@article{BukowskaJanusSooetal., author = {Bukowska, Anna A. and Janus, Edyta and Soo, Vanessa Pac and Smrokowska-Reichmann, Agnieszka and Hsu, Ming Hung and Stens{\ae}th, Karette A. and Odell-Miller, Helen and Tamplin, Jeanette and Wosch, Thomas and Sousa, Tanara Vieira and Lamb, Karen E. and Braat, Sabine and Baker, Felicity A.}, title = {Relationship between dementia diagnostic characteristics and severity of depressive symptoms in a cross-sectional analysis of HOMESIDE baseline data}, series = {Scientific Reports}, volume = {15}, journal = {Scientific Reports}, number = {1}, publisher = {Springer Science and Business Media LLC}, issn = {2045-2322}, doi = {10.1038/s41598-025-20385-z}, language = {en} } @article{SveinsdottirAssmusSchneideretal., author = {Sveinsdottir, Vigdis and Assmus, J{\"o}rg and Schneider, Justine and Baker, Felicity A and U{\c{c}}aner, Bur{\c{c}}in and Kreutz, Gunter and Geretsegger, Monika and Rasing, Naomi and Bloska, Jodie and Stretton-Smith, Phoebe A and Lee, Young-Eun C and Wake, Jo Dugstad and Odell-Miller, Helen and Tamplin, Jeanette and Vink, Annemieke C and Ablewhite, Joanne and Neuser, Johanna and Frischen, Ulrike and Timmer, Antje and Wosch, Thomas and Janus, Sarah and Gold, Christian}, title = {Clinical effectiveness of music interventions for dementia and depression in older people (MIDDEL): a multinational, cluster-randomised controlled trial}, series = {The Lancet Healthy Longevity}, volume = {2025}, journal = {The Lancet Healthy Longevity}, publisher = {Elsevier BV}, issn = {2666-7568}, doi = {10.1016/j.lanhl.2025.100783}, language = {en} } @article{StedjeKvammeJohanssonetal., author = {Stedje, Kristi and Kvamme, Tone S{\ae}ther and Johansson, Kjersti and Sousa, Tanara Vieira and Odell-Miller, Helen and Stens{\ae}th, Karette Annie and Bukowska, Anna A. and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia - An Adapted Convergent Mixed Methods Study}, series = {International Journal of Environmental Research and Public Health}, volume = {20}, journal = {International Journal of Environmental Research and Public Health}, number = {4}, publisher = {MDPI AG}, issn = {1660-4601}, doi = {https://doi.org/10.3390/ijerph20042863}, abstract = {Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study's aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.}, language = {en} } @article{SmrokowskaReichmannJanusTamplinetal., author = {Smrokowska-Reichmann, Agnieszka and Janus, Edyta and Tamplin, Jeanette and Odell-Miller, Helen and Stens{\ae}th, Karette and Wenborn, Jennifer and Viken, R{\o}nnaug Modell and Wosch, Thomas and Bukowska, Anna A. and Sousa, Tanara Vieira and Baker, Felicity Anne}, title = {The HOMESIDE Study - A Research Project to Support People Living With Dementia and Their Family Caregivers: Preliminary Report on Reading Intervention}, series = {Gerontology and Geriatric Medicine}, volume = {10}, journal = {Gerontology and Geriatric Medicine}, publisher = {SAGE Publications}, issn = {2333-7214}, doi = {10.1177/23337214241239174}, abstract = {The behavioral and psychological symptoms of dementia (BPSD) can be challenging for family caregivers to cope with, leading to distress and fatigue. It is therefore important to offer effective strategies to reduce the impact of BPSD. The HOMESIDE randomized controlled trial (RCT) was testing purposefully developed interventions to improve the quality of life and wellbeing of dyads of people with dementia and family caregivers as a result of reduction of BPSD. HOMESIDE RCT was conducted in Australia, Germany, Norway, Poland and the United Kingdom between 2019 and 2022. The study design was a three-arm parallel-group single-blinded, pragmatic RCT with a sample size of 432 dyads. Dyads were randomly allocated to one of three treatment conditions: Music Intervention plus Standard Care; or Reading Intervention plus Standard Care; or Standard Care only. The Reading Intervention (RI) within the HOMESIDE RCT aimed to evoke shared discussion, reminiscence, meaningful shared experiences and consequently enrich everyday life, interaction and the emotional connection between the caregiver (CG) and carereceiver (CR); as well as to enhance activities of daily living and to promote relaxation or stimulation as appropriate. This paper describes the underlying conceptual framework, the content, and delivery of the Reading Intervention within the HOMESIDE RCT.}, language = {en} } @article{BakerPacSooBloskaetal., author = {Baker, Felicity Anne and Pac Soo, Vanessa and Bloska, Jodie and Blauth, Laura and Bukowska, Anna A. and Flynn, Libby and Hsu, Ming Hung and Janus, Edyta and Johansson, Kjersti and Kvamme, Tone and Lautenschlager, Nicola and Miller, Hayley and Pool, Jonathan and Smrokowska-Reichmann, Agnieszka and Stens{\ae}th, Karette and Teggelove, Kate and Warnke, Sven and Wosch, Thomas and Odell-Miller, Helen and Lamb, Karen and Braat, Sabine and Sousa, Tanara Vieira and Tamplin, Jeanette}, title = {Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial}, series = {eClinicalMedicine}, volume = {65}, journal = {eClinicalMedicine}, publisher = {Elsevier BV}, issn = {2589-5370}, doi = {10.1016/j.eclinm.2023.102224}, language = {en} } @article{PacSooBakerSousaetal., author = {Pac Soo, Vanessa and Baker, Felicity A. and Sousa, Tanara Vieira and Odell-Miller, Helen and Stens{\ae}th, Karette and Wosch, Thomas and Bukowska, Anna A. and Tamplin, Jeanette and Lautenschlager, Nicola and Braat, Sabine and Lamb, Karen E.}, title = {Statistical analysis plan for HOMESIDE: a randomised controlled trial for home-based family caregiver-delivered music and reading interventions for people living with dementia}, series = {Trials}, volume = {24}, journal = {Trials}, number = {1}, publisher = {Springer Science and Business Media LLC}, issn = {1745-6215}, doi = {10.1186/s13063-023-07327-8}, abstract = {Abstract Background Most people with dementia live in the community, not in residential care. Therefore, quality informal care for them is critical for managing behavioural and psychological symptoms of dementia (BPSD). Music therapy has been shown to reduce BPSD. However, no randomised controlled trial has examined the effects of music interventions delivered by caregivers in home settings. The HOME-based caregiver-delivered music intervention for people living with dementia (HOMESIDE) trial aims to evaluate the effectiveness of a 12-week music intervention in addition to standard care for BPSD. This article describes the statistical analysis plan. Methods and analysis HOMESIDE is a large, pragmatic international three-arm parallel-group randomised controlled trial. Dyads (persons with dementia and caregiver) in Australia, Germany, the UK, Poland and Norway were randomised to receive music and standard care, reading and standard care or standard care alone. The primