"126","DOI":"10.1016\/j.jagp.2015.03.006","volume":"24","author":"S Sacuiu","year":"2016","unstructured":"Sacuiu, S. et al. Chronic depressive symptomatology in mild cognitive impairment is associated with frontal atrophy rate which hastens conversion to Alzheimer dementia. Am. J. Geriatr. Psychiatry. 24(2), 126\u2013135. https:\/\/doi.org\/10.1016\/j.jagp.2015.03.006 (2016).","journal-title":"Am. J. Geriatr. Psychiatry."},{"issue":"6","key":"20385_CR6","doi-asserted-by":"publisher","first-page":"461","DOI":"10.1097\/YCO.0b013e32834bb9d4","volume":"24","author":"D Enache","year":"2011","unstructured":"Enache, D., Winblad, B. &amp; Aarsland, D. Depression in dementia: epidemiology, mechanisms, and treatment. Curr. Opin. Psychiatry. 24(6), 461\u2013472. https:\/\/doi.org\/10.1097\/YCO.0b013e32834bb9d4 (2011).","journal-title":"Curr. Opin. Psychiatry."},{"issue":"10248","key":"20385_CR7","doi-asserted-by":"publisher","first-page":"413","DOI":"10.1016\/S0140-6736(20)30367-6","volume":"396","author":"G Livingston","year":"2020","unstructured":"Livingston, G. et al. Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet 396(10248), 413\u2013446. https:\/\/doi.org\/10.1016\/S0140-6736(20)30367-6 (2020).","journal-title":"Lancet"},{"issue":"2","key":"20385_CR8","doi-asserted-by":"publisher","first-page":"184","DOI":"10.1016\/j.maturitas.2014.05.009","volume":"79","author":"S Bennett","year":"2014","unstructured":"Bennett, S. &amp; Thomas, A. J. Depression and dementia: cause, consequence or coincidence?. Maturitas 79(2), 184\u2013190. https:\/\/doi.org\/10.1016\/j.maturitas.2014.05.009 (2014).","journal-title":"Maturitas"},{"key":"20385_CR9","doi-asserted-by":"publisher","first-page":"1098","DOI":"10.1186\/s12889-016-3638-0","volume":"16","author":"A Freeman","year":"2016","unstructured":"Freeman, A. et al. The role of socio-economic status in depression: results from the COURAGE (aging survey in Europe). BMC Public Health 16, 1098. https:\/\/doi.org\/10.1186\/s12889-016-3638-0 (2016).","journal-title":"BMC Public Health"},{"key":"20385_CR10","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2023.102224","volume":"65","author":"FA Baker","year":"2023","unstructured":"Baker, F. A. et al. Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial. eClinicalMedicine. 65, 102224. https:\/\/doi.org\/10.1016\/j.eclinm.2023.102224 (2023).","journal-title":"eClinicalMedicine."},{"issue":"32","key":"20385_CR11","doi-asserted-by":"publisher","DOI":"10.1016\/j.conctc.2023.101079","volume":"31","author":"FA Baker","year":"2023","unstructured":"Baker, F. A. et al. Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial. Contemp. Clin. Trials Commun. 31(32), 101079. https:\/\/doi.org\/10.1016\/j.conctc.2023.101079 (2023).","journal-title":"Contemp. Clin. Trials Commun."},{"key":"20385_CR12","doi-asserted-by":"publisher","first-page":"382","DOI":"10.1192\/bjp.134.4.382","volume":"134","author":"SA Montgomery","year":"1979","unstructured":"Montgomery, S. A. &amp; \u00c5sberg, M. A new depression scale designed to be sensitive to change. Br. J. Psychiatry. 134, 382\u2013389. https:\/\/doi.org\/10.1192\/bjp.134.4.382 (1979).","journal-title":"Br. J. Psychiatry."},{"issue":"3","key":"20385_CR13","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1016\/0022-3956(75)90026-6","volume":"12","author":"MF Folstein","year":"1975","unstructured":"Folstein, M. F., Folstein, S. E. &amp; McHugh, P. R. \u201cMini-mental state\u201d. A practical method for grading the cognitive state of patients for the clinician. J. Psychiatr. Res. 12(3), 189\u2013198. https:\/\/doi.org\/10.1016\/0022-3956(75)90026-6 (1975).","journal-title":"J. Psychiatr. Res."},{"issue":"5","key":"20385_CR14","doi-asserted-by":"publisher","first-page":"1329","DOI":"10.1185\/030079908X291958","volume":"24","author":"G Duru","year":"2008","unstructured":"Duru, G. &amp; Fantino, B. The clinical relevance of changes in the Montgomery-Asberg Depression Rating Scale using the minimum clinically important difference approach. Curr. Med. Res. Opin. 24(5), 1329\u20131335. https:\/\/doi.org\/10.1185\/030079908X291958 (2008).","journal-title":"Curr. Med. Res. Opin."},{"issue":"7","key":"20385_CR15","doi-asserted-by":"publisher","first-page":"805","DOI":"10.1016\/j.jclinepi.2013.01.010","volume":"66","author":"SC Masson","year":"2013","unstructured":"Masson, S. C. &amp; Tejani, A. M. Minimum clinically important differences identified for commonly used depression rating scales. J. Clin. Epidemiol. 66(7), 805\u2013807. https:\/\/doi.org\/10.1016\/j.jclinepi.2013.01.010 (2013).","journal-title":"J. Clin. Epidemiol."},{"issue":"15","key":"20385_CR16","doi-asserted-by":"publisher","first-page":"1063","DOI":"10.1016\/j.jpsychires.2010.03.006","volume":"44","author":"M Riedel","year":"2010","unstructured":"Riedel, M. et al. Response and remission criteria in major depression\u2014a validation of current practice. J. Psychiatr. Res. 44(15), 1063\u20131068. https:\/\/doi.org\/10.1016\/j.jpsychires.2010.03.006 (2010).","journal-title":"J. Psychiatr. Res."},{"issue":"1","key":"20385_CR17","doi-asserted-by":"publisher","first-page":"244","DOI":"10.1186\/s12883-016-0754-5","volume":"16","author":"Z Goodarzi","year":"2016","unstructured":"Goodarzi, Z. et al. Guidelines for dementia or Parkinson\u2019s disease with depression or anxiety: a systematic review. BMC Neurol. 16(1), 244. https:\/\/doi.org\/10.1186\/s12883-016-0754-5 (2016).","journal-title":"BMC Neurol."},{"issue":"5","key":"20385_CR18","doi-asserted-by":"publisher","first-page":"17r11772","DOI":"10.4088\/JCP.17r11772","volume":"79","author":"MS Asmer","year":"2018","unstructured":"Asmer, M. S. et al. Meta-analysis of the prevalence of major depressive disorder among older adults with dementia. J. Clin. Psychiatry 79(5), 17r11772. https:\/\/doi.org\/10.4088\/JCP.17r11772 (2018).","journal-title":"J. Clin. Psychiatry"},{"issue":"1","key":"20385_CR19","doi-asserted-by":"publisher","first-page":"63","DOI":"10.1007\/s10433-015-0359-7","volume":"13","author":"C Opdebeeck","year":"2016","unstructured":"Opdebeeck, C., Quinn, C., Nelis, S. M. &amp; Clare, L. Is cognitive lifestyle associated with depressive thoughts and self-reported depressive symptoms in later life?. Eur. J. Ageing 13(1), 63\u201373. https:\/\/doi.org\/10.1007\/s10433-015-0359-7 (2016).","journal-title":"Eur. J. Ageing"},{"issue":"6","key":"20385_CR20","doi-asserted-by":"publisher","first-page":"523","DOI":"10.1002\/gps.1316","volume":"20","author":"P Aalten","year":"2005","unstructured":"Aalten, P., de Vugt, M. E., Jaspers, N., Jolles, J. &amp; Verhey, F. R. The course of neuropsychiatric symptoms in dementia. Part I: findings from the two-year longitudinal Maasbed study. Int. J. Geriatr. Psychiatry. 20(6), 523\u2013530. https:\/\/doi.org\/10.1002\/gps.1316 (2005).","journal-title":"Int. J. Geriatr. Psychiatry."},{"issue":"5","key":"20385_CR21","doi-asserted-by":"publisher","first-page":"708","DOI":"10.1176\/appi.ajp.157.5.708","volume":"157","author":"CG Lyketsos","year":"2000","unstructured":"Lyketsos, C. G. et al. Mental and behavioral disturbances in dementia: findings from the Cache County Study on Memory in Aging. Am. J. Psychiatry. 157(5), 708\u2013714. https:\/\/doi.org\/10.1176\/appi.ajp.157.5.708 (2000).","journal-title":"Am. J. Psychiatry."},{"issue":"3","key":"20385_CR22","doi-asserted-by":"publisher","first-page":"195","DOI":"10.1192\/bjp.bp.112.112482","volume":"202","author":"D Rai","year":"2013","unstructured":"Rai, D., Zitko, P., Jones, K., Lynch, J. &amp; Araya, R. Country- and individual-level socioeconomic determinants of depression: multilevel cross-national comparison. Br. J. Psychiatry. 202(3), 195\u2013203. https:\/\/doi.org\/10.1192\/bjp.bp.112.112482 (2013).","journal-title":"Br. J. Psychiatry."},{"issue":"10","key":"20385_CR23","doi-asserted-by":"publisher","first-page":"e729","DOI":"10.1016\/S2468-2667(21)00047-5","volume":"6","author":"J Arias-de la Torre","year":"2021","unstructured":"Arias-de la Torre, J. et al. Prevalence and variability of current depressive disorder in 27 European countries: a population-based study. Lancet Public Health. 6(10), e729\u2013e738. https:\/\/doi.org\/10.1016\/S2468-2667(21)00047-5 (2021).","journal-title":"Lancet Public Health."},{"key":"20385_CR24","doi-asserted-by":"publisher","unstructured":"OECD\/European Observatory on Health Systems and Policies. Norway: Country Health Profile 2021, State of Health in the EU. (OECD Publishing, 2021). https:\/\/doi.org\/10.1787\/6871e6c4-en.","DOI":"10.1787\/6871e6c4-en"},{"key":"20385_CR25","doi-asserted-by":"publisher","first-page":"16","DOI":"10.4337\/9781849805940","volume-title":"Welfare State, Universalism and Diversity","author":"A Anttonen","year":"2012","unstructured":"Anttonen, A. &amp; Sipil\u00e4, J. Universalism in the British and Scandinavian social policy debates. In Welfare State, Universalism and Diversity (eds Anttonen, A. et al.) 16\u201341 (Edward Elgar Publishing, 2012)."},{"issue":"1","key":"20385_CR26","doi-asserted-by":"publisher","first-page":"424","DOI":"10.1186\/s13063-019-3534-x","volume":"20","author":"VA Tesky","year":"2019","unstructured":"Tesky, V. A. et al. Depression in the nursing home: a cluster-randomized stepped-wedge study to probe the effectiveness of a novel case management approach to improve treatment (the DAVOS project). Trials 20(1), 424. https:\/\/doi.org\/10.1186\/s13063-019-3534-x (2019).","journal-title":"Trials"},{"key":"20385_CR27","doi-asserted-by":"publisher","unstructured":"American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders: DSM-5, 5th ed. (American Psychiatric Publishing, 2013). https:\/\/doi.org\/10.1176\/appi.books.9780890425596","DOI":"10.1176\/appi.books.9780890425596"},{"issue":"2","key":"20385_CR28","doi-asserted-by":"publisher","first-page":"109","DOI":"10.1002\/gps.4298","volume":"31","author":"JL Conde-Sala","year":"2016","unstructured":"Conde-Sala, J. L. et al. Effects of anosognosia and neuropsychiatric symptoms on the quality of life of patients with Alzheimer\u2019s disease: a 24-month follow-up study. Int. J. Geriatr. Psychiatry. 31(2), 109\u2013119. https:\/\/doi.org\/10.1002\/gps.4298 (2016).","journal-title":"Int. J. Geriatr. Psychiatry."},{"issue":"3","key":"20385_CR29","doi-asserted-by":"publisher","first-page":"421","DOI":"10.1016\/j.cger.2014.04.001","volume":"30","author":"J Hugo","year":"2014","unstructured":"Hugo, J. &amp; Ganguli, M. Dementia and cognitive impairment: epidemiology, diagnosis, and treatment. Clin. Geriatr. Med. 30(3), 421\u2013442. https:\/\/doi.org\/10.1016\/j.cger.2014.04.001 (2014).","journal-title":"Clin. Geriatr. Med."},{"issue":"2","key":"20385_CR30","doi-asserted-by":"publisher","first-page":"250","DOI":"10.1037\/0882-7974.18.2.250","volume":"18","author":"M Pinquart","year":"2003","unstructured":"Pinquart, M. &amp; S\u00f6rensen, S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol. Aging. 18(2), 250\u2013267. https:\/\/doi.org\/10.1037\/0882-7974.18.2.250 (2003).","journal-title":"Psychol. Aging."},{"issue":"3","key":"20385_CR31","doi-asserted-by":"publisher","first-page":"240","DOI":"10.1097\/00019442-200405000-00002","volume":"12","author":"R Schulz","year":"2004","unstructured":"Schulz, R. &amp; Martire, L. M. Family caregiving of persons with dementia: prevalence, health effects, and support strategies. Am. J. Geriatr. Psychiatry. 12(3), 240\u2013249 (2004).","journal-title":"Am. J. Geriatr. Psychiatry."},{"issue":"4","key":"20385_CR32","doi-asserted-by":"publisher","first-page":"397","DOI":"10.1002\/gps.2539","volume":"26","author":"LC Watson","year":"2011","unstructured":"Watson, L. C., Lewis, C. L., Moore, C. G. &amp; Jeste, D. V. Perceptions of depression among dementia caregivers: findings from the CATIE-AD trial. Int. J. Geriatr. Psychiatry. 26(4), 397\u2013402. https:\/\/doi.org\/10.1002\/gps.2539 (2011).","journal-title":"Int. J. Geriatr. Psychiatry."},{"issue":"5","key":"20385_CR33","doi-asserted-by":"publisher","first-page":"490","DOI":"10.1097\/00005650-199705000-00006","volume":"35","author":"KC Sneeuw","year":"1997","unstructured":"Sneeuw, K. C. et al. The use of significant others as proxy raters of the quality of life of patients with brain cancer. Med. Care. 35(5), 490\u2013506. https:\/\/doi.org\/10.1097\/00005650-199705000-00006 (1997).","journal-title":"Med. Care."},{"issue":"3","key":"20385_CR34","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1159\/000280437","volume":"29","author":"RB Wetzels","year":"2010","unstructured":"Wetzels, R. B., Zuidema, S. U., de Jonghe, J. F., Verhey, F. R. &amp; Koopmans, R. T. Determinants of quality of life in nursing home residents with dementia. Dement. Geriatr. Cogn. Disord. 29(3), 189\u2013197. https:\/\/doi.org\/10.1159\/000280437 (2010).","journal-title":"Dement. Geriatr. Cogn. Disord."},{"issue":"1","key":"20385_CR35","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1097\/JGP.0b013e31818b4111","volume":"17","author":"R Leontjevas","year":"2009","unstructured":"Leontjevas, R., van Hooren, S. &amp; Mulders, A. The Montgomery-Asberg Depression Rating Scale and the Cornell Scale for Depression in Dementia: a validation study with patients exhibiting early-onset dementia. Am. J. Geriatr. Psychiatry. 17(1), 56\u201364. https:\/\/doi.org\/10.1097\/JGP.0b013e31818b4111 (2009).","journal-title":"Am. J. Geriatr. Psychiatry."},{"issue":"11","key":"20385_CR36","doi-asserted-by":"publisher","first-page":"1026","DOI":"10.1097\/JGP.0b013e3181d6b68d","volume":"18","author":"G Spalletta","year":"2010","unstructured":"Spalletta, G. et al. Neuropsychiatric symptoms and syndromes in a large cohort of newly diagnosed, untreated patients with Alzheimer disease. Am. J. Geriatr. Psychiatry. 18(11), 1026\u20131035. https:\/\/doi.org\/10.1097\/JGP.0b013e3181d6b68d (2010).","journal-title":"Am. J. Geriatr. Psychiatry."},{"issue":"1","key":"20385_CR37","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1159\/000111082","volume":"25","author":"P Aalten","year":"2008","unstructured":"Aalten, P. et al. Consistency of neuropsychiatric syndromes across dementias: results from the European Alzheimer Disease Consortium. Part II. Dement. Geriatr. Cogn. Disord. 25(1), 1\u20138. https:\/\/doi.org\/10.1159\/000111082 (2008).","journal-title":"Dement. Geriatr. Cogn. Disord."},{"key":"20385_CR38","doi-asserted-by":"publisher","first-page":"381","DOI":"10.2147\/CIA.S117637","volume":"12","author":"SK Kim","year":"2017","unstructured":"Kim, S. K. &amp; Park, M. Effectiveness of person-centered care on people with dementia: a systematic review and meta-analysis. Clin. Interv. Aging. 12, 381\u2013397. https:\/\/doi.org\/10.2147\/CIA.S117637 (2017).","journal-title":"Clin. Interv. Aging."}],"container-title":["Scientific Reports"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.nature.com\/articles\/s41598-025-20385-z.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.nature.com\/articles\/s41598-025-20385-z","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.nature.com\/articles\/s41598-025-20385-z.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T21:03:45Z","timestamp":1761080625000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.nature.com\/articles\/s41598-025-20385-z"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,10,21]]},"references-count":38,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["20385"],"URL":"https:\/\/doi.org\/10.1038\/s41598-025-20385-z","relation":{},"ISSN":["2045-2322"],"issn-type":[{"type":"electronic","value":"2045-2322"}],"subject":[],"published":{"date-parts":[[2025,10,21]]},"assertion":[{"value":"13 June 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"15 September 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"21 October 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The HOMESIDE study was conducted in accordance with the Declaration of Helsinki and received ethics approval from the Human Research Ethics Committee at The University of Melbourne (Ethics ID: 1852845) and corresponding ethics committees in all participating countries: Australia Human Ethics Sub-Committee approval no. 1852845, the United Kingdom approval no. 19\/EE\/0177, Poland approval no. 186\/KBL\/OIL\/2019, German approval no. DGP 19-013, Norwegian Centre for Research Data (Ref 502736), and Norwegian REK Medical and Research Ethics (Ref 2019\/941). All participants provided written informed consent prior to participation.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"The authors declare no competing interests.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"36643"}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by-nc-nd/4.0</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PersonAuthorFirstName_12,PersonAuthorLastName_12,PersonAuthorFirstName_13,PersonAuthorLastName_13,PublisherName,TitleMain_1,Language,TitleParent_1,ArticleNumber,Issue,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <author>Anna A. Bukowska</author>
    <author>Edyta Janus</author>
    <author>Vanessa Pac Soo</author>
    <author>Agnieszka Smrokowska-Reichmann</author>
    <author>Ming Hung Hsu</author>
    <author>Karette A. Stensæth</author>
    <author>Helen Odell-Miller</author>
    <author>Jeanette Tamplin</author>
    <author>Thomas Wosch</author>
    <author>Tanara Vieira Sousa</author>
    <author>Karen E. Lamb</author>
    <author>Sabine Braat</author>
    <author>Felicity A. Baker</author>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6253</id>
    <completedYear/>
    <publishedYear>2023</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue>4</issue>
    <volume>20</volume>
    <type>article</type>
    <publisherName>MDPI AG</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia - An Adapted Convergent Mixed Methods Study</title>
    <abstract language="eng">Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study’s aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.</abstract>
    <parentTitle language="eng">International Journal of Environmental Research and Public Health</parentTitle>
    <identifier type="issn">1660-4601</identifier>
    <identifier type="doi">https://doi.org/10.3390/ijerph20042863</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,2]],"date-time":"2025-08-02T04:24:39Z","timestamp":1754108679187,"version":"3.37.3"},"reference-count":43,"publisher":"MDPI AG","issue":"4","license":[{"start":{"date-parts":[[2023,2,6]],"date-time":"2023-02-06T00:00:00Z","timestamp":1675641600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Norwegian Research Counsil","award":["298995"]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"crossref","award":["APP1169867"],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100002347","name":"Federal Ministry of Education and Research","doi-asserted-by":"crossref","award":["01ED1901"],"id":[{"id":"10.13039\/501100002347","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100005632","name":"National Centre for Research and Development","doi-asserted-by":"crossref","award":["JPND\/04\/2019"],"id":[{"id":"10.13039\/501100005632","id-type":"DOI","asserted-by":"crossref"}]},{"name":"The National Centre for Research and Development and Alzheimer\u2019s Society, UK","award":["462"]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"&lt;jats:p&gt;Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study\u2019s aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.&lt;\/jats:p&gt;","DOI":"10.3390\/ijerph20042863","type":"journal-article","created":{"date-parts":[[2023,2,7]],"date-time":"2023-02-07T06:56:48Z","timestamp":1675753008000},"page":"2863","source":"Crossref","is-referenced-by-count":18,"title":["The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia\u2014An Adapted Convergent Mixed Methods Study"],"prefix":"10.3390","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9187-9705","authenticated-orcid":false,"given":"Kristi","family":"Stedje","sequence":"first","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Tone S\u00e6ther","family":"Kvamme","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Kjersti","family":"Johansson","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0553-5077","authenticated-orcid":false,"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4903-1417","authenticated-orcid":false,"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[{"name":"Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge CB1 1PT, UK"}]},{"given":"Karette Annie","family":"Stens\u00e6th","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[{"name":"Institute of Applied Sciences, University of Physical Education in Krakow, 31-571 Krakow, Poland"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3623-033X","authenticated-orcid":false,"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[{"name":"Music Therapy Lab, Institute for Applied Social Sciences, University of Applied Sciences W\u00fcrzburg-Schweinfurt, 97072 W\u00fcrzburg, Germany"}]},{"given":"Felicity Anne","family":"Baker","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"},{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]}],"member":"1968","published-online":{"date-parts":[[2023,2,6]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"413","DOI":"10.1016\/S0140-6736(20)30367-6","article-title":"Dementia prevention, intervention, and care: 2020 report of the Lancet Commission","volume":"396","author":"Livingston","year":"2020","journal-title":"Lancet"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"1411","DOI":"10.1080\/13607863.2019.1617238","article-title":"The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: Findings from the IDEAL study","volume":"24","author":"Rippon","year":"2020","journal-title":"Aging Ment. Health"},{"key":"ref_3","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1080\/13607863.2019.1695741","article-title":"Exploring the needs of people with dementia living at home reported by people with dementia and informal caregivers: A systematic review and Meta-analysis","volume":"25","author":"Curnow","year":"2021","journal-title":"Aging Ment. Health"},{"key":"ref_4","first-page":"14713012221137280","article-title":"Influential factors of spousal relationship quality in couples living with dementia-A narrative synthesis systematic review","volume":"22","author":"Stedje","year":"2022","journal-title":"Dementia"},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"429","DOI":"10.1192\/bjp.bp.114.153684","article-title":"Behavioural and psychological symptoms in dementia and the challenges for family carers: Systematic review","volume":"208","author":"Feast","year":"2016","journal-title":"Br. J. Psychiatry"},{"key":"ref_6","doi-asserted-by":"crossref","unstructured":"Bruinsma, J., Peetoom, K., Millenaar, J., K\u00f6hler, S., Bakker, C., Koopmans, R., Pijnenburg, Y., Verhey, F., and de Vugt, M. (2020). The quality of the relationship perceived by spouses of people with young-onset dementia. Int. Psychogeriatr., 1\u201310.","DOI":"10.1017\/S1041610220000332"},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"148","DOI":"10.1097\/WAD.0b013e318221ba23","article-title":"Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses","volume":"26","author":"Clare","year":"2012","journal-title":"Alzheimer Dis. Assoc. Disord."},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1002\/gps.807","article-title":"Behavioural disturbances in dementia patients and quality of the marital relationship","volume":"18","author":"Stevens","year":"2003","journal-title":"Int. J. Geriatr. Psychiatry"},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"2158","DOI":"10.1177\/1471301217744597","article-title":"Experiences of loss and relationship quality in couples living with dementia","volume":"18","author":"Colquhoun","year":"2019","journal-title":"Dementia"},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"976","DOI":"10.1177\/0193945907303086","article-title":"Marital Quality in the Context of Mild Cognitive Impairment","volume":"29","author":"Garand","year":"2007","journal-title":"West. J. Nurs. Res."},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1080\/13607860500114555","article-title":"Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples","volume":"9","author":"Robinson","year":"2005","journal-title":"Aging Ment. Health"},{"key":"ref_12","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1016\/j.jaging.2017.01.003","article-title":"\u2018In this together\u2019 or \u2018Going it alone\u2019: Spousal dyad approaches to Alzheimer\u2019s","volume":"40","author":"Daley","year":"2017","journal-title":"J. Aging Stud."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1177\/1471301205049188","article-title":"\u2018We do things together\u2019: A case study of \u2018couplehood\u2019 in dementia","volume":"4","author":"Nolan","year":"2005","journal-title":"Dementia"},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1177\/1471301207081571","article-title":"Sustaining \u2018couplehood\u2019: Spouses\u2019 strategies for living positively with dementia","volume":"6","author":"Nolan","year":"2007","journal-title":"Dementia"},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"483","DOI":"10.1177\/1471301211421070","article-title":"The co-construction of couplehood in dementia","volume":"11","author":"Molyneaux","year":"2012","journal-title":"Dementia"},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"488","DOI":"10.1017\/S0144686X1700109X","article-title":"Love between couples living with Alzheimer\u2019s disease: Narratives of spouse care-givers","volume":"39","author":"Shavit","year":"2019","journal-title":"Ageing Soc."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"e12299","DOI":"10.1111\/opn.12299","article-title":"The value of \u201cus\u201d-Expressions of togetherness in couples where one spouse has dementia","volume":"15","author":"Swall","year":"2020","journal-title":"Int. J. Older People Nurs."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"100832","DOI":"10.1016\/j.jaging.2020.100832","article-title":"Buffer or Blade: Perceived relationship closeness in couples navigating Alzheimer\u2019s","volume":"52","author":"Gallagher","year":"2020","journal-title":"J. Aging Stud."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"1794","DOI":"10.1177\/1471301218805895","article-title":"A qualitative study of the shared experience of humour between people living with dementia and their partners","volume":"19","author":"Hickman","year":"2018","journal-title":"Dementia"},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1177\/1471301208091164","article-title":"Engagement in activities: Experiences of persons with dementia and their caregiving spouses","volume":"7","author":"Josephsson","year":"2008","journal-title":"Dementia"},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"199","DOI":"10.1177\/1471301216639424","article-title":"The role of music in the lives of older adults with dementia ageing in place: A scoping review","volume":"17","author":"Elliott","year":"2018","journal-title":"Dementia"},{"key":"ref_22","doi-asserted-by":"crossref","unstructured":"McMahon, K., Clark, I.N., Stens\u00e6th, K., Wosch, T., Odell Miller, H., Bukowska, A., and Baker, F.A. (2022). A qualitative systematic review of the experiences of sharing music for people living with dementia and their family care partners: The thread of connection. Arts Health, 1\u201328.","DOI":"10.1080\/17533015.2022.2128381"},{"key":"ref_23","doi-asserted-by":"crossref","unstructured":"Baird, A., Garrido, S., and Tamplin, J. (2020). Music and Dementia. From Cognition to Therapy, Oxford University Press.","DOI":"10.1093\/oso\/9780190075934.001.0001"},{"key":"ref_24","first-page":"4","article-title":"Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia","volume":"23","author":"Baker","year":"2012","journal-title":"Aust. J. Music. Ther."},{"key":"ref_25","first-page":"1","article-title":"Pilot study of a modular music intervention: A first evaluation of the use of basic elements of music to support interaction between family caregivers and their relatives with dementia","volume":"32","author":"Thurn","year":"2021","journal-title":"Aust. J. Music. Ther."},{"key":"ref_26","doi-asserted-by":"crossref","first-page":"1812","DOI":"10.3390\/ejihpe12120127","article-title":"The HOMESIDE music Intervention: A training protocol for family carers of people living with dementia","volume":"12","author":"Blauth","year":"2022","journal-title":"Eur. J. Investig. Health Psychol. Educ."},{"key":"ref_27","doi-asserted-by":"crossref","first-page":"215","DOI":"10.3389\/fmed.2018.00215","article-title":"\u201cOpening Our Time Capsule\u201d\u2014Creating an individualized music and other memory cues database to promote communication between spouses and people with dementia during visits to a nursing home","volume":"5","author":"Dassa","year":"2018","journal-title":"Front. Med."},{"key":"ref_28","first-page":"31","article-title":"Community music therapy to support the relationship between family carers and people living with dementia: A pilot project","volume":"16","author":"Allan","year":"2018","journal-title":"N. Z. J. Music Ther."},{"key":"ref_29","doi-asserted-by":"crossref","unstructured":"Clark, I.N., Stretton-Smith, P.A., Baker, F.A., Lee, Y.-E.C., and Tamplin, J. (2020). \u201cIt\u2019s feasible to write a song\u201d: A feasibility study examining group therapeutic songwriting for people living with dementia and their family caregivers. Front. Psychol., 11.","DOI":"10.3389\/fpsyg.2020.01951"},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"598979","DOI":"10.3389\/fpsyg.2021.598979","article-title":"\u201cDoing things together is what it\u2019s about\u201d: An interpretative phenomenological analysis of the experience of group therapeutic songwriting from the perspectives of people with dementia and their family caregivers","volume":"12","author":"Clark","year":"2021","journal-title":"Front. Psychol."},{"key":"ref_31","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1348\/147608302320365208","article-title":"The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients","volume":"75","author":"Spruytte","year":"2002","journal-title":"Psychol. Psychother. Theory Res. Pract."},{"key":"ref_32","doi-asserted-by":"crossref","first-page":"e031332","DOI":"10.1136\/bmjopen-2019-031332","article-title":"HOMESIDE: Home-based family caregiver-delivered music and reading interventions for people living with dementia: Protocol of a randomised controlled trial","volume":"9","author":"Baker","year":"2019","journal-title":"BMJ Open"},{"key":"ref_33","unstructured":"Creswell, J.W., and Plano Clark, V.L. (2018). Designing and Conducting Mixed Methods Research, Sage. [3rd ed.]."},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"210","DOI":"10.1111\/j.1532-5415.1998.tb02542.x","article-title":"Assessing the impact of neuropsychiatric symptoms in Alzheimer\u2019s disease: The Neuropsychiatric Inventory Caregiver Distress Scale","volume":"46","author":"Kaufer","year":"1998","journal-title":"J. Am. Geriatr. Soc."},{"key":"ref_35","unstructured":"Kitwood, T. (1997). Dementia Reconsidered: The Person Comes First, Open University Press."},{"key":"ref_36","unstructured":"Ridder, H.M. (2003). Singing Dialogue: Music Therapy with Persons in Advanced Stages of Dementia. A Case Study Design. [Ph.D. Thesis, Aalborg University]."},{"key":"ref_37","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1053\/apnr.2000.9231","article-title":"An examination of psychometric properties of the Mini-Mental State Examination and the Standardized Mini-Mental State Examination: Implications for clinical practice","volume":"13","author":"Pangman","year":"2000","journal-title":"Appl. Nurs. Res."},{"key":"ref_38","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","article-title":"Research electronic data capture (REDCap)\u2013A metadata-driven methodology and workflow process for providing translational research informatics support","volume":"42","author":"Harris","year":"2009","journal-title":"J. Biomed. Inform."},{"key":"ref_39","doi-asserted-by":"crossref","first-page":"103208","DOI":"10.1016\/j.jbi.2019.103208","article-title":"The REDCap consortium: Building an international community of software partners","volume":"95","author":"Harris","year":"2019","journal-title":"J. Biomed. Inform."},{"key":"ref_40","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1177\/16094069211047066","article-title":"Making qualitative interviews in music therapy research more accessible for participants living with dementia\u2013Reflections on development and implementation of interview guidelines","volume":"20","author":"Thompson","year":"2021","journal-title":"Int. J. Qual. Methods"},{"key":"ref_41","doi-asserted-by":"crossref","unstructured":"Braun, V., and Clarke, V. (2022). Thematic Analysis. A Practical Guide, Sage.","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"ref_42","doi-asserted-by":"crossref","first-page":"329","DOI":"10.1177\/153331750101600601","article-title":"Progressive dementia: Personal and relational impact on caregiving wives","volume":"16","author":"Bauer","year":"2001","journal-title":"Am. J. Alzheimer\u2019s Dis. Other Dement."},{"key":"ref_43","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1111\/j.1741-3729.2001.00087.x","article-title":"A Couplehood Typology for spouses of institutionalized persons with Alzheimer\u2019s disease: Perceptions of \u201cwe\u201d\u2013\u201cI\u201d","volume":"50","author":"Kaplan","year":"2001","journal-title":"Fam. Relat."}],"container-title":["International Journal of Environmental Research and Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/1660-4601\/20\/4\/2863\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,6]],"date-time":"2025-01-06T07:15:37Z","timestamp":1736147737000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/1660-4601\/20\/4\/2863"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2,6]]},"references-count":43,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2023,2]]}},"alternative-id":["ijerph20042863"],"URL":"https:\/\/doi.org\/10.3390\/ijerph20042863","relation":{},"ISSN":["1660-4601"],"issn-type":[{"type":"electronic","value":"1660-4601"}],"subject":[],"published":{"date-parts":[[2023,2,6]]}}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by/4.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorIdentifierOrcid_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorIdentifierOrcid_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorIdentifierOrcid_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PublisherName,TitleMain_1,Language,TitleAbstract_1,TitleParent_1,ArticleNumber,Issue,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Kristi Stedje</author>
    <author>Tone Sæther Kvamme</author>
    <author>Kjersti Johansson</author>
    <author>Tanara Vieira Sousa</author>
    <author>Helen Odell-Miller</author>
    <author>Karette Annie Stensæth</author>
    <author>Anna A. Bukowska</author>
    <author>Jeanette Tamplin</author>
    <author>Thomas Wosch</author>
    <author>Felicity Anne Baker</author>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6254</id>
    <completedYear/>
    <publishedYear>2023</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue/>
    <volume>32</volume>
    <type>article</type>
    <publisherName>Elsevier BV</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial</title>
    <parentTitle language="eng">Contemporary Clinical Trials Communications</parentTitle>
    <identifier type="issn">2451-8654</identifier>
    <identifier type="doi">10.1016/j.conctc.2023.101079</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,26]],"date-time":"2025-05-26T12:45:09Z","timestamp":1748263509293,"version":"3.40.5"},"reference-count":22,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,4,1]],"date-time":"2023-04-01T00:00:00Z","timestamp":1680307200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,1,29]],"date-time":"2023-01-29T00:00:00Z","timestamp":1674950400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.com.au","clinicalkey.es","clinicalkey.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Contemporary Clinical Trials Communications"],"published-print":{"date-parts":[[2023,4]]},"DOI":"10.1016\/j.conctc.2023.101079","type":"journal-article","created":{"date-parts":[[2023,1,31]],"date-time":"2023-01-31T03:57:04Z","timestamp":1675137424000},"page":"101079","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":11,"special_numbering":"C","title":["Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial"],"prefix":"10.1016","volume":"32","author":[{"given":"Felicity A.","family":"Baker","sequence":"first","affiliation":[]},{"given":"Laura","family":"Blauth","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9647-1437","authenticated-orcid":false,"given":"Jodie","family":"Bloska","sequence":"additional","affiliation":[]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4682-5468","authenticated-orcid":false,"given":"Libby","family":"Flynn","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2406-5389","authenticated-orcid":false,"given":"Ming-Hung","family":"Hsu","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2627-1103","authenticated-orcid":false,"given":"Edyta","family":"Janus","sequence":"additional","affiliation":[]},{"given":"Kjersti","family":"Johansson","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4903-1417","authenticated-orcid":false,"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7986-763X","authenticated-orcid":false,"given":"Hayley","family":"Miller","sequence":"additional","affiliation":[]},{"given":"Carina","family":"Petrowitz","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4134-8030","authenticated-orcid":false,"given":"Jonathan","family":"Pool","sequence":"additional","affiliation":[]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3623-033X","authenticated-orcid":false,"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1002-612X","authenticated-orcid":false,"given":"Kate","family":"Teggelove","sequence":"additional","affiliation":[]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[]},{"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[]}],"member":"78","reference":[{"issue":"2","key":"10.1016\/j.conctc.2023.101079_bib1","article-title":"Strategies to improve recruitment to randomised trials","author":"Treweek","year":"2018","journal-title":"Cochrane Database Syst. Rev."},{"year":"2022","series-title":"Leadership and Management of Clinical Trials in Creative Arts Therapy","author":"Baker","key":"10.1016\/j.conctc.2023.101079_bib2"},{"key":"10.1016\/j.conctc.2023.101079_bib3","article-title":"HOMESIDE: a home-based family caregiver-delivered music intervention for people living with dementia: protocol of a randomised controlled trial","volume":"9","author":"Baker","year":"2019","journal-title":"British Med. J. Open"},{"issue":"1","key":"10.1016\/j.conctc.2023.101079_bib4","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s12916-019-1476-5","article-title":"The research burden of randomized controlled trial participation: a systematic thematic synthesis of qualitative evidence","volume":"18","author":"Naidoo","year":"2020","journal-title":"BMC Med."},{"key":"10.1016\/j.conctc.2023.101079_bib5","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1016\/j.jclinepi.2021.01.014","article-title":"Transparency, trust and minimizing burden to increase recruitment and retention in trials: a systematic review","volume":"134","author":"Natale","year":"2021","journal-title":"J. Clin. Epidemiol."},{"issue":"12","key":"10.1016\/j.conctc.2023.101079_bib6","doi-asserted-by":"crossref","first-page":"2955","DOI":"10.1111\/jgs.16875","article-title":"Recruitment and retention of older people in clinical research: a systematic literature review","volume":"68","author":"Forsat","year":"2020","journal-title":"J. Am. Geriatr. Soc."},{"issue":"1","key":"10.1016\/j.conctc.2023.101079_bib7","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/1471-2288-14-42","article-title":"Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups","volume":"14","author":"Bonevski","year":"2014","journal-title":"BMC Med. Res. Methodol."},{"issue":"1","key":"10.1016\/j.conctc.2023.101079_bib8","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1002\/mpr.1434","article-title":"Barriers to recruiting ethnic minorities to mental health research: a systematic review","volume":"23","author":"Brown","year":"2014","journal-title":"Int. J. Methods Psychiatr. Res."},{"key":"10.1016\/j.conctc.2023.101079_bib9","article-title":"Resource assessment in trials undertaken in residential care homes: experiences from the Australian MIDDEL cluster randomised controlled trial research team","volume":"20","author":"Baker","year":"2020","journal-title":"Contemporary Clinic. Trials Commun."},{"key":"10.1016\/j.conctc.2023.101079_bib10","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.cct.2019.01.004","article-title":"Synthesis of researcher reported strategies to recruit adults of ethnic minorities to clinical trials in the United Kingdom: a systematic review","volume":"78","author":"Masood","year":"2019","journal-title":"Contemp. Clin. Trials"},{"issue":"4","key":"10.1016\/j.conctc.2023.101079_bib11","doi-asserted-by":"crossref","first-page":"436","DOI":"10.1177\/1740774520988678","article-title":"Effectiveness of participant recruitment strategies for critical care trials: a systematic review and narrative synthesis","volume":"18","author":"Raven-Gregg","year":"2021","journal-title":"Clin. Trials"},{"key":"10.1016\/j.conctc.2023.101079_bib12","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1016\/j.socscimed.2018.01.032","article-title":"A systematic review of the methodological and practical challenges of undertaking randomised-controlled trials with cognitive disability populations","volume":"200","author":"Mulhall","year":"2018","journal-title":"Soc. Sci. Med."},{"issue":"5","key":"10.1016\/j.conctc.2023.101079_bib13","doi-asserted-by":"crossref","first-page":"990","DOI":"10.1177\/0269216318757623","article-title":"Using the \u2018Social Marketing Mix Framework\u2019to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review","volume":"32","author":"Dunleavy","year":"2018","journal-title":"Palliat. Med."},{"issue":"5","key":"10.1016\/j.conctc.2023.101079_bib14","doi-asserted-by":"crossref","first-page":"1306","DOI":"10.1111\/jgs.17750","article-title":"Challenges and opportunities in conducting research with older adults with dementia during COVID\u201019 and beyond","volume":"70","author":"Sharma","year":"2022","journal-title":"J. Am. Geriatr. Soc."},{"issue":"6","key":"10.1016\/j.conctc.2023.101079_bib15","doi-asserted-by":"crossref","first-page":"852","DOI":"10.1007\/s11606-007-0126-3","article-title":"Recruiting vulnerable populations into research: a systematic review of recruitment interventions","volume":"22","author":"UyBico","year":"2007","journal-title":"J. Gen. Intern. Med."},{"year":"2019","series-title":"An Investigation of How Healthcare Organisations Use Social Media as Marketing Tools in the UK: the Case of Private and Social Care Organisations","author":"Teemil","key":"10.1016\/j.conctc.2023.101079_bib16"},{"issue":"5_suppl","key":"10.1016\/j.conctc.2023.101079_bib17","doi-asserted-by":"crossref","first-page":"157S","DOI":"10.1177\/0898264304269727","article-title":"Social marketing as a framework for recruitment","volume":"16","author":"Nichols","year":"2004","journal-title":"J. Aging Health"},{"issue":"21","key":"10.1016\/j.conctc.2023.101079_bib18","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph182111353","article-title":"Early implementation and evaluation of StepUp for dementia research: an Australia-wide dementia research participation and public engagement platform","volume":"18","author":"Jeon","year":"2021","journal-title":"Int. J. Environ. Res. Publ. Health"},{"issue":"2","key":"10.1016\/j.conctc.2023.101079_bib19","article-title":"Assessing the impact of patient and public involvement on recruitment and retention in clinical trials: a systematic review","volume":"16","author":"Crocker","year":"2015","journal-title":"Trials"},{"issue":"1","key":"10.1016\/j.conctc.2023.101079_bib20","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s13063-020-04234-0","article-title":"Using digital tools in the recruitment and retention in randomised controlled trials: survey of UK Clinical Trial Units and a qualitative study","volume":"21","author":"Blatch-Jones","year":"2020","journal-title":"Trials"},{"issue":"5","key":"10.1016\/j.conctc.2023.101079_bib21","doi-asserted-by":"crossref","first-page":"576","DOI":"10.1177\/1740774514540371","article-title":"Cost-effectiveness of health research study participant recruitment strategies: a systematic review","volume":"11","author":"Huynh","year":"2014","journal-title":"Clin. Trials"},{"issue":"1","key":"10.1016\/j.conctc.2023.101079_bib22","article-title":"A national open\u2010access research registry to improve recruitment to clinical studies, Alzheimer's &amp; Dementia","volume":"7","author":"Kotting","year":"2021","journal-title":"Translational Res. Clinic. Interven."}],"container-title":["Contemporary Clinical Trials Communications"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S245186542300025X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S245186542300025X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,2,4]],"date-time":"2024-02-04T14:05:58Z","timestamp":1707055558000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S245186542300025X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,4]]},"references-count":22,"alternative-id":["S245186542300025X"],"URL":"https:\/\/doi.org\/10.1016\/j.conctc.2023.101079","relation":{},"ISSN":["2451-8654"],"issn-type":[{"type":"print","value":"2451-8654"}],"subject":[],"published":{"date-parts":[[2023,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial","name":"articletitle","label":"Article Title"},{"value":"Contemporary Clinical Trials Communications","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.conctc.2023.101079","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 The Authors. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}],"article-number":"101079"}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://www.elsevier.com/tdm/userlicense/1.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorIdentifierOrcid_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorIdentifierOrcid_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorIdentifierOrcid_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorIdentifierOrcid_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorIdentifierOrcid_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorIdentifierOrcid_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PersonAuthorFirstName_12,PersonAuthorLastName_12,PersonAuthorIdentifierOrcid_12,PersonAuthorFirstName_13,PersonAuthorLastName_13,PersonAuthorFirstName_14,PersonAuthorLastName_14,PersonAuthorIdentifierOrcid_14,PersonAuthorFirstName_15,PersonAuthorLastName_15,PersonAuthorIdentifierOrcid_15,PersonAuthorFirstName_16,PersonAuthorLastName_16,PersonAuthorFirstName_17,PersonAuthorLastName_17,PublisherName,TitleMain_1,Language,TitleParent_1,ArticleNumber,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Felicity A. Baker</author>
    <author>Laura Blauth</author>
    <author>Jodie Bloska</author>
    <author>Anna A. Bukowska</author>
    <author>Libby Flynn</author>
    <author>Ming-Hung Hsu</author>
    <author>Edyta Janus</author>
    <author>Kjersti Johansson</author>
    <author>Helen Odell-Miller</author>
    <author>Hayley Miller</author>
    <author>Carina Petrowitz</author>
    <author>Jonathan Pool</author>
    <author>Karette Stensæth</author>
    <author>Jeanette Tamplin</author>
    <author>Kate Teggelove</author>
    <author>Thomas Wosch</author>
    <author>Tanara Vieira Sousa</author>
    <collection role="institutes" number="">Institute und Zentren</collection>
  </doc>
  <doc>
    <id>6216</id>
    <completedYear/>
    <publishedYear>2024</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue/>
    <volume>10</volume>
    <type>article</type>
    <publisherName>SAGE Publications</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">The HOMESIDE Study - A Research Project to Support People Living With Dementia and Their Family Caregivers: Preliminary Report on Reading Intervention</title>
    <abstract language="eng">The behavioral and psychological symptoms of dementia (BPSD) can be challenging for family caregivers to cope with, leading to distress and fatigue. It is therefore important to offer effective strategies to reduce the impact of BPSD. The HOMESIDE randomized controlled trial (RCT) was testing purposefully developed interventions to improve the quality of life and wellbeing of dyads of people with dementia and family caregivers as a result of reduction of BPSD. HOMESIDE RCT was conducted in Australia, Germany, Norway, Poland and the United Kingdom between 2019 and 2022. The study design was a three-arm parallel-group single-blinded, pragmatic RCT with a sample size of 432 dyads. Dyads were randomly allocated to one of three treatment conditions: Music Intervention plus Standard Care; or Reading Intervention plus Standard Care; or Standard Care only. The Reading Intervention (RI) within the HOMESIDE RCT aimed to evoke shared discussion, reminiscence, meaningful shared experiences and consequently enrich everyday life, interaction and the emotional connection between the caregiver (CG) and carereceiver (CR); as well as to enhance activities of daily living and to promote relaxation or stimulation as appropriate. This paper describes the underlying conceptual framework, the content, and delivery of the Reading Intervention within the HOMESIDE RCT.</abstract>
    <parentTitle language="eng">Gerontology and Geriatric Medicine</parentTitle>
    <identifier type="issn">2333-7214</identifier>
    <identifier type="doi">10.1177/23337214241239174</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,7,30]],"date-time":"2025-07-30T13:47:49Z","timestamp":1753883269973,"version":"3.41.2"},"reference-count":30,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"name":"Federal Ministry of Education and Research, Germany","award":["01ED1901"]},{"name":"The National Centre for Research and Development and Alzheimer\u2019s Society, UK","award":["grant no. 462"]},{"DOI":"10.13039\/501100005416","name":"Norwegian Research Council","doi-asserted-by":"crossref","award":["project number 298995"],"id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"crossref"}]},{"name":"The National Centre for Research and Development, Poland","award":["grant no. JPND\/04\/2019"]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["grant no. APP1169867"],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Gerontology and Geriatric Medicine"],"published-print":{"date-parts":[[2024,1]]},"abstract":"&lt;jats:p&gt; The behavioral and psychological symptoms of dementia (BPSD) can be challenging for family caregivers to cope with, leading to distress and fatigue. It is therefore important to offer effective strategies to reduce the impact of BPSD. The HOMESIDE randomized controlled trial (RCT) was testing purposefully developed interventions to improve the quality of life and wellbeing of dyads of people with dementia and family caregivers as a result of reduction of BPSD. HOMESIDE RCT was conducted in Australia, Germany, Norway, Poland and the United Kingdom between 2019 and 2022. The study design was a three-arm parallel-group single-blinded, pragmatic RCT with a sample size of 432 dyads. Dyads were randomly allocated to one of three treatment conditions: Music Intervention plus Standard Care; or Reading Intervention plus Standard Care; or Standard Care only. The Reading Intervention (RI) within the HOMESIDE RCT aimed to evoke shared discussion, reminiscence, meaningful shared experiences and consequently enrich everyday life, interaction and the emotional connection between the caregiver (CG) and carereceiver (CR); as well as to enhance activities of daily living and to promote relaxation or stimulation as appropriate. This paper describes the underlying conceptual framework, the content, and delivery of the Reading Intervention within the HOMESIDE RCT. &lt;\/jats:p&gt;","DOI":"10.1177\/23337214241239174","type":"journal-article","created":{"date-parts":[[2024,3,20]],"date-time":"2024-03-20T09:26:13Z","timestamp":1710926773000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["The HOMESIDE Study\u2014A Research Project to Support People Living With Dementia and Their Family Caregivers: Preliminary Report on Reading Intervention"],"prefix":"10.1177","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2531-8130","authenticated-orcid":false,"given":"Agnieszka","family":"Smrokowska-Reichmann","sequence":"first","affiliation":[{"name":"University of Physical Education in Krak\u00f3w, Poland"}]},{"given":"Edyta","family":"Janus","sequence":"additional","affiliation":[{"name":"University of Physical Education in Krak\u00f3w, Poland"}]},{"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[{"name":"The University of Melbourne, VIC, Australia"}]},{"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[{"name":"Anglia Ruskin University, Cambridge, UK"}]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music, Oslo, Norway"}]},{"given":"Jennifer","family":"Wenborn","sequence":"additional","affiliation":[{"name":"Anglia Ruskin University, Cambridge, UK"}]},{"given":"R\u00f8nnaug Modell","family":"Viken","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music, Oslo, Norway"}]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[{"name":"Hochschule f\u00fcr angewandte Wissenschaften W\u00fcrzburg-Schweinfurt, Germany"}]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[{"name":"University of Physical Education in Krak\u00f3w, Poland"}]},{"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[{"name":"The University of Melbourne, VIC, Australia"}]},{"given":"Felicity Anne","family":"Baker","sequence":"additional","affiliation":[{"name":"The University of Melbourne, VIC, Australia"}]}],"member":"179","published-online":{"date-parts":[[2024,3,20]]},"reference":[{"key":"bibr1-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2019.11653"},{"key":"bibr2-23337214241239174","doi-asserted-by":"publisher","DOI":"10.4276\/030802210X12918167234325"},{"key":"bibr3-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-031332"},{"key":"bibr4-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2023.102224"},{"key":"bibr5-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2018-026308"},{"key":"bibr6-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1136\/medhum-2020-011898"},{"key":"bibr7-23337214241239174","first-page":"295","volume-title":"Geropsychological interventions in long-term care","author":"Camp C. J.","year":"2006"},{"key":"bibr8-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1080\/14427591.2012.727356"},{"key":"bibr9-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-21762-4_6"},{"key":"bibr10-23337214241239174","doi-asserted-by":"publisher","DOI":"10.18666\/TRJ-2019-V53-I1-8866"},{"key":"bibr11-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjmed.2018.01.022"},{"key":"bibr12-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1080\/11038128.2021.1882562"},{"key":"bibr13-23337214241239174","doi-asserted-by":"publisher","DOI":"10.16981\/kliss.41.4.201012.383"},{"key":"bibr14-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1177\/153331750001500105"},{"key":"bibr15-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(20)30367-6"},{"issue":"1","key":"bibr16-23337214241239174","first-page":"21","volume":"5","author":"Logsdon R. G.","year":"1999","journal-title":"Journal of Mental Health &amp; Aging"},{"key":"bibr17-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1111\/ggi.13517"},{"key":"bibr18-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1016\/j.hkjot.2014.01.003"},{"key":"bibr19-23337214241239174","doi-asserted-by":"publisher","DOI":"10.3390\/ejihpe12120127"},{"key":"bibr20-23337214241239174","first-page":"22","volume-title":"Enabling Occupation II: Advancing an occupational therapy vision for health, well-being, and justice through occupation","author":"Polatajko H. J.","year":"2013"},{"key":"bibr21-23337214241239174","doi-asserted-by":"publisher","DOI":"10.3389\/fnagi.2021.696174"},{"key":"bibr22-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1097\/00019442-200405000-00002"},{"key":"bibr23-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afh174"},{"key":"bibr24-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1177\/030802260006300702"},{"key":"bibr25-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-015-0142-9"},{"key":"bibr26-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1002\/nur.22143"},{"key":"bibr27-23337214241239174","doi-asserted-by":"publisher","DOI":"10.1177\/1471301217703242"},{"key":"bibr28-23337214241239174","doi-asserted-by":"publisher","DOI":"10.3109\/07380577.2015.1010130"},{"key":"bibr29-23337214241239174","unstructured":"World Federation of Occupational Therapists [WFOT]. (2021). Occupational therapy and ageing across the life course. Retrieved July 23, 2021, from\u2009https:\/\/www.wfot.org\/resources\/occupational-therapy-and-ageing-across-the-life-course"},{"key":"bibr30-23337214241239174","unstructured":"World Health Organization. (2015). Dementia. Retrieved July 28, 2021, from https:\/\/www.who.int\/health-topics\/dementia#tab=tab_1"}],"container-title":["Gerontology and Geriatric Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/23337214241239174","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/23337214241239174","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/23337214241239174","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,4]],"date-time":"2025-03-04T09:02:34Z","timestamp":1741078954000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/23337214241239174"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1]]},"references-count":30,"alternative-id":["10.1177\/23337214241239174"],"URL":"https:\/\/doi.org\/10.1177\/23337214241239174","relation":{},"ISSN":["2333-7214","2333-7214"],"issn-type":[{"type":"print","value":"2333-7214"},{"type":"electronic","value":"2333-7214"}],"subject":[],"published":{"date-parts":[[2024,1]]},"article-number":"23337214241239174"}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by-nc/4.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PublisherName,TitleMain_1,Language,TitleAbstract_1,TitleParent_1,ArticleNumber,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <author>Agnieszka Smrokowska-Reichmann</author>
    <author>Edyta Janus</author>
    <author>Jeanette Tamplin</author>
    <author>Helen Odell-Miller</author>
    <author>Karette Stensæth</author>
    <author>Jennifer Wenborn</author>
    <author>Rønnaug Modell Viken</author>
    <author>Thomas Wosch</author>
    <author>Anna A. Bukowska</author>
    <author>Tanara Vieira Sousa</author>
    <author>Felicity Anne Baker</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6219</id>
    <completedYear/>
    <publishedYear>2023</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue/>
    <volume>65</volume>
    <type>article</type>
    <publisherName>Elsevier BV</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial</title>
    <parentTitle language="eng">eClinicalMedicine</parentTitle>
    <identifier type="issn">2589-5370</identifier>
    <identifier type="doi">10.1016/j.eclinm.2023.102224</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,2]],"date-time":"2025-08-02T04:11:21Z","timestamp":1754107881064,"version":"3.40.5"},"reference-count":38,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,9,5]],"date-time":"2023-09-05T00:00:00Z","timestamp":1693872000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["thelancet.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["eClinicalMedicine"],"published-print":{"date-parts":[[2023,11]]},"DOI":"10.1016\/j.eclinm.2023.102224","type":"journal-article","created":{"date-parts":[[2023,10,2]],"date-time":"2023-10-02T07:57:56Z","timestamp":1696233476000},"page":"102224","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":18,"special_numbering":"C","title":["Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial"],"prefix":"10.1016","volume":"65","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2213-4467","authenticated-orcid":false,"given":"Felicity Anne","family":"Baker","sequence":"first","affiliation":[]},{"given":"Vanessa","family":"Pac Soo","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9647-1437","authenticated-orcid":false,"given":"Jodie","family":"Bloska","sequence":"additional","affiliation":[]},{"given":"Laura","family":"Blauth","sequence":"additional","affiliation":[]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[]},{"given":"Libby","family":"Flynn","sequence":"additional","affiliation":[]},{"given":"Ming Hung","family":"Hsu","sequence":"additional","affiliation":[]},{"given":"Edyta","family":"Janus","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0009-0007-7600-6678","authenticated-orcid":false,"given":"Kjersti","family":"Johansson","sequence":"additional","affiliation":[]},{"given":"Tone","family":"Kvamme","sequence":"additional","affiliation":[]},{"given":"Nicola","family":"Lautenschlager","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7986-763X","authenticated-orcid":false,"given":"Hayley","family":"Miller","sequence":"additional","affiliation":[]},{"given":"Jonathan","family":"Pool","sequence":"additional","affiliation":[]},{"given":"Agnieszka","family":"Smrokowska-Reichmann","sequence":"additional","affiliation":[]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[]},{"given":"Kate","family":"Teggelove","sequence":"additional","affiliation":[]},{"given":"Sven","family":"Warnke","sequence":"additional","affiliation":[]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[]},{"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[]},{"given":"Karen","family":"Lamb","sequence":"additional","affiliation":[]},{"given":"Sabine","family":"Braat","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0553-5077","authenticated-orcid":false,"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[]},{"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[]}],"member":"78","reference":[{"issue":"10113","key":"10.1016\/j.eclinm.2023.102224_bib1","doi-asserted-by":"crossref","first-page":"2673","DOI":"10.1016\/S0140-6736(17)31363-6","article-title":"Dementia prevention, intervention, and care","volume":"390","author":"Livingston","year":"2017","journal-title":"Lancet"},{"key":"10.1016\/j.eclinm.2023.102224_bib2","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1016\/0895-4356(92)90189-T","article-title":"The psychological and physical health of family members caring for an elderly person with dementia","volume":"45","author":"Baumgarten","year":"1992","journal-title":"J\u00a0Clin Epidemiol"},{"key":"10.1016\/j.eclinm.2023.102224_bib3","doi-asserted-by":"crossref","DOI":"10.5014\/ajot.2017.027581","article-title":"Effectiveness of interventions for caregivers of people with Alzheimer's disease and related major neurocognitive disorders: a systematic review","volume":"71","author":"Piersol","year":"2017","journal-title":"Am J Occup Ther"},{"issue":"7","key":"10.1016\/j.eclinm.2023.102224_bib4","article-title":"Music-based therapeutic interventions for people with dementia","volume":"7","author":"van der Steen","year":"2018","journal-title":"Cochrane Database Syst Rev"},{"key":"10.1016\/j.eclinm.2023.102224_bib5","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1186\/s12877-015-0082-4","article-title":"Individual music therapy for managing neuropsychiatric symptoms for people with dementia and their carers: a cluster randomized controlled feasibility study","volume":"15","author":"Hsu","year":"2015","journal-title":"BMC Geriatr"},{"key":"10.1016\/j.eclinm.2023.102224_bib6","doi-asserted-by":"crossref","first-page":"170","DOI":"10.1038\/nrn3666","article-title":"Brain correlates of music-evoked emotions","volume":"15","author":"Koelsch","year":"2014","journal-title":"Nat Rev Neurosci"},{"key":"10.1016\/j.eclinm.2023.102224_bib7","first-page":"4","article-title":"Connecting through music: a study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia","volume":"23","author":"Baker","year":"2012","journal-title":"Aust J Music Ther"},{"issue":"11","key":"10.1016\/j.eclinm.2023.102224_bib8","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2019-031332","article-title":"HOMESIDE: a home-based family caregiver-delivered music intervention for people living with dementia: protocol of a randomised controlled trial","volume":"9","author":"Baker","year":"2019","journal-title":"BMJ Open"},{"issue":"12","key":"10.1016\/j.eclinm.2023.102224_bib9","first-page":"1812","article-title":"The HOMESIDE music intervention: a training protocol for family carers of people living with dementia","volume":"12","author":"Odell-Miller","year":"2022","journal-title":"Eur J Investig Health Psychol Educ"},{"key":"10.1016\/j.eclinm.2023.102224_bib10","first-page":"53","article-title":"The impact of reading groups on engagement and social interaction for older adults with dementia: a literature review","volume":"1","author":"DeVries","year":"2019","journal-title":"Ther Recreat J"},{"issue":"1","key":"10.1016\/j.eclinm.2023.102224_bib11","doi-asserted-by":"crossref","first-page":"316","DOI":"10.1186\/s13063-023-07327-8","article-title":"Statistical analysis plan for HOMESIDE: a randomised controlled trial for home-based family caregiver-delivered music and reading interventions for people living with dementia","volume":"24","author":"Pac Soo","year":"2023","journal-title":"Trials"},{"key":"10.1016\/j.eclinm.2023.102224_bib12","doi-asserted-by":"crossref","first-page":"233","DOI":"10.1176\/jnp.12.2.233","article-title":"Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory","volume":"12","author":"Kaufer","year":"2000","journal-title":"J\u00a0Neuropsychiatry Clin Neurosci"},{"key":"10.1016\/j.eclinm.2023.102224_bib13","doi-asserted-by":"crossref","DOI":"10.1016\/j.conctc.2023.101079","article-title":"Recruitment approaches and profiles of consenting family caregivers and people living with dementia: a recruitment study within a trial","volume":"32","author":"Baker","year":"2023","journal-title":"Contemp Clin Trials Commun"},{"key":"10.1016\/j.eclinm.2023.102224_bib14","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1053\/apnr.2000.9231","article-title":"An examination of psychometric properties of the mini-mental status examination and the standardized mini-mental status examination: implications for clinical practice","volume":"13","author":"Pangman","year":"2000","journal-title":"Appl Nurs Res"},{"key":"10.1016\/j.eclinm.2023.102224_bib15","doi-asserted-by":"crossref","first-page":"14","DOI":"10.1080\/13607860801919850","article-title":"A\u00a0European consensus on outcome measures for psychosocial intervention research in dementia care","volume":"12","author":"Moniz-Cook","year":"2008","journal-title":"Aging Ment Health"},{"key":"10.1016\/j.eclinm.2023.102224_bib16","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1177\/0891988714532017","article-title":"Validity and reliability of the neuropsychiatric inventory questionnaire version in patients with stroke or transient ischemic attack having cognitive impairment","volume":"27","author":"Wong","year":"2014","journal-title":"J\u00a0Geriatr Psychiatry Neurol"},{"key":"10.1016\/j.eclinm.2023.102224_bib17","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1186\/1471-244X-9-26","article-title":"The self-reported Montgomery-\u00c5sberg depression rating scale is a useful evaluative tool in major depressive disorder","volume":"9","author":"Fantino","year":"2009","journal-title":"BMC Psychiatry"},{"key":"10.1016\/j.eclinm.2023.102224_bib18","doi-asserted-by":"crossref","first-page":"510","DOI":"10.1097\/00006842-200205000-00016","article-title":"Assessing quality of life in older adults with cognitive impairment","volume":"64","author":"Logsdon","year":"2002","journal-title":"Psychosom Med"},{"key":"10.1016\/j.eclinm.2023.102224_bib19","doi-asserted-by":"crossref","first-page":"606","DOI":"10.1046\/j.1525-1497.2001.016009606.x","article-title":"The PHQ-9: validity of a brief depression severity measure","volume":"16","author":"Kroenke","year":"2001","journal-title":"J\u00a0Gen Intern Med"},{"key":"10.1016\/j.eclinm.2023.102224_bib20","first-page":"165","article-title":"Development and psychometric evaluation of the resilience scale","volume":"1","author":"Wagnild","year":"1993","journal-title":"J\u00a0Nurs Meas"},{"key":"10.1016\/j.eclinm.2023.102224_bib21","doi-asserted-by":"crossref","first-page":"256","DOI":"10.1111\/j.1532-5415.1999.tb04588.x","article-title":"Assessment of caregiver's competence in dealing with the burden of caregiving for a dementia patient: a Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice","volume":"47","author":"Vernooij-Dassen","year":"1999","journal-title":"J\u00a0Am Geriatr Soc"},{"key":"10.1016\/j.eclinm.2023.102224_bib22","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1186\/1477-7525-10-38","article-title":"Construction of the descriptive system for the assessment of quality of life AQoL-6D utility instrument","volume":"10","author":"Richardson","year":"2012","journal-title":"Health Qual Life Outcomes"},{"key":"10.1016\/j.eclinm.2023.102224_bib23","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1348\/147608302320365208","article-title":"The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients","volume":"75","author":"Spruytte","year":"2002","journal-title":"Psychol Psychother"},{"key":"10.1016\/j.eclinm.2023.102224_bib24","first-page":"134","article-title":"Longitudinal data analysis of continuous and discrete responses for pre-post designs","volume":"62","author":"Liang","year":"2000","journal-title":"Sankhya Indian J Stat"},{"key":"10.1016\/j.eclinm.2023.102224_bib25","doi-asserted-by":"crossref","first-page":"404","DOI":"10.1177\/1536867X221106416","article-title":"Estimating the complier average causal effect via a latent class approach using gsem","volume":"22","author":"Troncoso","year":"2022","journal-title":"STATA J"},{"issue":"7","key":"10.1016\/j.eclinm.2023.102224_bib26","doi-asserted-by":"crossref","first-page":"1448","DOI":"10.1111\/jgs.13473","article-title":"Values of the minimal clinically important difference for the neuropsychiatric inventory questionnaire in individuals with dementia","volume":"63","author":"Mao","year":"2015","journal-title":"J\u00a0Am Geriatr Soc"},{"issue":"3","key":"10.1016\/j.eclinm.2023.102224_bib27","doi-asserted-by":"crossref","DOI":"10.1002\/gps.5893","article-title":"Immediate effects of individualized music listening on behavioral and psychological symptoms of dementia: a randomized controlled trial","volume":"38","author":"Hillebrand","year":"2023","journal-title":"Int J Geriatr Psychiatry"},{"key":"10.1016\/j.eclinm.2023.102224_bib28","doi-asserted-by":"crossref","first-page":"e153","DOI":"10.1016\/S2666-7568(22)00027-7","article-title":"Clinical effectiveness of Music Interventions for Dementia and Depression in Elderly care (MIDDEL) in the Australian cohort: pragmatic cluster-randomised controlled trial","volume":"3","author":"Baker","year":"2022","journal-title":"Lancet Healthy Longev"},{"key":"10.1016\/j.eclinm.2023.102224_bib29","doi-asserted-by":"crossref","first-page":"1713","DOI":"10.3233\/JAD-201396","article-title":"COVID-19: association between increase of behavioral and psychological symptoms of dementia during lockdown and caregivers' poor mental health","volume":"80","author":"Pongan","year":"2021","journal-title":"J\u00a0Alzheimers Dis"},{"key":"10.1016\/j.eclinm.2023.102224_bib30","doi-asserted-by":"crossref","first-page":"8067","DOI":"10.3390\/ijerph18158067","article-title":"Comparative efficacy of active group music intervention versus group music listening in Alzheimer's disease","volume":"18","author":"G\u00f3mez-Gallego","year":"2021","journal-title":"Int J Env Res Public Health"},{"year":"1997","series-title":"Dementia reconsidered: the person comes first","author":"Kitwood","key":"10.1016\/j.eclinm.2023.102224_bib31"},{"key":"10.1016\/j.eclinm.2023.102224_bib34","doi-asserted-by":"crossref","DOI":"10.1177\/23337214231176698","article-title":"Effect of the COVID-19 pandemic on the self-perceived change of caregivers' burden in providing care for people with dementia","volume":"9","author":"Wongmek","year":"2023","journal-title":"Gerontol Geriatr Med"},{"key":"10.1016\/j.eclinm.2023.102224_bib35","first-page":"61","article-title":"Distinctive cognitive profiles in Alzheimer's disease and subcortical vascular dementia","volume":"75","author":"Graham","year":"2004","journal-title":"J\u00a0Neurol Neurosurg Psychiatry"},{"issue":"4-5","key":"10.1016\/j.eclinm.2023.102224_bib36","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1159\/000455127","article-title":"Neuropsychiatric symptoms in Alzheimer disease, vascular dementia, and mixed dementia","volume":"17","author":"Anor","year":"2017","journal-title":"Neurodegener Dis"},{"key":"10.1016\/j.eclinm.2023.102224_bib32","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1017\/S1041610220000812","article-title":"Reading activity prevents long-term decline in cognitive function in older people: evidence from a 14-year longitudinal study","volume":"33","author":"Chang","year":"2021","journal-title":"Int Psychogeriatr"},{"key":"10.1016\/j.eclinm.2023.102224_bib33","doi-asserted-by":"crossref","first-page":"819","DOI":"10.3233\/JAD-210610","article-title":"Long-known music exposure effects on brain imaging and cognition in early-stage cognitive decline: a pilot study","volume":"84","author":"Fischer","year":"2021","journal-title":"J\u00a0Alzheimers Dis"},{"issue":"3","key":"10.1016\/j.eclinm.2023.102224_bib37","doi-asserted-by":"crossref","first-page":"402","DOI":"10.1111\/psyg.12810","article-title":"The effects of COVID-19 lockdown on neuropsychiatric symptoms in patients with dementia or mild cognitive impairment: a systematic review and meta-analysis","volume":"22","author":"Soysal","year":"2022","journal-title":"Psychogeriatrics"},{"key":"10.1016\/j.eclinm.2023.102224_bib38","doi-asserted-by":"crossref","first-page":"669","DOI":"10.3233\/JAD-180641","article-title":"Neuropsychiatric inventory in community-dwelling older adults with mild cognitive impairment and dementia","volume":"68","author":"Nunes","year":"2019","journal-title":"J\u00a0Alzheimers Dis"}],"container-title":["eClinicalMedicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2589537023004017?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2589537023004017?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,4,29]],"date-time":"2024-04-29T02:38:11Z","timestamp":1714358291000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2589537023004017"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,11]]},"references-count":38,"alternative-id":["S2589537023004017"],"URL":"https:\/\/doi.org\/10.1016\/j.eclinm.2023.102224","relation":{},"ISSN":["2589-5370"],"issn-type":[{"type":"print","value":"2589-5370"}],"subject":[],"published":{"date-parts":[[2023,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial","name":"articletitle","label":"Article Title"},{"value":"eClinicalMedicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.eclinm.2023.102224","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 The Author(s). Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"102224"}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://www.elsevier.com/tdm/userlicense/1.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorIdentifierOrcid_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorIdentifierOrcid_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PersonAuthorFirstName_12,PersonAuthorLastName_12,PersonAuthorIdentifierOrcid_12,PersonAuthorFirstName_13,PersonAuthorLastName_13,PersonAuthorFirstName_14,PersonAuthorLastName_14,PersonAuthorFirstName_15,PersonAuthorLastName_15,PersonAuthorFirstName_16,PersonAuthorLastName_16,PersonAuthorFirstName_17,PersonAuthorLastName_17,PersonAuthorFirstName_18,PersonAuthorLastName_18,PersonAuthorFirstName_19,PersonAuthorLastName_19,PersonAuthorFirstName_20,PersonAuthorLastName_20,PersonAuthorFirstName_21,PersonAuthorLastName_21,PersonAuthorFirstName_22,PersonAuthorLastName_22,PersonAuthorIdentifierOrcid_22,PersonAuthorFirstName_23,PersonAuthorLastName_23,PublisherName,TitleMain_1,Language,TitleParent_1,ArticleNumber,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Felicity Anne Baker</author>
    <author>Vanessa Pac Soo</author>
    <author>Jodie Bloska</author>
    <author>Laura Blauth</author>
    <author>Anna A. Bukowska</author>
    <author>Libby Flynn</author>
    <author>Ming Hung Hsu</author>
    <author>Edyta Janus</author>
    <author>Kjersti Johansson</author>
    <author>Tone Kvamme</author>
    <author>Nicola Lautenschlager</author>
    <author>Hayley Miller</author>
    <author>Jonathan Pool</author>
    <author>Agnieszka Smrokowska-Reichmann</author>
    <author>Karette Stensæth</author>
    <author>Kate Teggelove</author>
    <author>Sven Warnke</author>
    <author>Thomas Wosch</author>
    <author>Helen Odell-Miller</author>
    <author>Karen Lamb</author>
    <author>Sabine Braat</author>
    <author>Tanara Vieira Sousa</author>
    <author>Jeanette Tamplin</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6220</id>
    <completedYear/>
    <publishedYear>2023</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue>1</issue>
    <volume>24</volume>
    <type>article</type>
    <publisherName>Springer Science and Business Media LLC</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Statistical analysis plan for HOMESIDE: a randomised controlled trial for home-based family caregiver-delivered music and reading interventions for people living with dementia</title>
    <abstract language="eng">Abstract&#13;
 Background&#13;
 Most people with dementia live in the community, not in residential care. Therefore, quality informal care for them is critical for managing behavioural and psychological symptoms of dementia (BPSD). Music therapy has been shown to reduce BPSD. However, no randomised controlled trial has examined the effects of music interventions delivered by caregivers in home settings. The HOME-based caregiver-delivered music intervention for people living with dementia (HOMESIDE) trial aims to evaluate the effectiveness of a 12-week music intervention in addition to standard care for BPSD. This article describes the statistical analysis plan.&#13;
 &#13;
 Methods and analysis&#13;
 HOMESIDE is a large, pragmatic international three-arm parallel-group randomised controlled trial. Dyads (persons with dementia and caregiver) in Australia, Germany, the UK, Poland and Norway were randomised to receive music and standard care, reading and standard care or standard care alone. The primary outcome is BPSD (proxy) of the person living with dementia, measured using the Neuropsychiatric Inventory-Questionnaire (NPI-Q) at 90 and 180 days post-randomisation. Longitudinal analysis will compare NPI-Q severity between music and standard care versus standard care alone. Secondary outcomes include quality of life and depression (both person with dementia and caregiver), cognition (person with dementia only), distress, resilience, competence and caregiver-patient relationship (caregiver only). Treatment effects will be obtained at 90 and 180 days post-randomisation, where applicable. Safety outcomes (adverse events, hospitalisations, deaths) will be summarised.&#13;
 &#13;
 Discussion&#13;
 This statistical analysis plan provides a detailed methodology for the analysis of HOMESIDE and will improve the validity of the study and reduce the potential for bias.&#13;
 &#13;
 Trial registration&#13;
 Australian New Zealand Clinical Trials Registry ACTRN12618001799246. Registered on November 05, 2018. ClinicalTrials.gov NCT03907748. Registered on April 09, 2019.</abstract>
    <parentTitle language="eng">Trials</parentTitle>
    <identifier type="issn">1745-6215</identifier>
    <identifier type="doi">10.1186/s13063-023-07327-8</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T13:22:35Z","timestamp":1740144155225,"version":"3.37.3"},"reference-count":21,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2023,5,8]],"date-time":"2023-05-08T00:00:00Z","timestamp":1683504000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2023,5,8]],"date-time":"2023-05-08T00:00:00Z","timestamp":1683504000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Joint Programs for Neurodegenerative Diseases and the National Health and Medical Research Council","award":["GNT1169867"]},{"DOI":"10.13039\/501100005416","name":"Norwegian Research Council","doi-asserted-by":"crossref","award":["298995"],"id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Federal Ministry of Education and Research Germany","award":["01ED1901"]},{"name":"The National Centre for Research and Development, Poland","award":["JPND\/04\/2019"]},{"name":"The National Centre for Research and Development at Alzheimer\u2019s Society, UK","award":["462"]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Trials"],"abstract":"&lt;jats:title&gt;Abstract&lt;\/jats:title&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Background&lt;\/jats:title&gt;\n                &lt;jats:p&gt;Most people with dementia live in the community, not in residential care. Therefore, quality informal care for them is critical for managing behavioural and psychological symptoms of dementia (BPSD). Music therapy has been shown to reduce BPSD. However, no randomised controlled trial has examined the effects of music interventions delivered by caregivers in home settings. The HOME-based caregiver-delivered music intervention for people living with dementia (HOMESIDE) trial aims to evaluate the effectiveness of a 12-week music intervention in addition to standard care for BPSD. This article describes the statistical analysis plan.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Methods and analysis&lt;\/jats:title&gt;\n                &lt;jats:p&gt;HOMESIDE is a large, pragmatic international three-arm parallel-group randomised controlled trial. Dyads (persons with dementia and caregiver) in Australia, Germany, the UK, Poland and Norway were randomised to receive music and standard care, reading and standard care or standard care alone. The primary outcome is BPSD (proxy) of the person living with dementia, measured using the Neuropsychiatric Inventory-Questionnaire (NPI-Q) at 90 and 180\u00a0days post-randomisation. Longitudinal analysis will compare NPI-Q severity between music and standard care versus standard care alone. Secondary outcomes include quality of life and depression (both person with dementia and caregiver), cognition (person with dementia only), distress, resilience, competence and caregiver-patient relationship (caregiver only). Treatment effects will be obtained at 90 and 180\u00a0days post-randomisation, where applicable. Safety outcomes (adverse events, hospitalisations, deaths) will be summarised.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Discussion&lt;\/jats:title&gt;\n                &lt;jats:p&gt;This statistical analysis plan provides a detailed methodology for the analysis of HOMESIDE and will improve the validity of the study and reduce the potential for bias.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Trial registration&lt;\/jats:title&gt;\n                &lt;jats:p&gt;Australian New Zealand Clinical Trials Registry ACTRN12618001799246. Registered on November\u00a005, 2018. ClinicalTrials.gov NCT03907748.\u00a0Registered on April\u00a009, 2019.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;","DOI":"10.1186\/s13063-023-07327-8","type":"journal-article","created":{"date-parts":[[2023,5,24]],"date-time":"2023-05-24T13:02:33Z","timestamp":1684933353000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Statistical analysis plan for HOMESIDE: a randomised controlled trial for home-based family caregiver-delivered music and reading interventions for people living with dementia"],"prefix":"10.1186","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6276-6920","authenticated-orcid":false,"given":"Vanessa","family":"Pac Soo","sequence":"first","affiliation":[]},{"given":"Felicity A.","family":"Baker","sequence":"additional","affiliation":[]},{"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[]},{"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[]},{"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[]},{"given":"Nicola","family":"Lautenschlager","sequence":"additional","affiliation":[]},{"given":"Sabine","family":"Braat","sequence":"additional","affiliation":[]},{"given":"Karen E.","family":"Lamb","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2023,5,8]]},"reference":[{"issue":"3","key":"7327_CR1","doi-asserted-by":"publisher","first-page":"391","DOI":"10.1002\/alz.12068","volume":"16","author":"The Alzheimer's Association","year":"2020","unstructured":"The Alzheimer\u2019s Association. 2020 Alzheimer\u2019s disease facts and figures. Alzheimers Dement. 2020;16(3):391\u2013460.","journal-title":"Alzheimers Dement"},{"issue":"5","key":"7327_CR2","doi-asserted-by":"publisher","first-page":"446","DOI":"10.1111\/j.1365-2648.2007.04250.x","volume":"58","author":"E Papastavrou","year":"2007","unstructured":"Papastavrou E, et al. Caring for a relative with dementia: family caregiver burden. J Adv Nurs. 2007;58(5):446\u201357.","journal-title":"J Adv Nurs"},{"issue":"6","key":"7327_CR3","doi-asserted-by":"publisher","first-page":"753","DOI":"10.1080\/13607863.2013.789001","volume":"17","author":"S O\u2019Dwyer","year":"2013","unstructured":"O\u2019Dwyer S, Moyle W, van Wyk S. Suicidal ideation and resilience in family carers of people with dementia: a pilot qualitative study. Aging Ment Health. 2013;17(6):753\u201360.","journal-title":"Aging Ment Health"},{"key":"7327_CR4","unstructured":"National Institute for Health and Care Excellence. NICE guidelines: dementia: assessment, management and support for people living with dementia and their carers. 2018. Available: nice.org.uk\/guidance\/ng97."},{"issue":"2","key":"7327_CR5","doi-asserted-by":"publisher","first-page":"204","DOI":"10.1017\/S1041610212001755","volume":"25","author":"R Li","year":"2013","unstructured":"Li R, et al. Do changes in coping style explain the effectiveness of interventions for psychological morbidity in family carers of people with dementia? A systematic review and meta-analysis. Int Psychogeriatr. 2013;25(2):204\u201314.","journal-title":"Int Psychogeriatr"},{"issue":"5","key":"7327_CR6","doi-asserted-by":"publisher","first-page":"7105180020p1","DOI":"10.5014\/ajot.2017.027581","volume":"71","author":"CV Piersol","year":"2017","unstructured":"Piersol CV, et al. Effectiveness of interventions for caregivers of people with Alzheimer\u2019s disease and related major neurocognitive disorders: a systematic review. Am J Occup Ther. 2017;71(5):7105180020p1\u201310.","journal-title":"Am J Occup Ther"},{"key":"7327_CR7","doi-asserted-by":"publisher","first-page":"75","DOI":"10.1108\/JPMH-06-2015-0023","volume":"15","author":"E Longden","year":"2016","unstructured":"Longden E, et al. An evaluation of shared reading groups for adults living with dementia: preliminary findings. J Public Ment Health. 2016;15:75\u201382.","journal-title":"J Public Ment Health"},{"issue":"3","key":"7327_CR8","doi-asserted-by":"publisher","first-page":"380","DOI":"10.1093\/gerona\/60.3.380","volume":"60","author":"R Kawashima","year":"2005","unstructured":"Kawashima R, et al. Reading aloud and arithmetic calculation improve frontal function of people with dementia. J Gerontol A Biol Sci Med Sci. 2005;60(3):380\u20134.","journal-title":"J Gerontol A Biol Sci Med Sci"},{"issue":"11","key":"7327_CR9","doi-asserted-by":"publisher","first-page":"e031332","DOI":"10.1136\/bmjopen-2019-031332","volume":"9","author":"FA Baker","year":"2019","unstructured":"Baker FA, et al. HOMESIDE: home-based family caregiver-delivered music and reading interventions for people living with dementia: protocol of a randomised controlled trial. BMJ Open. 2019;9(11):e031332.","journal-title":"BMJ Open"},{"issue":"2","key":"7327_CR10","doi-asserted-by":"publisher","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","volume":"42","author":"PA Harris","year":"2009","unstructured":"Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)\u2014a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377\u201381.","journal-title":"J Biomed Inform"},{"issue":"7","key":"7327_CR11","doi-asserted-by":"publisher","first-page":"1448","DOI":"10.1111\/jgs.13473","volume":"63","author":"HF Mao","year":"2015","unstructured":"Mao HF, et al. Values of the minimal clinically important difference for the neuropsychiatric inventory questionnaire in individuals with dementia. J Am Geriatr Soc. 2015;63(7):1448\u201352.","journal-title":"J Am Geriatr Soc"},{"issue":"sup1","key":"7327_CR12","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1080\/00031305.2019.1583913","volume":"73","author":"RL Wasserstein","year":"2019","unstructured":"Wasserstein RL, Schirm AL, Lazar NA. Moving to a world beyond \u201cp\u2009&lt;\u20090.05.\u201d Am Stat. 2019;73(sup1):1\u201319.","journal-title":"Am Stat"},{"key":"7327_CR13","unstructured":"ICH. Topic E9(R1) on estimands and sensitivity analysis in clinical trials to the guideline on statistical principles for clinical trials. 2019. www.ich.org."},{"issue":"1","key":"7327_CR14","first-page":"134","volume":"62","author":"K Liang","year":"2000","unstructured":"Liang K, Zeger S. Longitudinal data analysis of continuous and discrete responses for pre-post designs. Sankhy\u0101 Indian J Stat Ser B (1960-2002). 2000;62(1):134\u201348.","journal-title":"Sankhy\u0101 Indian J Stat Ser B (1960-2002)"},{"issue":"1","key":"7327_CR15","doi-asserted-by":"publisher","first-page":"131","DOI":"10.1186\/s12955-018-0959-y","volume":"16","author":"J R\u00f6mhild","year":"2018","unstructured":"R\u00f6mhild J, et al. Inter-rater agreement of the Quality of Life-Alzheimer\u2019s Disease (QoL-AD) self-rating and proxy rating scale: secondary analysis of RightTimePlaceCare data. Health Qual Life Outcomes. 2018;16(1):131.","journal-title":"Health Qual Life Outcomes"},{"issue":"4","key":"7327_CR16","doi-asserted-by":"publisher","first-page":"943","DOI":"10.1111\/eip.12715","volume":"13","author":"J Sundquist","year":"2019","unstructured":"Sundquist J, et al. Long-term improvements after mindfulness-based group therapy of depression, anxiety and stress and adjustment disorders: a randomized controlled trial. Early Interv Psychiatry. 2019;13(4):943\u201352.","journal-title":"Early Interv Psychiatry"},{"issue":"4","key":"7327_CR17","doi-asserted-by":"publisher","first-page":"345","DOI":"10.1016\/j.genhosppsych.2010.03.006","volume":"32","author":"K Kroenke","year":"2010","unstructured":"Kroenke K, et al. The patient health questionnaire somatic, anxiety, and depressive symptom scales: a systematic review. Gen Hosp Psychiatry. 2010;32(4):345\u201359.","journal-title":"Gen Hosp Psychiatry"},{"key":"7327_CR18","unstructured":"AQoL: Assessment of Quality of Life. 2014. https:\/\/www.aqol.com.au\/index.php\/scoring-algorithms\/112-6d\/231-spss-6d-psychometric.\u00a0Accessed\u00a028 June 2022."},{"issue":"2","key":"7327_CR19","doi-asserted-by":"publisher","first-page":"e200094","DOI":"10.1001\/jamanetworkopen.2020.0094","volume":"3","author":"N Beker","year":"2020","unstructured":"Beker N, et al. Longitudinal maintenance of cognitive health in centenarians in the 100-plus study. JAMA Netw Open. 2020;3(2):e200094.","journal-title":"JAMA Netw Open"},{"issue":"1","key":"7327_CR20","doi-asserted-by":"publisher","first-page":"686","DOI":"10.1186\/s13063-021-05644-4","volume":"22","author":"BC Kahan","year":"2021","unstructured":"Kahan BC, et al. Estimands in published protocols of randomised trials: urgent improvement needed. Trials. 2021;22(1):686.","journal-title":"Trials"},{"issue":"14","key":"7327_CR21","doi-asserted-by":"publisher","first-page":"1391","DOI":"10.1056\/NEJMsm1605385","volume":"377","author":"MAR Hern\u00e1n","year":"2017","unstructured":"Hern\u00e1n MAR, James M. Per-protocol analyses of pragmatic trials. N Engl J Med. 2017;377(14):1391\u20138.","journal-title":"N Engl J Med"}],"container-title":["Trials"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s13063-023-07327-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s13063-023-07327-8\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s13063-023-07327-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,5,24]],"date-time":"2023-05-24T13:07:39Z","timestamp":1684933659000},"score":1,"resource":{"primary":{"URL":"https:\/\/trialsjournal.biomedcentral.com\/articles\/10.1186\/s13063-023-07327-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,5,8]]},"references-count":21,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2023,12]]}},"alternative-id":["7327"],"URL":"https:\/\/doi.org\/10.1186\/s13063-023-07327-8","relation":{},"ISSN":["1745-6215"],"issn-type":[{"type":"electronic","value":"1745-6215"}],"subject":[],"published":{"date-parts":[[2023,5,8]]},"assertion":[{"value":"17 January 2023","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"24 April 2023","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"8 May 2023","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Each country obtained ethics approval prior to the commencement of the trial (Australia [Human Ethics Sub-Committee approval no. 1852845]; Germany [approval no. DGP 19-013]; Norway [Norwegian Centre for Research Data (Ref 502736) and Norwegian REK Medical and Research Ethics Ref 2019\/941]; Poland [approval no. 186\/KBL\/OIL\/2019]; UK Integrated Research Application System (IRAS) [approval no. 19\/EE\/0177]). Results will be disseminated in international peer-reviewed journal(s) and at scientific meetings. Informed consent was provided from all dyads.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"316"}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by/4.0</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PublisherName,TitleMain_1,Language,TitleAbstract_1,TitleParent_1,ArticleNumber,Issue,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Vanessa Pac Soo</author>
    <author>Felicity A. Baker</author>
    <author>Tanara Vieira Sousa</author>
    <author>Helen Odell-Miller</author>
    <author>Karette Stensæth</author>
    <author>Thomas Wosch</author>
    <author>Anna A. Bukowska</author>
    <author>Jeanette Tamplin</author>
    <author>Nicola Lautenschlager</author>
    <author>Sabine Braat</author>
    <author>Karen E. Lamb</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6226</id>
    <completedYear/>
    <publishedYear>2022</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst>1812</pageFirst>
    <pageLast>1832</pageLast>
    <pageNumber>21</pageNumber>
    <edition/>
    <issue>12</issue>
    <volume>12</volume>
    <type>article</type>
    <publisherName>MDPI AG</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">The HOMESIDE Music Intervention: A Training Protocol for Family Carers of People Living with Dementia</title>
    <abstract language="eng">Background: The number of people living with dementia (PwD) worldwide is expected to double every 20 years. Many continue living at home, receiving support from family caregivers who may experience significant stress, simultaneously to that of the PwD. Meaningful and effective home-based interventions to support PwD and their caregivers are needed. The development of a theory- and practice-driven online home-based music intervention (MI) is delivered by credentialed music therapists, nested within the HOMESIDE RCT trial.&#13;
&#13;
Methods: Dyads including the PwD and their family carer are randomised to MI, reading (RI) or standard care (SC). MI aims to support health wellbeing and quality of life by training caregivers to intentionally use music (singing, instrument playing, movement/dancing, and music listening) with their family member (PwD) in daily routines. MI is underpinned by cognitive, relational, social, and psychological theories of mechanisms of change.&#13;
&#13;
Results: Preliminary sub-cohort results analyses show MI can be delivered and is accepted well by participants and music-therapist interventionists across five countries.&#13;
&#13;
Conclusions: The specialist skills of a music therapist through MI enable carers to access music when music therapists are not present, to meet carer and PwD needs. Music therapists embrace this changing professional role, observing therapeutic change for members of the dyads.</abstract>
    <parentTitle language="eng">European Journal of Investigation in Health, Psychology and Education</parentTitle>
    <identifier type="issn">2254-9625</identifier>
    <identifier type="doi">10.3390/ejihpe12120127</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T11:49:39Z","timestamp":1751456979760,"version":"3.37.3"},"reference-count":53,"publisher":"MDPI AG","issue":"12","license":[{"start":{"date-parts":[[2022,12,4]],"date-time":"2022-12-04T00:00:00Z","timestamp":1670112000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Joint Programs for Neurodegenerative Diseases (JPND)"},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"crossref","award":["APP1169867"],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100005416","name":"Norwegian Research Council","doi-asserted-by":"crossref","award":["298995"],"id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Federal Ministry of Education and Research Germany","award":["01ED1901"]},{"name":"National Centre for Research and Development, Poland","award":["JPND\/04\/2019"]},{"name":"National Centre for Research and Development and Alzheimer\u2019s Society, UK","award":["462"]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["EJIHPE"],"abstract":"&lt;jats:p&gt;Background: The number of people living with dementia (PwD) worldwide is expected to double every 20 years. Many continue living at home, receiving support from family caregivers who may experience significant stress, simultaneously to that of the PwD. Meaningful and effective home-based interventions to support PwD and their caregivers are needed. The development of a theory- and practice-driven online home-based music intervention (MI) is delivered by credentialed music therapists, nested within the HOMESIDE RCT trial. Methods: Dyads including the PwD and their family carer are randomised to MI, reading (RI) or standard care (SC). MI aims to support health wellbeing and quality of life by training caregivers to intentionally use music (singing, instrument playing, movement\/dancing, and music listening) with their family member (PwD) in daily routines. MI is underpinned by cognitive, relational, social, and psychological theories of mechanisms of change. Results: Preliminary sub-cohort results analyses show MI can be delivered and is accepted well by participants and music-therapist interventionists across five countries. Conclusions: The specialist skills of a music therapist through MI enable carers to access music when music therapists are not present, to meet carer and PwD needs. Music therapists embrace this changing professional role, observing therapeutic change for members of the dyads.&lt;\/jats:p&gt;","DOI":"10.3390\/ejihpe12120127","type":"journal-article","created":{"date-parts":[[2022,12,5]],"date-time":"2022-12-05T16:02:10Z","timestamp":1670256130000},"page":"1812-1832","source":"Crossref","is-referenced-by-count":15,"title":["The HOMESIDE Music Intervention: A Training Protocol for Family Carers of People Living with Dementia"],"prefix":"10.3390","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4903-1417","authenticated-orcid":false,"given":"Helen","family":"Odell-Miller","sequence":"first","affiliation":[{"name":"Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge CB1 1PT, UK"}]},{"given":"Laura","family":"Blauth","sequence":"additional","affiliation":[{"name":"Music Therapy Lab, Institute for Applied Social Sciences, University of Applied Sciences W\u00fcrzburg-Schweinfurt, 97072 W\u00fcrzburg, Germany"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9647-1437","authenticated-orcid":false,"given":"Jodie","family":"Bloska","sequence":"additional","affiliation":[{"name":"Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge CB1 1PT, UK"}]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[{"name":"Institute of Applied Sciences, University of Physical Education in Krakow, 31-571 Krakow, Poland"}]},{"given":"Imogen N.","family":"Clark","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8828-3759","authenticated-orcid":false,"given":"Sarah","family":"Crabtree","sequence":"additional","affiliation":[{"name":"Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge CB1 1PT, UK"}]},{"given":"Runa B.","family":"Engen","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Solgunn","family":"Knardal","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Tone K.","family":"Kvamme","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0507-5736","authenticated-orcid":false,"given":"Kate","family":"McMahon","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9162-1635","authenticated-orcid":false,"given":"Carina","family":"Petrowitz","sequence":"additional","affiliation":[{"name":"Music Therapy Lab, Institute for Applied Social Sciences, University of Applied Sciences W\u00fcrzburg-Schweinfurt, 97072 W\u00fcrzburg, Germany"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2531-8130","authenticated-orcid":false,"given":"Agnieszka","family":"Smrokowska-Reichmann","sequence":"additional","affiliation":[{"name":"Institute of Applied Sciences, University of Physical Education in Krakow, 31-571 Krakow, Poland"}]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3623-033X","authenticated-orcid":false,"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9851-7133","authenticated-orcid":false,"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[{"name":"Music Therapy Lab, Institute for Applied Social Sciences, University of Applied Sciences W\u00fcrzburg-Schweinfurt, 97072 W\u00fcrzburg, Germany"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2809-9271","authenticated-orcid":false,"given":"Nina","family":"Wollersberger","sequence":"additional","affiliation":[{"name":"Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge CB1 1PT, UK"}]},{"given":"Felicity A.","family":"Baker","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"},{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]}],"member":"1968","published-online":{"date-parts":[[2022,12,4]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"2673","DOI":"10.1016\/S0140-6736(17)31363-6","article-title":"Dementia prevention, intervention, and care","volume":"390","author":"Livingston","year":"2017","journal-title":"Lancet"},{"key":"ref_2","unstructured":"WHO (2022, June 13). Dementia. Available online: https:\/\/www.who.int\/health-topics\/dementia#tab=tab_2."},{"key":"ref_3","unstructured":"WHO (2022, June 13). Reveals Leading Causes of Death and Disability Worldwide: 2000\u20132019. Available online: https:\/\/www.who.int\/news\/item\/09-12-2020-who-reveals-leading-causes-of-death-and-disability-worldwide-2000-2019."},{"key":"ref_4","unstructured":"Guerchet, M., Ali, G.-C., Prince, M., and Wu, Y.-T. (2016). The Incidence of dementia. World Alzheimer Report 2015: The Global Impact of Dementia: An Analysis of Prevalence, Incidence, Cost and Trends, Alzheimer\u2019s Disease International. Available online: https:\/\/www.alz.co.uk\/research\/WorldAlzheimerReport2015.pdf."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"1728","DOI":"10.1001\/jama.2019.11653","article-title":"What Is Dementia?","volume":"322","author":"Arvanitakis","year":"2019","journal-title":"JAMA"},{"key":"ref_6","doi-asserted-by":"crossref","first-page":"1637","DOI":"10.1377\/hlthaff.2015.0510","article-title":"US prevalence and predictors of informal caregiving for dementia","volume":"34","author":"Friedman","year":"2015","journal-title":"Health Aff."},{"key":"ref_7","doi-asserted-by":"crossref","unstructured":"Jutkowitz, E., Gaugler, J.E., Trivedi, A.N., Mitchell, L.L., and Gozalo, P. (2020). Family caregiving in the community up to 8-years after onset of dementia. BMC Geriatr., 20.","DOI":"10.1186\/s12877-020-01613-9"},{"key":"ref_8","unstructured":"Lewis, F., Schaffer, S.K., Sussex, J., O\u2019Neill, P., and Cockcroft, L. (2014). The Trajectory of Dementia in the UK-Making a Difference, Office of Health Economics Consulting Reports."},{"key":"ref_9","unstructured":"Ross, C., and Beattie, E. (2022, February 20). Caring for Someone with Dementia: The Economic, Social, and Health Impacts of Caring for and Evidence Based Supports for Carers, Available online: https:\/\/www.fightdementia.org.au\/files\/NATIONAL\/documents\/Alzheimers-Australia-Numbered-Publication-42.pdf."},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"24","DOI":"10.12968\/bjcn.2016.21.1.24","article-title":"A phenomenological study of living with a partner affected with dementia","volume":"21","author":"Meyer","year":"2016","journal-title":"Br. J. Community Nurs."},{"key":"ref_11","first-page":"e180","article-title":"Living with Dementia: A Meta-synthesis of Qualitative Research on the Lived Experience","volume":"58","author":"Gorska","year":"2018","journal-title":"Gerontologist"},{"key":"ref_12","doi-asserted-by":"crossref","first-page":"541","DOI":"10.1080\/13607863.2018.1433634","article-title":"Living with a partner with dementia: A systematic review and thematic synthesis of spouses\u2019 lived experiences of changes in their everyday lives","volume":"23","author":"Egilstrod","year":"2019","journal-title":"Aging Ment. Health"},{"key":"ref_13","unstructured":"Bramley, D. (2012). Dementia caregiving and caregivers. Dementia: A Public Health Priority, World Health Organisation. Available online: http:\/\/apps.who.int\/iris\/bitstream\/10665\/75263\/1\/9789241564458_eng.pdf?ua=1."},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"670","DOI":"10.1093\/geront\/gnaa108","article-title":"Stress, burden, and well-being in dementia and nondementia caregivers: Insights from the caregiving transitions study","volume":"61","author":"Sheehan","year":"2020","journal-title":"Gerontologist"},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1080\/01621424.2016.1145166","article-title":"Problems experienced by informal caregivers with older care recipients with and without cognitive impairment","volume":"35","author":"Gussekloo","year":"2016","journal-title":"Home Health Care Serv. Q."},{"key":"ref_16","unstructured":"Boltz, M., and Galvin, J.E. (2016). Experiences and perspectives of family caregivers of the person with dementia. Dementia Care: An Evidence-Based Approach, Springer International Publishing."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1017\/S1041610220000472","article-title":"The association between aspects of carer distress and time until nursing home admission in persons with Alzheimer\u2019s disease and dementia with Lewy bodies","volume":"33","author":"Terum","year":"2021","journal-title":"Int. Psychogeriatr."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1017\/S1041610216001654","article-title":"Causes of nursing home placement for older people with dementia: A systematic review and meta-analysis","volume":"29","author":"Toot","year":"2017","journal-title":"Int. Psychogeriatr."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"1039","DOI":"10.1177\/0164027516656741","article-title":"Decision Trajectories in Dementia Care Networks: Decisions and Related Key Events","volume":"39","author":"Smits","year":"2017","journal-title":"Res. Aging"},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"1411","DOI":"10.1080\/13607863.2019.1617238","article-title":"The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: Findings from the IDEAL study","volume":"24","author":"Rippon","year":"2020","journal-title":"Aging Ment. Health"},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"463","DOI":"10.1080\/13607863.2015.1023769","article-title":"Couples\u2019 shared experiences of dementia: A meta-synthesis of the impact upon relationships and couplehood","volume":"20","author":"Wadham","year":"2016","journal-title":"Aging Ment. Health"},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1037\/pag0000401","article-title":"The effectiveness of nonpharmacological interventions for informal dementia caregivers: An updated systematic review and meta-analysis","volume":"35","author":"Cheng","year":"2020","journal-title":"Psychol. Aging."},{"key":"ref_23","doi-asserted-by":"crossref","first-page":"577871","DOI":"10.3389\/fpsyt.2020.577871","article-title":"A systematic review of home-setting psychoeducation interventions for behavioral changes in dementia: Some lessons for the COVID-19 pandemic and post-pandemic assistance","volume":"11","author":"Alves","year":"2020","journal-title":"Front. Psychiatry"},{"key":"ref_24","doi-asserted-by":"crossref","first-page":"1408","DOI":"10.1111\/hsc.12984","article-title":"Non-pharmacological interventions to prevent hospital or nursing home admissions among community-dwelling older people with dementia: A systematic review and meta-analysis","volume":"28","author":"Lee","year":"2020","journal-title":"Health Soc. Care Community"},{"key":"ref_25","doi-asserted-by":"crossref","first-page":"255","DOI":"10.1093\/jmt\/thy012","article-title":"Indirect Music Therapy Practice and Skill-Sharing in Dementia Care","volume":"55","author":"McDermott","year":"2018","journal-title":"J. Music Ther."},{"key":"ref_26","first-page":"25","article-title":"The many futures of music therapy in dementia care and neurorehabilitation","volume":"9","author":"Ridder","year":"2017","journal-title":"Approaches Interdiscip. J. Music. Ther."},{"key":"ref_27","doi-asserted-by":"crossref","unstructured":"Hsu, M.H., Flowerdew, R., Parker, M., Fachner, J., and Odell-Miller, H. (2015). Individual music therapy for managing neuropsychiatric symptoms for people with dementia and their carers: A cluster randomised controlled feasibility study. BMC Geriatr., 15.","DOI":"10.1186\/s12877-015-0082-4"},{"key":"ref_28","doi-asserted-by":"crossref","first-page":"969","DOI":"10.1111\/j.1365-2702.2010.03386.x","article-title":"The impact of caregivers\u2019 singing on expressions of emotion and resistance during morning care situations in persons with dementia: An intervention in dementia care","volume":"20","author":"Hammar","year":"2011","journal-title":"J. Clin. Nurs."},{"key":"ref_29","doi-asserted-by":"crossref","unstructured":"Ray, K., Dassa, A., Maier, J., Davis, R., and Ogunlade, O. (2016). Caring for individuals with dementia on a continuum: An interdisciplinary approach between music therapy and nursing. Update on Dementia, Intechopen.","DOI":"10.5772\/64663"},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"35","DOI":"10.2174\/1874434601004010035","article-title":"Reactions of persons with dementia to caregivers singing in morning care situations","volume":"4","author":"Hammar","year":"2010","journal-title":"Open Nurs. J."},{"key":"ref_31","doi-asserted-by":"crossref","first-page":"1735092","DOI":"10.1080\/17482631.2020.1735092","article-title":"Like a bridge over troubled water\u2014A qualitative study of professional caregiver singing and music as a way to enable person-centred care for persons with dementia","volume":"15","author":"Swall","year":"2020","journal-title":"Int. J. Qual. Stud. Health Well-Being"},{"key":"ref_32","first-page":"4","article-title":"Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia","volume":"23","author":"Baker","year":"2012","journal-title":"Aust. J. Music. Ther."},{"key":"ref_33","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1093\/jmt\/48.1.2","article-title":"Home-based music strategies with individuals who have dementia and their family caregivers","volume":"48","author":"Hanser","year":"2011","journal-title":"J. Music. Ther."},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"e031332","DOI":"10.1136\/bmjopen-2019-031332","article-title":"HOMESIDE: Home-based family caregiver-delivered music and reading interventions for people living with dementia: Protocol of a randomised controlled trial","volume":"9","author":"Baker","year":"2019","journal-title":"BMJ Open"},{"key":"ref_35","doi-asserted-by":"crossref","first-page":"2438","DOI":"10.1093\/brain\/awv135","article-title":"Why musical memory can be preserved in advanced Alzheimer\u2019s disease","volume":"138","author":"Jacobsen","year":"2015","journal-title":"Brain"},{"key":"ref_36","unstructured":"Muthesius, D., Sonntag, J., Warme, B., and Falk, J. (2019). Musik\u2013Demenz\u2013Begegnung, Mabuse-Verlag."},{"key":"ref_37","unstructured":"Kitwood, T. (1997). Dementia Reconsidered: The Person Comes First, Open University Press."},{"key":"ref_38","unstructured":"Feil, N. (2015). Validation, Ernst Reinhardt Verlag."},{"key":"ref_39","unstructured":"Ridder, H.M.O. (2003). Singing Dialogue: Music Therapy with Persons in Advanced Stages of Dementia. A Case Study Research Design. [Ph.D. Thesis, Aalborg Universitet]. Available online: https:\/\/vbn.aau.dk\/ws\/portalfiles\/portal\/316419630\/ridder_2003.pdf."},{"key":"ref_40","doi-asserted-by":"crossref","unstructured":"Wosch, T. (2011). Musik und Alter in Therapie und Pflege. Grundlagen, Institutionen und Praxis der Musiktherapie im Alter und bei Demenz, Kohlhammer.","DOI":"10.17433\/978-3-17-029567-4"},{"key":"ref_41","doi-asserted-by":"crossref","first-page":"147","DOI":"10.1080\/13607863.2015.1093599","article-title":"Effectiveness of group music therapy versus recreational group singing for depressive symptoms of elderly nursing home residents: Pragmatic trial","volume":"21","author":"Werner","year":"2017","journal-title":"Aging Ment. Health"},{"key":"ref_42","doi-asserted-by":"crossref","unstructured":"Odell-Miller, H. (2021). Embedding music and music therapy in care pathways for people with dementia in the 21st Century\u2014A position paper. Music Sci., 4.","DOI":"10.1177\/20592043211020424"},{"key":"ref_43","doi-asserted-by":"crossref","first-page":"1332","DOI":"10.3389\/fpsyg.2018.01332","article-title":"Community-dwelling people living with dementia and their family caregivers\u2019 experiences of therapeutic group singing: A qualitative thematic analysis","volume":"9","author":"Clark","year":"2018","journal-title":"Front. Psychol."},{"key":"ref_44","doi-asserted-by":"crossref","first-page":"245","DOI":"10.3389\/fmed.2018.00245","article-title":"Remini-Sing: A Feasibility Study of Therapeutic Group Singing to Support Relationship Quality and Wellbeing for Community-Dwelling People Living with Dementia and Their Family Caregivers","volume":"5","author":"Tamplin","year":"2018","journal-title":"Front. Med."},{"key":"ref_45","doi-asserted-by":"crossref","first-page":"762","DOI":"10.1111\/jgs.12730","article-title":"Management of neuropsychiatric symptoms of dementia in clinical settings: Recommendations from a multidisciplinary expert panel","volume":"62","author":"Kales","year":"2014","journal-title":"J. Am. Geriatr. Soc."},{"key":"ref_46","doi-asserted-by":"crossref","first-page":"107","DOI":"10.1111\/j.1365-2648.2007.04569.x","article-title":"The qualitative content analysis process","volume":"62","author":"Elo","year":"2008","journal-title":"J. Adv. Nurs."},{"key":"ref_47","unstructured":"Creswell, J.W., and Plano Clark, V.L. (2018). Designing and Conducting Mixed Methods Research, Sage. [3rd ed.]."},{"key":"ref_48","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qual. Res. Sport Exerc. Health"},{"key":"ref_49","unstructured":"Crabtree, S. (2022). The Rationale for the Use of Singing, Listening, Playing Instruments, and Movement with Music for People Living with Dementia. [Ph.D. Thesis, Anglia Ruskin University]."},{"key":"ref_50","unstructured":"Wollersberger, N. (2022). Exploring the Impact of an Indirect Music Therapy Intervention on Quality of Life for Informal Caregivers of People Living with Dementia in the Community. [Ph.D. Thesis, Anglia Ruskin University]."},{"key":"ref_51","unstructured":"Bowell, S., and Bamford, S.M. (2018). What Would Life Be\u2013Without a Song or a Dance, What Are We? A Report from the Commission on Dementia and Music, The International Longevity Centre."},{"key":"ref_52","first-page":"77","article-title":"What is the Evidence on the Role of the Arts in Improving Health and Well-Being? A Scoping Review","volume":"2","author":"Fancourt","year":"2018","journal-title":"Nord. J. Arts Cult. Health"},{"key":"ref_53","unstructured":"World Dementia Council (2022, June 05). Global Dialogue on Care. The Dementia Landscape Project. Available online: https:\/\/worlddementiacouncil.org\/sites\/default\/files\/2021-04\/DLP%20-%20Transcript%20-%20Care.pdf."}],"container-title":["European Journal of Investigation in Health, Psychology and Education"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/2254-9625\/12\/12\/127\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T22:55:27Z","timestamp":1737154527000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/2254-9625\/12\/12\/127"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12,4]]},"references-count":53,"journal-issue":{"issue":"12","published-online":{"date-parts":[[2022,12]]}},"alternative-id":["ejihpe12120127"],"URL":"https:\/\/doi.org\/10.3390\/ejihpe12120127","relation":{},"ISSN":["2254-9625"],"issn-type":[{"type":"electronic","value":"2254-9625"}],"subject":[],"published":{"date-parts":[[2022,12,4]]}}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by/4.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorIdentifierOrcid_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorIdentifierOrcid_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorIdentifierOrcid_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PersonAuthorIdentifierOrcid_11,PersonAuthorFirstName_12,PersonAuthorLastName_12,PersonAuthorIdentifierOrcid_12,PersonAuthorFirstName_13,PersonAuthorLastName_13,PersonAuthorFirstName_14,PersonAuthorLastName_14,PersonAuthorIdentifierOrcid_14,PersonAuthorFirstName_15,PersonAuthorLastName_15,PersonAuthorIdentifierOrcid_15,PersonAuthorFirstName_16,PersonAuthorLastName_16,PersonAuthorIdentifierOrcid_16,PersonAuthorFirstName_17,PersonAuthorLastName_17,PublisherName,TitleMain_1,Language,TitleAbstract_1,TitleParent_1,PageNumber,PageFirst,PageLast,Issue,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Helen Odell-Miller</author>
    <author>Laura Blauth</author>
    <author>Jodie Bloska</author>
    <author>Anna A. Bukowska</author>
    <author>Imogen N. Clark</author>
    <author>Sarah Crabtree</author>
    <author>Runa B. Engen</author>
    <author>Solgunn Knardal</author>
    <author>Tone K. Kvamme</author>
    <author>Kate McMahon</author>
    <author>Carina Petrowitz</author>
    <author>Agnieszka Smrokowska-Reichmann</author>
    <author>Karette Stensæth</author>
    <author>Jeanette Tamplin</author>
    <author>Thomas Wosch</author>
    <author>Nina Wollersberger</author>
    <author>Felicity A. Baker</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6213</id>
    <completedYear/>
    <publishedYear>2025</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst>1</pageFirst>
    <pageLast>18</pageLast>
    <pageNumber>18</pageNumber>
    <edition/>
    <issue/>
    <volume/>
    <type>article</type>
    <publisherName>Informa UK Limited</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Exploring the use of musical activities implemented in home-based dementia care as part of the HOMESIDE study</title>
    <parentTitle language="eng">Arts &amp; Health</parentTitle>
    <identifier type="issn">1753-3015</identifier>
    <identifier type="doi">10.1080/17533015.2025.2525334</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,7,3]],"date-time":"2025-07-03T04:06:08Z","timestamp":1751515568473,"version":"3.41.0"},"reference-count":49,"publisher":"Informa UK Limited","license":[{"start":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T00:00:00Z","timestamp":1751414400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Joint Programs for Neurodegenerative Diseases"},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"crossref","award":["GNT1169867"],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100005416","name":"Norwegian Research Council","doi-asserted-by":"publisher","award":["298995]"],"id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Federal Ministry of Education and Research Germany","award":["01ED1901]"]},{"name":"The National Centre for Research and Development, Poland","award":["JPND\/04\/2019"]},{"name":"Alzheimer\u2019s Society, UK","award":["462"]}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Arts &amp;amp; Health"],"DOI":"10.1080\/17533015.2025.2525334","type":"journal-article","created":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T11:25:35Z","timestamp":1751455535000},"page":"1-18","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":0,"title":["Exploring the use of musical activities implemented in home-based dementia care as part of the HOMESIDE study"],"prefix":"10.1080","author":[{"given":"Sarah","family":"Crabtree","sequence":"first","affiliation":[{"name":"King\u2019s College London","place":["London, UK"]},{"name":"Anglia Ruskin University - Cambridge Campus","place":["UK"]}]},{"given":"Felicity Anne","family":"Baker","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]},{"name":"University School of Physical Education","place":["Poland"]}]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[{"name":"University School of Physical Education in Krak\u00f3w","place":["Poland"]}]},{"given":"Ming-Hung","family":"Hsu","sequence":"additional","affiliation":[{"name":"Anglia Ruskin University - Cambridge Campus","place":["UK"]},{"name":"University School of Physical Education","place":["Poland"]}]},{"given":"Tone","family":"Kvamme","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]},{"name":"University School of Physical Education","place":["Poland"]}]},{"given":"Kate","family":"McMahon","sequence":"additional","affiliation":[]},{"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[{"name":"Anglia Ruskin University - Cambridge Campus","place":["UK"]}]},{"given":"Tanara","family":"Sousa","sequence":"additional","affiliation":[]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]}]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[{"name":"Technische Hochschule Wurzburg-Schweinfurt","place":["Germany"]}]},{"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[]}],"member":"301","published-online":{"date-parts":[[2025,7,2]]},"reference":[{"key":"e_1_3_5_2_1","unstructured":"Australian Government Department of Health and Aged Care. (2024 October 2). Dementia and cognition supplement for home care. https:\/\/www.health.gov.au\/topics\/aged-care\/providing-aged-care-services\/funding-for-aged-care-service-providers\/dementia-and-cognition-supplement-for-home-care"},{"key":"e_1_3_5_3_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-201580"},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-031332"},{"key":"e_1_3_5_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2666-7568(22)00027-7"},{"key":"e_1_3_5_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2023.102224"},{"key":"e_1_3_5_7_1","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_3_5_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2021.05.012"},{"key":"e_1_3_5_9_1","unstructured":"Brown L. Hansnata E. &amp; Anh La H. (2017). Economic cost of dementia in Australia 2016-2056. https:\/\/www.dementia.org.au\/the-economic-cost-of-dementiain- Australia-2016-to-2056.pdf"},{"key":"e_1_3_5_10_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0229923"},{"key":"e_1_3_5_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2016.1251571"},{"key":"e_1_3_5_12_1","doi-asserted-by":"publisher","DOI":"10.1080\/17533015.2019.1675732"},{"key":"e_1_3_5_13_1","unstructured":"Crabtree Sarah (2024) The rationale for the use of singing listening playing instruments and movement with music for people living with dementia. (Anglia Ruskin Research Online (ARRO))https:\/\/hdl.handle.net\/10779\/aru.26469829.v1"},{"key":"e_1_3_5_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/13594575251327948"},{"key":"e_1_3_5_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nurpra.2021.05.002"},{"issue":"3","key":"e_1_3_5_16_1","first-page":"197","article-title":"The personal benefits of musicking for people living with dementia: A thematic synthesis of the qualitative literature","volume":"10","author":"Dowlen R.","year":"2018","unstructured":"Dowlen, R., Keady, J., Milligan, C., Swarbrick, C., Ponsillo, N., Geddes, L., &amp; Riley, B. (2018). The personal benefits of musicking for people living with dementia: A thematic synthesis of the qualitative literature. Arts &amp; Health: An International Journal of Research, Policy and Practice, 10(3), 197\u2013212. psyh.","journal-title":"Arts &amp; Health: An International Journal of Research, Policy and Practice"},{"key":"e_1_3_5_17_1","unstructured":"EU Joint Action: Act on Dementia. (2020). NHS Scotland - global citizenship. https:\/\/www.scottishglobalhealth.org\/projects\/eu-joint-action-act-on-dementia\/"},{"key":"e_1_3_5_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218804728"},{"key":"e_1_3_5_19_1","doi-asserted-by":"publisher","DOI":"10.1080\/17533015.2010.481289"},{"key":"e_1_3_5_20_1","unstructured":"Hannan R. Thompson R. Worthington A. &amp; Rooney P. (2016). The triangle of care. https:\/\/www.england.nhs.uk\/wp-content\/uploads\/2017\/11\/case-study-supporting-well-carers-included.pdf"},{"key":"e_1_3_5_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.16004"},{"key":"e_1_3_5_22_1","unstructured":"International A. D. Guerchet M. Prince M. &amp; Prina M. (2020). Numbers of people with dementia worldwide: An update to the estimates in the world Alzheimer report 2015. https:\/\/www.alzint.org\/resource\/numbers-of-people-with-dementia-worldwide\/"},{"key":"e_1_3_5_23_1","doi-asserted-by":"publisher","DOI":"10.1093\/mtp\/miad015"},{"key":"e_1_3_5_24_1","volume-title":"Dementia reconsidered: The person comes first","author":"Kitwood T.","year":"1997","unstructured":"Kitwood, T. (1997). Dementia reconsidered: The person comes first (Vol. 20). Open University Press. https:\/\/books.google.com\/books?hl=en&amp;lr=&amp;id=9yxM5Q0BGGoC&amp;oi=fnd&amp;pg=PA89&amp;dq=kitwood+dementia+reconsidered&amp;ots=_LZZHMoixu &amp;sig=ptikcBowGRdLFPo2IdsRgeRnTYI"},{"key":"e_1_3_5_25_1","doi-asserted-by":"publisher","DOI":"10.3389\/fnins.2019.00132"},{"key":"e_1_3_5_26_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2020-002242"},{"key":"e_1_3_5_27_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2013.875124"},{"key":"e_1_3_5_28_1","doi-asserted-by":"publisher","DOI":"10.1080\/17533015.2022.2128381"},{"key":"e_1_3_5_29_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2023.1205784"},{"key":"e_1_3_5_30_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2020.00160"},{"key":"e_1_3_5_31_1","unstructured":"Music for Life | Wigmore Hall. (2025 November 21). https:\/\/www.wigmore-hall.org.uk\/learning-and-participation\/music-for-life"},{"key":"e_1_3_5_32_1","volume-title":"Recommendations | dementia: Assessment, management and support for people living with dementia and their carers | guidance | NICE","author":"NICE","year":"2018","unstructured":"NICE. (2018). Recommendations | dementia: Assessment, management and support for people living with dementia and their carers | guidance | NICE. https:\/\/www.nice.org.uk\/guidance\/ng97\/chapter\/Recommendations#pharmacological-interventions-for-dementia"},{"key":"e_1_3_5_33_1","doi-asserted-by":"publisher","DOI":"10.3390\/ejihpe12120127"},{"key":"e_1_3_5_34_1","unstructured":"Office for National Statistics. (2021). Older people living in care homes in 2021 and changes since 2011-office for national statistics. Older People Living in Care Homes in 2021 and Changes since 2011. https:\/\/www.ons.gov.uk\/peoplepopulationandcommunity\/birthsdeathsandmarriages\/ageing\/articles\/olderpeoplelivingincarehomesin2021andchangessince2011\/2023-10-09"},{"key":"e_1_3_5_35_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-170410"},{"key":"e_1_3_5_36_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.13558"},{"key":"e_1_3_5_37_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2013.790926"},{"key":"e_1_3_5_38_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610212002256"},{"key":"e_1_3_5_39_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-150453"},{"key":"e_1_3_5_40_1","doi-asserted-by":"publisher","DOI":"10.31389\/jltc.294"},{"key":"e_1_3_5_41_1","doi-asserted-by":"publisher","DOI":"10.3390\/neurolint13010001"},{"key":"e_1_3_5_42_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20042863"},{"key":"e_1_3_5_43_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD003477.pub4"},{"key":"e_1_3_5_44_1","doi-asserted-by":"publisher","DOI":"10.1093\/jmt\/thae008"},{"key":"e_1_3_5_45_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781526405555.n2"},{"key":"e_1_3_5_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/apa.12870"},{"key":"e_1_3_5_47_1","doi-asserted-by":"publisher","DOI":"10.1080\/08098131.2024.2435869"},{"key":"e_1_3_5_48_1","article-title":"Feasibility and effects of individualized recorded music for people with dementia: A pilot rct study","author":"Weise L.","year":"2019","unstructured":"Weise, L., T\u00f6pfer, N. F., Deux, J., &amp; Wilz, G. (2019). Feasibility and effects of individualized recorded music for people with dementia: A pilot rct study. Nordic Journal of Music Therapy. http:\/\/search.ebscohost.com\/login.aspx?direct=true&amp;db=psyh&amp;AN=2019-56400-001&amp;site=ehost-live","journal-title":"Nordic Journal of Music Therapy"},{"key":"e_1_3_5_49_1","volume-title":"Dementia","author":"World Health Organisation","year":"2023","unstructured":"World Health Organisation. (2023, 03). Dementia. Dementia. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia"},{"key":"e_1_3_5_50_1","unstructured":"World Health Organisation. (2025 March 31). Dementia. https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/dementia"}],"container-title":["Arts &amp;amp; Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/17533015.2025.2525334","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T11:25:39Z","timestamp":1751455539000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/17533015.2025.2525334"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,2]]},"references-count":49,"alternative-id":["10.1080\/17533015.2025.2525334"],"URL":"https:\/\/doi.org\/10.1080\/17533015.2025.2525334","relation":{},"ISSN":["1753-3015","1753-3023"],"issn-type":[{"value":"1753-3015","type":"print"},{"value":"1753-3023","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,2]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims &amp; Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&amp;journalCode=rahe20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&amp;journalCode=rahe20","order":2,"name":"aims_and_scope_url","label":"Aim &amp; Scope"},{"value":"2024-12-24","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-06-21","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-07-02","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">http://creativecommons.org/licenses/by/4.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PublisherName,TitleMain_1,Language,TitleParent_1,PageNumber,PageFirst,PageLast,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Sarah Crabtree</author>
    <author>Felicity Anne Baker</author>
    <author>Anna A. Bukowska</author>
    <author>Ming-Hung Hsu</author>
    <author>Tone Kvamme</author>
    <author>Kate McMahon</author>
    <author>Helen Odell-Miller</author>
    <author>Tanara Sousa</author>
    <author>Karette Stensæth</author>
    <author>Thomas Wosch</author>
    <author>Jeanette Tamplin</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6215</id>
    <completedYear/>
    <publishedYear>2024</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue>1</issue>
    <volume>10</volume>
    <type>article</type>
    <publisherName>Springer Science and Business Media LLC</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers</title>
    <abstract language="eng">Background&#13;
This study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that investigated music and reading interventions for people living with dementia and their family caregivers across five countries: Australia, Germany, Norway, Poland, and the UK. The aim was to capture experiences of PPI across the five countries, explore the benefits and challenges of PPI in dementia research, and identify contributions made to the study.&#13;
 &#13;
Methods&#13;
We surveyed PPI members and academic researchers who collaborated on the HOMESIDE study. The survey was co-designed through consultation with PPI members and academics, alongside a small scoping literature review. Survey questions covered four topics: (1) expectations for PPI, (2) perceived contributions of PPI to the research study, (3) benefits and challenges of PPI, and (4) recommendations for future PPI in dementia research.&#13;
 &#13;
Results&#13;
There were 23 responses, representing 50% of the PPI members (n = 16) and 29% of academics (n = 7). PPI was found to be beneficial to the research and individuals involved. Contributions to the research included supporting recruitment and publicity, advising on the design of participant-facing materials, guiding the design and delivery of the interventions, and identifying cultural differences affecting research delivery. PPI members benefited from building connections, sharing experiences and receiving support, learning about dementia and research, and gaining new unexpected experiences. Academics learned about the realities of living with dementia, which they felt informed and grounded their work. Several challenges were identified, including the need for clear expectations and objectives, inconsistency of PPI members across research stages, limitations of meeting online versus in-person, scheduling difficulties, and language barriers.&#13;
 &#13;
Conclusions&#13;
This study identifies important considerations for implementing PPI within dementia studies and international healthcare research more broadly. Our findings guided the development of five recommendations: (1) involve PPI members as early as possible and throughout the research process; (2) create a space for constructive criticism and feedback; (3) have clear tasks, roles, and expectations for PPI members; (4) involve PPI members with a diverse range of experiences and backgrounds; and (5) embed infrastructure and planning to support PPI.</abstract>
    <parentTitle language="eng">Research Involvement and Engagement</parentTitle>
    <identifier type="issn">2056-7529</identifier>
    <identifier type="doi">10.1186/s40900-024-00574-2</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,6]],"date-time":"2025-05-06T08:52:05Z","timestamp":1746521525840,"version":"3.37.3"},"reference-count":31,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,5,2]],"date-time":"2024-05-02T00:00:00Z","timestamp":1714608000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,5,2]],"date-time":"2024-05-02T00:00:00Z","timestamp":1714608000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100013278","name":"EU Joint Programme \u2013 Neurodegenerative Disease Research","doi-asserted-by":"publisher","award":["the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462).","the National Health and Medical Research Council, Australia (APP1169867); The Research Council of Norway (project no. 298995); Federal Ministry of Education and Research, Germany (01ED1901); The National Centre for Research and Development, Poland (JPND\/04\/2019); and Alzheimer\u2019s Society, UK (grant no. 462)."],"id":[{"id":"10.13039\/100013278","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010330","name":"Anglia Ruskin University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010330","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Res Involv Engagem"],"abstract":"&lt;jats:title&gt;Abstract&lt;\/jats:title&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Background&lt;\/jats:title&gt;\n                &lt;jats:p&gt;This study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that investigated music and reading interventions for people living with dementia and their family caregivers across five countries: Australia, Germany, Norway, Poland, and the UK. The aim was to capture experiences of PPI across the five countries, explore the benefits and challenges of PPI in dementia research, and identify contributions made to the study.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Methods&lt;\/jats:title&gt;\n                &lt;jats:p&gt;We surveyed PPI members and academic researchers who collaborated on the HOMESIDE study. The survey was co-designed through consultation with PPI members and academics, alongside a small scoping literature review. Survey questions covered four topics: (1) expectations for PPI, (2) perceived contributions of PPI to the research study, (3) benefits and challenges of PPI, and (4) recommendations for future PPI in dementia research.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Results&lt;\/jats:title&gt;\n                &lt;jats:p&gt;There were 23 responses, representing 50% of the PPI members (&lt;jats:italic&gt;n&lt;\/jats:italic&gt;\u2009=\u200916) and 29% of academics (&lt;jats:italic&gt;n&lt;\/jats:italic&gt;\u2009=\u20097). PPI was found to be beneficial to the research and individuals involved. Contributions to the research included supporting recruitment and publicity, advising on the design of participant-facing materials, guiding the design and delivery of the interventions, and identifying cultural differences affecting research delivery. PPI members benefited from building connections, sharing experiences and receiving support, learning about dementia and research, and gaining new unexpected experiences. Academics learned about the realities of living with dementia, which they felt informed and grounded their work. Several challenges were identified, including the need for clear expectations and objectives, inconsistency of PPI members across research stages, limitations of meeting online versus in-person, scheduling difficulties, and language barriers.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;&lt;jats:sec&gt;\n                &lt;jats:title&gt;Conclusions&lt;\/jats:title&gt;\n                &lt;jats:p&gt;This study identifies important considerations for implementing PPI within dementia studies and international healthcare research more broadly. Our findings guided the development of five recommendations: (1) involve PPI members as early as possible and throughout the research process; (2) create a space for constructive criticism and feedback; (3) have clear tasks, roles, and expectations for PPI members; (4) involve PPI members with a diverse range of experiences and backgrounds; and (5) embed infrastructure and planning to support PPI.&lt;\/jats:p&gt;\n              &lt;\/jats:sec&gt;","DOI":"10.1186\/s40900-024-00574-2","type":"journal-article","created":{"date-parts":[[2024,5,2]],"date-time":"2024-05-02T10:01:46Z","timestamp":1714644106000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers"],"prefix":"10.1186","volume":"10","author":[{"given":"Jodie","family":"Bloska","sequence":"first","affiliation":[]},{"given":"Sarah","family":"Crabtree","sequence":"additional","affiliation":[]},{"given":"Nina","family":"Wollersberger","sequence":"additional","affiliation":[]},{"given":"Oti","family":"Mitchell","sequence":"additional","affiliation":[]},{"given":"Jenny","family":"Coles","sequence":"additional","affiliation":[]},{"given":"Caroline","family":"Halsey","sequence":"additional","affiliation":[]},{"given":"Geraldine","family":"Parry","sequence":"additional","affiliation":[]},{"given":"Robert","family":"Stewart","sequence":"additional","affiliation":[]},{"given":"Susan","family":"Thacker","sequence":"additional","affiliation":[]},{"given":"Mark","family":"Thacker","sequence":"additional","affiliation":[]},{"given":"Leica","family":"Claydon-Mueller","sequence":"additional","affiliation":[]},{"given":"Yvette","family":"Winnard","sequence":"additional","affiliation":[]},{"given":"Kate","family":"McMahon","sequence":"additional","affiliation":[]},{"given":"Carina","family":"Petrowitz","sequence":"additional","affiliation":[]},{"given":"Agnieszka","family":"Smrokowska-Reichmann","sequence":"additional","affiliation":[]},{"given":"Beatrix","family":"van Doorn","sequence":"additional","affiliation":[]},{"given":"Felicity A.","family":"Baker","sequence":"additional","affiliation":[]},{"given":"Laura","family":"Blauth","sequence":"additional","affiliation":[]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[]},{"given":"Karette","family":"Stens\u00e6th","sequence":"additional","affiliation":[]},{"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[]},{"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2024,5,2]]},"reference":[{"key":"574_CR1","unstructured":"NIHR. Briefing notes for researchers - public involvement in NHS, health and social care research. National Institute for Health and Care Research; 2021. https:\/\/www.nihr.ac.uk\/documents\/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research\/27371. Accessed 2 May 2023."},{"key":"574_CR2","doi-asserted-by":"publisher","first-page":"163","DOI":"10.1177\/0894318403251793251793","volume":"16","author":"TF Moore","year":"2003","unstructured":"Moore TF, Hollett J. Giving voice to persons living with dementia: the researcher\u2019s opportunities and challenges. Nurs Sci Q. 2003;16:163\u20137. https:\/\/doi.org\/10.1177\/0894318403251793251793.","journal-title":"Nurs Sci Q"},{"key":"574_CR3","unstructured":"NHS. People-Centred clinical research infographic. NHS Health Research Authority; 2023. https:\/\/www.hra.nhs.uk\/planning-and-improving-research\/best-practice\/people-centred-clinical-research\/people-centred-clinical-research-infographic\/. Accessed 1 Nov 2023."},{"key":"574_CR4","doi-asserted-by":"publisher","first-page":"6","DOI":"10.1186\/s40900-015-0008-5","volume":"1","author":"K Staley","year":"2015","unstructured":"Staley K. \u201cIs it worth doing?\u201d Measuring the impact of patient and public involvement in research. Res Involv Engagem. 2015;1:6. https:\/\/doi.org\/10.1186\/s40900-015-0008-5.","journal-title":"Res Involv Engagem"},{"key":"574_CR5","doi-asserted-by":"publisher","first-page":"1918","DOI":"10.1111\/hex.12204","volume":"18","author":"E Pizzo","year":"2015","unstructured":"Pizzo E, Doyle C, Matthews R, Barlow J. Patient and public involvement: how much do we spend and what are the benefits? Health Expect. 2015;18:1918\u201326. https:\/\/doi.org\/10.1111\/hex.12204.","journal-title":"Health Expect"},{"key":"574_CR6","doi-asserted-by":"publisher","first-page":"63","DOI":"10.1186\/s40900-020-00239-w","volume":"6","author":"J Russell","year":"2020","unstructured":"Russell J, Fudge N, Greenhalgh T. The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it? Res Involv Engagem. 2020;6:63. https:\/\/doi.org\/10.1186\/s40900-020-00239-w.","journal-title":"Res Involv Engagem"},{"key":"574_CR7","doi-asserted-by":"publisher","first-page":"637","DOI":"10.1111\/j.1369-7625.2012.00795.x","volume":"17","author":"J Brett","year":"2014","unstructured":"Brett J, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. 2014;17:637\u201350. https:\/\/doi.org\/10.1111\/j.1369-7625.2012.00795.x.","journal-title":"Health Expect"},{"key":"574_CR8","doi-asserted-by":"publisher","first-page":"1231","DOI":"10.1111\/hex.12952","volume":"22","author":"F Poland","year":"2019","unstructured":"Poland F, Charlesworth G, Leung P, Birt L. Embedding patient and public involvement: Managing tacit and explicit expectations. Health Expect. 2019;22:1231\u20139. https:\/\/doi.org\/10.1111\/hex.12952.","journal-title":"Health Expect"},{"key":"574_CR9","doi-asserted-by":"publisher","first-page":"17","DOI":"10.1080\/14719037.2014.881535","volume":"17","author":"A Renedo","year":"2015","unstructured":"Renedo A, Marston CA, Spyridonidis D, Barlow J. Patient and public involvement in healthcare quality improvement: how organizations can help patients and professionals to collaborate. Public Manag Rev. 2015;17:17\u201334. https:\/\/doi.org\/10.1080\/14719037.2014.881535.","journal-title":"Public Manag Rev"},{"key":"574_CR10","doi-asserted-by":"publisher","first-page":"944","DOI":"10.1177\/1471301218789292","volume":"17","author":"J Bethell","year":"2018","unstructured":"Bethell J, Commisso E, Rostad HM, Puts M, Babineau J, Grinbergs-Saull A, et al. Patient engagement in research related to dementia: a scoping review. Dementia. 2018;17:944\u201375. https:\/\/doi.org\/10.1177\/1471301218789292.","journal-title":"Dementia"},{"key":"574_CR11","doi-asserted-by":"publisher","first-page":"637000","DOI":"10.3389\/fneur.2021.637000","volume":"12","author":"J Miah","year":"2021","unstructured":"Miah J, Sheikh S, Francis RC, Nagarajan G, Antony S, Tahir M, et al. Patient and public involvement for dementia research in low- and middle-income countries: developing capacity and capability in South Asia. Front Neurol. 2021;12:637000. https:\/\/doi.org\/10.3389\/fneur.2021.637000.","journal-title":"Front Neurol"},{"key":"574_CR12","doi-asserted-by":"publisher","first-page":"205","DOI":"10.1093\/geront\/33.2.205","volume":"33","author":"V Cotrell","year":"1993","unstructured":"Cotrell V, Schulz R. The perspective of the patient with Alzheimer\u2019s disease: a neglected dimension of dementia research. Gerontologist. 1993;33:205\u201311. https:\/\/doi.org\/10.1093\/geront\/33.2.205.","journal-title":"Gerontologist"},{"key":"574_CR13","doi-asserted-by":"publisher","first-page":"18","DOI":"10.1111\/hsc.13111","volume":"29","author":"MSY Biddle","year":"2021","unstructured":"Biddle MSY, Gibson A, Evans D. Attitudes and approaches to patient and public involvement across Europe: a systematic review. Health Soc Care Community. 2021;29:18\u201327. https:\/\/doi.org\/10.1111\/hsc.13111.","journal-title":"Health Soc Care Community"},{"key":"574_CR14","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1111\/hex.12007","volume":"18","author":"J Boote","year":"2015","unstructured":"Boote J, Wong R, Booth A. \u201cTalking the talk or walking the walk?\u201d A bibliometric review of the literature on public involvement in health research published between 1995 and 2009. Health Expect. 2015;18:44\u201357. https:\/\/doi.org\/10.1111\/hex.12007.","journal-title":"Health Expect"},{"key":"574_CR15","doi-asserted-by":"publisher","first-page":"m4478","DOI":"10.1136\/bmj.m4478","volume":"371","author":"S Crutch","year":"2020","unstructured":"Crutch S, Herron D, Pickett J, Rosser S, Rossor M, Created Out of Mind team. Inspired by chance: valuing patients\u2019 informal contributions to research. BMJ. 2020;371:m4478. https:\/\/doi.org\/10.1136\/bmj.m4478.","journal-title":"BMJ"},{"key":"574_CR16","doi-asserted-by":"publisher","first-page":"14","DOI":"10.1186\/s40900-019-0147-1","volume":"5","author":"K Staley","year":"2019","unstructured":"Staley K, Barron D. Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation? Res Involv Engagem. 2019;5:14. https:\/\/doi.org\/10.1186\/s40900-019-0147-1.","journal-title":"Res Involv Engagem"},{"key":"574_CR17","doi-asserted-by":"publisher","DOI":"10.1007\/s40271-020-00445-4","author":"H Al-Janabi","year":"2020","unstructured":"Al-Janabi H, Coles J, Copping J, Dhanji N, McLoughlin C, Murphy J, et al. Patient and Public Involvement (PPI) in Health Economics Methodology Research: Reflections and Recommendations. Patient. 2020. https:\/\/doi.org\/10.1007\/s40271-020-00445-4.","journal-title":"Patient"},{"key":"574_CR18","doi-asserted-by":"publisher","unstructured":"Madden M, Speed E. Beware zombies and unicorns: toward critical patient and public involvement in health research in a neoliberal context. Front Sociol. 2017;2. https:\/\/doi.org\/10.3389\/fsoc.2017.00007.","DOI":"10.3389\/fsoc.2017.00007"},{"key":"574_CR19","doi-asserted-by":"publisher","first-page":"153","DOI":"10.1111\/hex.12038","volume":"18","author":"A Conklin","year":"2015","unstructured":"Conklin A, Morris Z, Nolte E. What is the evidence base for public involvement in health-care policy?: results of a systematic scoping review. Health Expect. 2015;18:153\u201365. https:\/\/doi.org\/10.1111\/hex.12038.","journal-title":"Health Expect"},{"key":"574_CR20","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1186\/s40900-020-00224-3","volume":"6","author":"PARTNERS2 writing collective","year":"2020","unstructured":"PARTNERS2 writing collective. Exploring patient and public involvement (PPI) and co-production approaches in mental health research: learning from the PARTNERS2 research programme. Res Involv Engagem. 2020;6:56. https:\/\/doi.org\/10.1186\/s40900-020-00224-3.","journal-title":"Res Involv Engagem"},{"key":"574_CR21","doi-asserted-by":"publisher","unstructured":"Baker FA, Pac Soo V, Bloska J, Blauth L, Bukowska AA, Flynn L, et al. Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial. eClinicalMedicine; 2023. https:\/\/doi.org\/10.1016\/j.eclinm.2023.102224.","DOI":"10.1016\/j.eclinm.2023.102224"},{"key":"574_CR22","unstructured":"Homeside - Partnership in dementia care; 2020. https:\/\/www.homesidestudy.eu. Accessed 1 Nov 2023."},{"key":"574_CR23","doi-asserted-by":"publisher","first-page":"1185818","DOI":"10.3389\/fmed.2023.1185818","volume":"10","author":"Z Thompson","year":"2023","unstructured":"Thompson Z, Tamplin J, Vieira Sousa T, Carrasco R, Flynn L, Lamb KE, et al. Content development and validation for a mobile application designed to train family caregivers in the use of music to support care of people living with dementia. Front Med. 2023;10:1185818. https:\/\/doi.org\/10.3389\/fmed.2023.1185818.","journal-title":"Front Med"},{"key":"574_CR24","doi-asserted-by":"publisher","first-page":"261","DOI":"10.1093\/intqhc\/mzg031","volume":"15","author":"K Kelley","year":"2003","unstructured":"Kelley K, Clark B, Brown V, Sitzia J. Good practice in the conduct and reporting of survey research. Int J Qual Health Care. 2003;15:261\u20136. https:\/\/doi.org\/10.1093\/intqhc\/mzg031.","journal-title":"Int J Qual Health Care"},{"key":"574_CR25","doi-asserted-by":"publisher","first-page":"j3453","DOI":"10.1136\/bmj.j3453","volume":"358","author":"S Staniszewska","year":"2017","unstructured":"Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453. https:\/\/doi.org\/10.1136\/bmj.j3453.","journal-title":"BMJ"},{"key":"574_CR26","first-page":"659","volume-title":"Music therapy research","author":"SL Curtis","year":"2016","unstructured":"Curtis SL. Survey research. In: Wheeler BL, Murphy KM, editors. Music therapy research. 3rd ed. Dallas: Barcelona Publishers; 2016. p. 659\u201374.","edition":"3"},{"key":"574_CR27","unstructured":"Online Surveys. Jisc, Bristol, UK. 2023. https:\/\/www.onlinesurveys.ac.uk."},{"key":"574_CR28","doi-asserted-by":"publisher","first-page":"237","DOI":"10.1177\/1098214005283748","volume":"27","author":"DR Thomas","year":"2006","unstructured":"Thomas DR. A General inductive approach for analyzing qualitative evaluation data. Am J Eval. 2006;27:237\u201346. https:\/\/doi.org\/10.1177\/1098214005283748.","journal-title":"Am J Eval"},{"key":"574_CR29","doi-asserted-by":"publisher","first-page":"489","DOI":"10.1177\/14713012211047350","volume":"21","author":"E Dodd","year":"2022","unstructured":"Dodd E, Ismail S, Christopher G, Wildschut T, Sedikides C, Cheston R. Nostalgic conversations: the co-production of an intervention package for people living with dementia and their spouse. Dementia. 2022;21:489\u2013502. https:\/\/doi.org\/10.1177\/14713012211047350.","journal-title":"Dementia"},{"key":"574_CR30","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1108\/QAOA-03-2023-0019","volume":"25","author":"JC Hedd","year":"2023","unstructured":"Hedd JC, Seddon D, Algar-Skaife K, Maddock C, Green S. Involving older adults and unpaid carers in the research cycle: reflections on implementing the UK national standards for public involvement into practice. Qual Ageing Older Adults. 2023;25:44\u201355. https:\/\/doi.org\/10.1108\/QAOA-03-2023-0019.","journal-title":"Qual Ageing Older Adults"},{"key":"574_CR31","unstructured":"NIHR. Payment guidance for researchers and professionals, version 1.4. National Institute for Health and Care Research. 2023. https:\/\/www.nihr.ac.uk\/documents\/payment-guidance-for-researchers-and-professionals\/27392. Accessed 3 October 2023."}],"container-title":["Research Involvement and Engagement"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-024-00574-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s40900-024-00574-2\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-024-00574-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,5,2]],"date-time":"2024-05-02T10:06:48Z","timestamp":1714644408000},"score":1,"resource":{"primary":{"URL":"https:\/\/researchinvolvement.biomedcentral.com\/articles\/10.1186\/s40900-024-00574-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,5,2]]},"references-count":31,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["574"],"URL":"https:\/\/doi.org\/10.1186\/s40900-024-00574-2","relation":{},"ISSN":["2056-7529"],"issn-type":[{"type":"electronic","value":"2056-7529"}],"subject":[],"published":{"date-parts":[[2024,5,2]]},"assertion":[{"value":"4 November 2023","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"18 April 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"2 May 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Ethical approval for the survey was obtained from the Anglia Ruskin University Cambridge School of Creative Industries School Research Ethics Panel in May 2022. Participants were provided with a Participant Information Sheet outlining the study and the use and storage of their data. Participants had to consent to taking part prior to accessing and completing the survey.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Participants consented to the publication of the anonymous data they provided prior to taking part in the survey. The details of this were indicated on the Participant Information Sheet and Participant Consent Form.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"43"}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by/4.0</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PersonAuthorFirstName_11,PersonAuthorLastName_11,PersonAuthorFirstName_12,PersonAuthorLastName_12,PersonAuthorFirstName_13,PersonAuthorLastName_13,PersonAuthorFirstName_14,PersonAuthorLastName_14,PersonAuthorFirstName_15,PersonAuthorLastName_15,PersonAuthorFirstName_16,PersonAuthorLastName_16,PersonAuthorFirstName_17,PersonAuthorLastName_17,PersonAuthorFirstName_18,PersonAuthorLastName_18,PersonAuthorFirstName_19,PersonAuthorLastName_19,PersonAuthorFirstName_20,PersonAuthorLastName_20,PersonAuthorFirstName_21,PersonAuthorLastName_21,PersonAuthorFirstName_22,PersonAuthorLastName_22,PersonAuthorFirstName_23,PersonAuthorLastName_23,PublisherName,TitleMain_1,Language,TitleAbstract_1,TitleParent_1,ArticleNumber,Issue,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Jodie Bloska</author>
    <author>Sarah Crabtree</author>
    <author>Nina Wollersberger</author>
    <author>Oti Mitchell</author>
    <author>Jenny Coles</author>
    <author>Caroline Halsey</author>
    <author>Geraldine Parry</author>
    <author>Robert Stewart</author>
    <author>Susan Thacker</author>
    <author>Mark Thacker</author>
    <author>Leica Claydon-Mueller</author>
    <author>Yvette Winnard</author>
    <author>Kate McMahon</author>
    <author>Carina Petrowitz</author>
    <author>Agnieszka Smrokowska-Reichmann</author>
    <author>Beatrix van Doorn</author>
    <author>Felicity A. Baker</author>
    <author>Laura Blauth</author>
    <author>Anna A. Bukowska</author>
    <author>Karette Stensæth</author>
    <author>Jeanette Tamplin</author>
    <author>Thomas Wosch</author>
    <author>Helen Odell-Miller</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6221</id>
    <completedYear/>
    <publishedYear>2023</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst/>
    <pageLast/>
    <pageNumber/>
    <edition/>
    <issue>4</issue>
    <volume>20</volume>
    <type>article</type>
    <publisherName>MDPI AG</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia—An Adapted Convergent Mixed Methods Study</title>
    <abstract language="eng">Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study’s aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.</abstract>
    <parentTitle language="eng">International Journal of Environmental Research and Public Health</parentTitle>
    <identifier type="issn">1660-4601</identifier>
    <identifier type="doi">10.3390/ijerph20042863</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,2]],"date-time":"2025-08-02T04:24:39Z","timestamp":1754108679187,"version":"3.37.3"},"reference-count":43,"publisher":"MDPI AG","issue":"4","license":[{"start":{"date-parts":[[2023,2,6]],"date-time":"2023-02-06T00:00:00Z","timestamp":1675641600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Norwegian Research Counsil","award":["298995"]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"crossref","award":["APP1169867"],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100002347","name":"Federal Ministry of Education and Research","doi-asserted-by":"crossref","award":["01ED1901"],"id":[{"id":"10.13039\/501100002347","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100005632","name":"National Centre for Research and Development","doi-asserted-by":"crossref","award":["JPND\/04\/2019"],"id":[{"id":"10.13039\/501100005632","id-type":"DOI","asserted-by":"crossref"}]},{"name":"The National Centre for Research and Development and Alzheimer\u2019s Society, UK","award":["462"]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"&lt;jats:p&gt;Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study\u2019s aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.&lt;\/jats:p&gt;","DOI":"10.3390\/ijerph20042863","type":"journal-article","created":{"date-parts":[[2023,2,7]],"date-time":"2023-02-07T06:56:48Z","timestamp":1675753008000},"page":"2863","source":"Crossref","is-referenced-by-count":18,"title":["The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia\u2014An Adapted Convergent Mixed Methods Study"],"prefix":"10.3390","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9187-9705","authenticated-orcid":false,"given":"Kristi","family":"Stedje","sequence":"first","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Tone S\u00e6ther","family":"Kvamme","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Kjersti","family":"Johansson","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0553-5077","authenticated-orcid":false,"given":"Tanara Vieira","family":"Sousa","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4903-1417","authenticated-orcid":false,"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[{"name":"Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge CB1 1PT, UK"}]},{"given":"Karette Annie","family":"Stens\u00e6th","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"}]},{"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[{"name":"Institute of Applied Sciences, University of Physical Education in Krakow, 31-571 Krakow, Poland"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3623-033X","authenticated-orcid":false,"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[{"name":"Music Therapy Lab, Institute for Applied Social Sciences, University of Applied Sciences W\u00fcrzburg-Schweinfurt, 97072 W\u00fcrzburg, Germany"}]},{"given":"Felicity Anne","family":"Baker","sequence":"additional","affiliation":[{"name":"Centre for Research in Music and Health, Norwegian Academy of Music, 0369 Oslo, Norway"},{"name":"Creative Arts and Music Therapy Research Unit, The University of Melbourne, Melbourne, VIC 3010, Australia"}]}],"member":"1968","published-online":{"date-parts":[[2023,2,6]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"413","DOI":"10.1016\/S0140-6736(20)30367-6","article-title":"Dementia prevention, intervention, and care: 2020 report of the Lancet Commission","volume":"396","author":"Livingston","year":"2020","journal-title":"Lancet"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"1411","DOI":"10.1080\/13607863.2019.1617238","article-title":"The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: Findings from the IDEAL study","volume":"24","author":"Rippon","year":"2020","journal-title":"Aging Ment. Health"},{"key":"ref_3","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1080\/13607863.2019.1695741","article-title":"Exploring the needs of people with dementia living at home reported by people with dementia and informal caregivers: A systematic review and Meta-analysis","volume":"25","author":"Curnow","year":"2021","journal-title":"Aging Ment. Health"},{"key":"ref_4","first-page":"14713012221137280","article-title":"Influential factors of spousal relationship quality in couples living with dementia-A narrative synthesis systematic review","volume":"22","author":"Stedje","year":"2022","journal-title":"Dementia"},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"429","DOI":"10.1192\/bjp.bp.114.153684","article-title":"Behavioural and psychological symptoms in dementia and the challenges for family carers: Systematic review","volume":"208","author":"Feast","year":"2016","journal-title":"Br. J. Psychiatry"},{"key":"ref_6","doi-asserted-by":"crossref","unstructured":"Bruinsma, J., Peetoom, K., Millenaar, J., K\u00f6hler, S., Bakker, C., Koopmans, R., Pijnenburg, Y., Verhey, F., and de Vugt, M. (2020). The quality of the relationship perceived by spouses of people with young-onset dementia. Int. Psychogeriatr., 1\u201310.","DOI":"10.1017\/S1041610220000332"},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"148","DOI":"10.1097\/WAD.0b013e318221ba23","article-title":"Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses","volume":"26","author":"Clare","year":"2012","journal-title":"Alzheimer Dis. Assoc. Disord."},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1002\/gps.807","article-title":"Behavioural disturbances in dementia patients and quality of the marital relationship","volume":"18","author":"Stevens","year":"2003","journal-title":"Int. J. Geriatr. Psychiatry"},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"2158","DOI":"10.1177\/1471301217744597","article-title":"Experiences of loss and relationship quality in couples living with dementia","volume":"18","author":"Colquhoun","year":"2019","journal-title":"Dementia"},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"976","DOI":"10.1177\/0193945907303086","article-title":"Marital Quality in the Context of Mild Cognitive Impairment","volume":"29","author":"Garand","year":"2007","journal-title":"West. J. Nurs. Res."},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1080\/13607860500114555","article-title":"Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples","volume":"9","author":"Robinson","year":"2005","journal-title":"Aging Ment. Health"},{"key":"ref_12","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1016\/j.jaging.2017.01.003","article-title":"\u2018In this together\u2019 or \u2018Going it alone\u2019: Spousal dyad approaches to Alzheimer\u2019s","volume":"40","author":"Daley","year":"2017","journal-title":"J. Aging Stud."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1177\/1471301205049188","article-title":"\u2018We do things together\u2019: A case study of \u2018couplehood\u2019 in dementia","volume":"4","author":"Nolan","year":"2005","journal-title":"Dementia"},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1177\/1471301207081571","article-title":"Sustaining \u2018couplehood\u2019: Spouses\u2019 strategies for living positively with dementia","volume":"6","author":"Nolan","year":"2007","journal-title":"Dementia"},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"483","DOI":"10.1177\/1471301211421070","article-title":"The co-construction of couplehood in dementia","volume":"11","author":"Molyneaux","year":"2012","journal-title":"Dementia"},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"488","DOI":"10.1017\/S0144686X1700109X","article-title":"Love between couples living with Alzheimer\u2019s disease: Narratives of spouse care-givers","volume":"39","author":"Shavit","year":"2019","journal-title":"Ageing Soc."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"e12299","DOI":"10.1111\/opn.12299","article-title":"The value of \u201cus\u201d-Expressions of togetherness in couples where one spouse has dementia","volume":"15","author":"Swall","year":"2020","journal-title":"Int. J. Older People Nurs."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"100832","DOI":"10.1016\/j.jaging.2020.100832","article-title":"Buffer or Blade: Perceived relationship closeness in couples navigating Alzheimer\u2019s","volume":"52","author":"Gallagher","year":"2020","journal-title":"J. Aging Stud."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"1794","DOI":"10.1177\/1471301218805895","article-title":"A qualitative study of the shared experience of humour between people living with dementia and their partners","volume":"19","author":"Hickman","year":"2018","journal-title":"Dementia"},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1177\/1471301208091164","article-title":"Engagement in activities: Experiences of persons with dementia and their caregiving spouses","volume":"7","author":"Josephsson","year":"2008","journal-title":"Dementia"},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"199","DOI":"10.1177\/1471301216639424","article-title":"The role of music in the lives of older adults with dementia ageing in place: A scoping review","volume":"17","author":"Elliott","year":"2018","journal-title":"Dementia"},{"key":"ref_22","doi-asserted-by":"crossref","unstructured":"McMahon, K., Clark, I.N., Stens\u00e6th, K., Wosch, T., Odell Miller, H., Bukowska, A., and Baker, F.A. (2022). A qualitative systematic review of the experiences of sharing music for people living with dementia and their family care partners: The thread of connection. Arts Health, 1\u201328.","DOI":"10.1080\/17533015.2022.2128381"},{"key":"ref_23","doi-asserted-by":"crossref","unstructured":"Baird, A., Garrido, S., and Tamplin, J. (2020). Music and Dementia. From Cognition to Therapy, Oxford University Press.","DOI":"10.1093\/oso\/9780190075934.001.0001"},{"key":"ref_24","first-page":"4","article-title":"Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia","volume":"23","author":"Baker","year":"2012","journal-title":"Aust. J. Music. Ther."},{"key":"ref_25","first-page":"1","article-title":"Pilot study of a modular music intervention: A first evaluation of the use of basic elements of music to support interaction between family caregivers and their relatives with dementia","volume":"32","author":"Thurn","year":"2021","journal-title":"Aust. J. Music. Ther."},{"key":"ref_26","doi-asserted-by":"crossref","first-page":"1812","DOI":"10.3390\/ejihpe12120127","article-title":"The HOMESIDE music Intervention: A training protocol for family carers of people living with dementia","volume":"12","author":"Blauth","year":"2022","journal-title":"Eur. J. Investig. Health Psychol. Educ."},{"key":"ref_27","doi-asserted-by":"crossref","first-page":"215","DOI":"10.3389\/fmed.2018.00215","article-title":"\u201cOpening Our Time Capsule\u201d\u2014Creating an individualized music and other memory cues database to promote communication between spouses and people with dementia during visits to a nursing home","volume":"5","author":"Dassa","year":"2018","journal-title":"Front. Med."},{"key":"ref_28","first-page":"31","article-title":"Community music therapy to support the relationship between family carers and people living with dementia: A pilot project","volume":"16","author":"Allan","year":"2018","journal-title":"N. Z. J. Music Ther."},{"key":"ref_29","doi-asserted-by":"crossref","unstructured":"Clark, I.N., Stretton-Smith, P.A., Baker, F.A., Lee, Y.-E.C., and Tamplin, J. (2020). \u201cIt\u2019s feasible to write a song\u201d: A feasibility study examining group therapeutic songwriting for people living with dementia and their family caregivers. Front. Psychol., 11.","DOI":"10.3389\/fpsyg.2020.01951"},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"598979","DOI":"10.3389\/fpsyg.2021.598979","article-title":"\u201cDoing things together is what it\u2019s about\u201d: An interpretative phenomenological analysis of the experience of group therapeutic songwriting from the perspectives of people with dementia and their family caregivers","volume":"12","author":"Clark","year":"2021","journal-title":"Front. Psychol."},{"key":"ref_31","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1348\/147608302320365208","article-title":"The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients","volume":"75","author":"Spruytte","year":"2002","journal-title":"Psychol. Psychother. Theory Res. Pract."},{"key":"ref_32","doi-asserted-by":"crossref","first-page":"e031332","DOI":"10.1136\/bmjopen-2019-031332","article-title":"HOMESIDE: Home-based family caregiver-delivered music and reading interventions for people living with dementia: Protocol of a randomised controlled trial","volume":"9","author":"Baker","year":"2019","journal-title":"BMJ Open"},{"key":"ref_33","unstructured":"Creswell, J.W., and Plano Clark, V.L. (2018). Designing and Conducting Mixed Methods Research, Sage. [3rd ed.]."},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"210","DOI":"10.1111\/j.1532-5415.1998.tb02542.x","article-title":"Assessing the impact of neuropsychiatric symptoms in Alzheimer\u2019s disease: The Neuropsychiatric Inventory Caregiver Distress Scale","volume":"46","author":"Kaufer","year":"1998","journal-title":"J. Am. Geriatr. Soc."},{"key":"ref_35","unstructured":"Kitwood, T. (1997). Dementia Reconsidered: The Person Comes First, Open University Press."},{"key":"ref_36","unstructured":"Ridder, H.M. (2003). Singing Dialogue: Music Therapy with Persons in Advanced Stages of Dementia. A Case Study Design. [Ph.D. Thesis, Aalborg University]."},{"key":"ref_37","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1053\/apnr.2000.9231","article-title":"An examination of psychometric properties of the Mini-Mental State Examination and the Standardized Mini-Mental State Examination: Implications for clinical practice","volume":"13","author":"Pangman","year":"2000","journal-title":"Appl. Nurs. Res."},{"key":"ref_38","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","article-title":"Research electronic data capture (REDCap)\u2013A metadata-driven methodology and workflow process for providing translational research informatics support","volume":"42","author":"Harris","year":"2009","journal-title":"J. Biomed. Inform."},{"key":"ref_39","doi-asserted-by":"crossref","first-page":"103208","DOI":"10.1016\/j.jbi.2019.103208","article-title":"The REDCap consortium: Building an international community of software partners","volume":"95","author":"Harris","year":"2019","journal-title":"J. Biomed. Inform."},{"key":"ref_40","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1177\/16094069211047066","article-title":"Making qualitative interviews in music therapy research more accessible for participants living with dementia\u2013Reflections on development and implementation of interview guidelines","volume":"20","author":"Thompson","year":"2021","journal-title":"Int. J. Qual. Methods"},{"key":"ref_41","doi-asserted-by":"crossref","unstructured":"Braun, V., and Clarke, V. (2022). Thematic Analysis. A Practical Guide, Sage.","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"ref_42","doi-asserted-by":"crossref","first-page":"329","DOI":"10.1177\/153331750101600601","article-title":"Progressive dementia: Personal and relational impact on caregiving wives","volume":"16","author":"Bauer","year":"2001","journal-title":"Am. J. Alzheimer\u2019s Dis. Other Dement."},{"key":"ref_43","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1111\/j.1741-3729.2001.00087.x","article-title":"A Couplehood Typology for spouses of institutionalized persons with Alzheimer\u2019s disease: Perceptions of \u201cwe\u201d\u2013\u201cI\u201d","volume":"50","author":"Kaplan","year":"2001","journal-title":"Fam. Relat."}],"container-title":["International Journal of Environmental Research and Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/1660-4601\/20\/4\/2863\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,6]],"date-time":"2025-01-06T07:15:37Z","timestamp":1736147737000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/1660-4601\/20\/4\/2863"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2,6]]},"references-count":43,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2023,2]]}},"alternative-id":["ijerph20042863"],"URL":"https:\/\/doi.org\/10.3390\/ijerph20042863","relation":{},"ISSN":["1660-4601"],"issn-type":[{"type":"electronic","value":"1660-4601"}],"subject":[],"published":{"date-parts":[[2023,2,6]]}}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">https://creativecommons.org/licenses/by/4.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorIdentifierOrcid_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorIdentifierOrcid_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorIdentifierOrcid_8,PersonAuthorFirstName_9,PersonAuthorLastName_9,PersonAuthorFirstName_10,PersonAuthorLastName_10,PublisherName,TitleMain_1,Language,TitleAbstract_1,TitleParent_1,ArticleNumber,Issue,Volume,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Kristi Stedje</author>
    <author>Tone Sæther Kvamme</author>
    <author>Kjersti Johansson</author>
    <author>Tanara Vieira Sousa</author>
    <author>Helen Odell-Miller</author>
    <author>Karette Annie Stensæth</author>
    <author>Anna A. Bukowska</author>
    <author>Jeanette Tamplin</author>
    <author>Thomas Wosch</author>
    <author>Felicity Anne Baker</author>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
  <doc>
    <id>6212</id>
    <completedYear/>
    <publishedYear>2025</publishedYear>
    <thesisYearAccepted/>
    <language>eng</language>
    <pageFirst>1</pageFirst>
    <pageLast>18</pageLast>
    <pageNumber>18</pageNumber>
    <edition/>
    <issue/>
    <volume/>
    <type>article</type>
    <publisherName>Informa UK Limited</publisherName>
    <publisherPlace/>
    <creatingCorporation/>
    <contributingCorporation/>
    <belongsToBibliography>1</belongsToBibliography>
    <completedDate>--</completedDate>
    <publishedDate>--</publishedDate>
    <thesisDateAccepted>--</thesisDateAccepted>
    <title language="eng">Music therapy approaches to support relationship quality in couples living with dementia: A hermeneutic-phenomenological study of music therapists’ reflections</title>
    <parentTitle language="eng">Nordic Journal of Music Therapy</parentTitle>
    <identifier type="issn">0809-8131</identifier>
    <identifier type="doi">10.1080/08098131.2025.2497805</identifier>
    <enrichment key="opus_doi_flag">true</enrichment>
    <enrichment key="opus_import_data">{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,6,10]],"date-time":"2025-06-10T09:10:10Z","timestamp":1749546610172,"version":"3.41.0"},"reference-count":51,"publisher":"Informa UK Limited","license":[{"start":{"date-parts":[[2025,5,22]],"date-time":"2025-05-22T00:00:00Z","timestamp":1747872000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100002347","name":"Bundesministerium f\u00fcr Bildung und Forschung","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100002347","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Neurodegenerative Disease Research"},{"DOI":"10.13039\/501100003921","name":"Australian Government Department of Health and Aged Care","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100003921","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Australian Government National Health and Medical Research Council","award":["APP1169867"]},{"DOI":"10.13039\/501100005416","name":"Norges Forskningsr\u00e5d","doi-asserted-by":"crossref","award":["298995"],"id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"crossref"}]},{"name":"The national centre for research and development, Poland","award":["JPND\/04\/2019"]}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Nordic Journal of Music Therapy"],"DOI":"10.1080\/08098131.2025.2497805","type":"journal-article","created":{"date-parts":[[2025,5,22]],"date-time":"2025-05-22T09:30:16Z","timestamp":1747906216000},"page":"1-18","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":0,"title":["Music therapy approaches to support relationship quality in couples living with dementia: A hermeneutic-phenomenological study of music therapists\u2019 reflections"],"prefix":"10.1080","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9187-9705","authenticated-orcid":false,"given":"Kristi","family":"Stedje","sequence":"first","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9572-2871","authenticated-orcid":false,"given":"Tone","family":"S\u00e6ther Kvamme","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4903-1417","authenticated-orcid":false,"given":"Helen","family":"Odell-Miller","sequence":"additional","affiliation":[{"name":"Anglia Ruskin University","place":["Cambridge, UK"]}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3426-2282","authenticated-orcid":false,"given":"Karette A.","family":"Stens\u00e6th","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1840-3070","authenticated-orcid":false,"given":"Anna A.","family":"Bukowska","sequence":"additional","affiliation":[{"name":"University of Physical Education in Krakow","place":["Krak\u00f3w, Poland"]}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3623-033X","authenticated-orcid":false,"given":"Jeanette","family":"Tamplin","sequence":"additional","affiliation":[{"name":"The University of Melbourne","place":["Melbourne, Australia"]}]},{"given":"Thomas","family":"Wosch","sequence":"additional","affiliation":[{"name":"Technical University of Applied Sciences W\u00fcrzburg-Schweinfurt","place":["W\u00fcrzburg, Germany"]}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2213-4467","authenticated-orcid":false,"given":"Felicity Anne","family":"Baker","sequence":"additional","affiliation":[{"name":"Norwegian Academy of Music","place":["Oslo, Norway"]},{"name":"The University of Melbourne","place":["Melbourne, Australia"]}]}],"member":"301","published-online":{"date-parts":[[2025,5,22]]},"reference":[{"key":"e_1_3_5_2_1","doi-asserted-by":"publisher","DOI":"10.46743\/21603715\/2007.1616"},{"key":"e_1_3_5_3_1","first-page":"31","article-title":"Community music therapy to support the relationship between family carers and people living with dementia: A pilot project","volume":"16","author":"Allan M.","year":"2018","unstructured":"Allan, M. (2018). Community music therapy to support the relationship between family carers and people living with dementia: A pilot project. New Zealand Journal of Music Therapy, 16, 31\u201353. https:\/\/www.musictherapy.org.nz\/wp-content\/uploads\/2018\/12\/NZJMT162018-2.pdf","journal-title":"New Zealand Journal of Music Therapy"},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/16094069211047820"},{"key":"e_1_3_5_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-031332"},{"key":"e_1_3_5_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2023.102224"},{"key":"e_1_3_5_7_1","first-page":"4","article-title":"Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia","volume":"23","author":"Baker F.","year":"2012","unstructured":"Baker, F., Grocke, D., &amp; Pachana, N. (2012). Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia. Australian Journal of Music Therapy, 23, 4\u201321. http:\/\/www.austmta.org.au\/public\/151\/files\/AJMT\/2012\/2%20Baker%2C%20F_%20A_%2C%20Grocke%2C%20D_%2C%20and%20Pachana%2C%20N_%20A_%20Connecting_through_music__a_st.pdf","journal-title":"Australian Journal of Music Therapy"},{"key":"e_1_3_5_8_1","volume-title":"InterViews: Learning the craft of qualitative research interviewing","author":"Brinkmann S.","year":"2015","unstructured":"Brinkmann, S., &amp; Kvale, S. (2015). InterViews: Learning the craft of qualitative research interviewing (3rd ed). Sage."},{"key":"e_1_3_5_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/14713012231224069"},{"key":"e_1_3_5_10_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2021.598979"},{"key":"e_1_3_5_11_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2020.01951"},{"key":"e_1_3_5_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.14006"},{"key":"e_1_3_5_13_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610218000303"},{"key":"e_1_3_5_14_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2018.00215"},{"key":"e_1_3_5_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/13645579.2020.1766777"},{"key":"e_1_3_5_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2018.1433634"},{"key":"e_1_3_5_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301216639424"},{"key":"e_1_3_5_18_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1800.2003.00163.x"},{"key":"e_1_3_5_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.12648"},{"key":"e_1_3_5_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/14713012231166474"},{"key":"e_1_3_5_21_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2022.2102138"},{"key":"e_1_3_5_22_1","doi-asserted-by":"publisher","DOI":"10.1093\/acprof:oso\/9780199969265.003.0005"},{"key":"e_1_3_5_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301217737653"},{"key":"e_1_3_5_24_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301217737652"},{"key":"e_1_3_5_25_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301205049188"},{"key":"e_1_3_5_26_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301207081571"},{"key":"e_1_3_5_27_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2022.1069846"},{"key":"e_1_3_5_28_1","volume-title":"Music therapy research","author":"Hunt A. M.","year":"2016","unstructured":"Hunt, A. M. (2016). First-person research. In B. L. Wheeler (Ed), Music therapy research (3rd ed.). Barcelona Publishers. https:\/\/research.ebsco.com\/c\/7hmgod\/search\/details\/rjrmi6fwhj?db=e000xww"},{"key":"e_1_3_5_29_1","volume-title":"Ideas: General introduction to pure phenomenology (W. R. B. Gibson, Trans.)","author":"Husserl E.","year":"1931","unstructured":"Husserl, E. (1931). Ideas: General introduction to pure phenomenology (W. R. B. Gibson, Trans.). George Allen &amp; Unwin Ltd.\/Humanities Press Inc."},{"key":"e_1_3_5_30_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-3729.2001.00087.x"},{"key":"e_1_3_5_31_1","doi-asserted-by":"publisher","DOI":"10.34961\/researchrepository-ul.24081513.v1"},{"key":"e_1_3_5_32_1","volume-title":"Dementia reconsidered: The person comes first","author":"Kitwood T.","year":"1997","unstructured":"Kitwood, T. (1997). Dementia reconsidered: The person comes first. Open University Press."},{"key":"e_1_3_5_33_1","doi-asserted-by":"publisher","DOI":"10.1093\/mtp\/miab008"},{"key":"e_1_3_5_34_1","doi-asserted-by":"publisher","DOI":"10.1080\/07317115.2021.1978121"},{"issue":"2","key":"e_1_3_5_35_1","article-title":"Using group therapeutic songwriting to support the dyadic relationship between people living with dementia and their family caregivers: Perspectives from music therapists","volume":"32","author":"McMahon K.","year":"2021","unstructured":"McMahon, K., Baker, F., Stretton-Smith, P., &amp; Clark, I. (2021). Using group therapeutic songwriting to support the dyadic relationship between people living with dementia and their family caregivers: Perspectives from music therapists. Australian Journal of Music Therapy, 32(2). http:\/\/www.austmta.org.au\/public\/151\/files\/AJMT\/2021\/Issue%202\/6_%20AJMT%20Volume%2032(2)%20-%20McMahon%20et%20al.pdf","journal-title":"Australian Journal of Music Therapy"},{"key":"e_1_3_5_36_1","doi-asserted-by":"publisher","DOI":"10.1080\/17533015.2022.2128381"},{"key":"e_1_3_5_37_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359457519834302"},{"key":"e_1_3_5_38_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301211421070"},{"key":"e_1_3_5_39_1","article-title":"Still together in sound: Narratives from online music therapy with people with dementia and their companions during lockdown","author":"Molyneux C.","year":"2021","unstructured":"Molyneux, C., Hardy, T., Lin, Y.-T., McKinnon, K., Merchant, H., Smith, R., &amp; Odell-Miller, H. (2021). Still together in sound: Narratives from online music therapy with people with dementia and their companions during lockdown. Journal of Music, Health, and Wellbeing. https:\/\/storage.googleapis.com\/wzukusers\/user-20563976\/documents\/0e6913c92d1947248ce70c1af8cadbc2\/Molyneux%2C%20Hardy%2C%20Lin%2C%20McKinnon%2C%20Merchant%2C%20Smith%20and%20Odell-Miller%20October%202021.pdf","journal-title":"Journal of Music, Health, and Wellbeing"},{"key":"e_1_3_5_40_1","doi-asserted-by":"publisher","DOI":"10.3390\/ejihpe12120127"},{"key":"e_1_3_5_41_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2023.1250689"},{"key":"e_1_3_5_42_1","doi-asserted-by":"publisher","DOI":"10.1348\/147608302320365208"},{"key":"e_1_3_5_43_1","doi-asserted-by":"publisher","DOI":"10.1177\/14713012221137280"},{"key":"e_1_3_5_44_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20042863"},{"key":"e_1_3_5_45_1","doi-asserted-by":"publisher","DOI":"10.1177\/23779608211029073"},{"key":"e_1_3_5_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/scs.13035"},{"key":"e_1_3_5_47_1","volume-title":"Music therapy research","author":"Stige B.","year":"2016","unstructured":"Stige, B., &amp; Ledger, A. (2016). Ethnographic research. In B. L. Wheeler (Ed.), Music therapy research (3rd ed.). Barcelona Publishers. https:\/\/research.ebsco.com\/c\/7hmgod\/search\/details\/rjrmi6fwhj?db=e000xww","edition":"3"},{"key":"e_1_3_5_48_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2023.20"},{"key":"e_1_3_5_49_1","first-page":"204","article-title":"Reflexivity and professional use of self in research: A doctoral student\u2019s journey","volume":"6","author":"Valandra","year":"2012","unstructured":"Valandra. (2012). Reflexivity and professional use of self in research: A doctoral student\u2019s journey. Journal of Ethnographic and Qualitative Research, 6, 204\u2013220.","journal-title":"Journal of Ethnographic and Qualitative Research"},{"key":"e_1_3_5_50_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2015.1023769"},{"key":"e_1_3_5_51_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare11152191"},{"key":"e_1_3_5_52_1","unstructured":"World Health Organization. (2022). A blueprint for dementia research. https:\/\/www.who.int\/publications\/i\/item\/9789240058248"}],"container-title":["Nordic Journal of Music Therapy"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/08098131.2025.2497805","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,10]],"date-time":"2025-06-10T08:47:19Z","timestamp":1749545239000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/08098131.2025.2497805"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5,22]]},"references-count":51,"alternative-id":["10.1080\/08098131.2025.2497805"],"URL":"https:\/\/doi.org\/10.1080\/08098131.2025.2497805","relation":{},"ISSN":["0809-8131","1944-8260"],"issn-type":[{"type":"print","value":"0809-8131"},{"type":"electronic","value":"1944-8260"}],"subject":[],"published":{"date-parts":[[2025,5,22]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims &amp; Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&amp;journalCode=rnjm20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&amp;journalCode=rnjm20","order":2,"name":"aims_and_scope_url","label":"Aim &amp; Scope"},{"value":"2024-04-23","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-04-10","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-05-22","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}</enrichment>
    <enrichment key="local_crossrefDocumentType">journal-article</enrichment>
    <enrichment key="local_crossrefLicence">http://creativecommons.org/licenses/by/4.0/</enrichment>
    <enrichment key="local_import_origin">crossref</enrichment>
    <enrichment key="local_doiImportPopulated">PersonAuthorFirstName_1,PersonAuthorLastName_1,PersonAuthorIdentifierOrcid_1,PersonAuthorFirstName_2,PersonAuthorLastName_2,PersonAuthorIdentifierOrcid_2,PersonAuthorFirstName_3,PersonAuthorLastName_3,PersonAuthorIdentifierOrcid_3,PersonAuthorFirstName_4,PersonAuthorLastName_4,PersonAuthorIdentifierOrcid_4,PersonAuthorFirstName_5,PersonAuthorLastName_5,PersonAuthorIdentifierOrcid_5,PersonAuthorFirstName_6,PersonAuthorLastName_6,PersonAuthorIdentifierOrcid_6,PersonAuthorFirstName_7,PersonAuthorLastName_7,PersonAuthorFirstName_8,PersonAuthorLastName_8,PersonAuthorIdentifierOrcid_8,PublisherName,TitleMain_1,Language,TitleParent_1,PageNumber,PageFirst,PageLast,PublishedYear,IdentifierIssn,Enrichmentlocal_crossrefLicence</enrichment>
    <enrichment key="opus.source">doi-import</enrichment>
    <enrichment key="opus.doi.autoCreate">false</enrichment>
    <enrichment key="opus.urn.autoCreate">true</enrichment>
    <author>Kristi Stedje</author>
    <author>Tone Sæther Kvamme</author>
    <author>Helen Odell-Miller</author>
    <author>Karette A. Stensæth</author>
    <author>Anna A. Bukowska</author>
    <author>Jeanette Tamplin</author>
    <author>Thomas Wosch</author>
    <author>Felicity Anne Baker</author>
    <collection role="institutes" number="fas">Fakultät Angewandte Sozialwissenschaften</collection>
    <collection role="institutes" number="ifas">Institut für Angewandte Sozialwissenschaften (IFAS)</collection>
  </doc>
</export-example>
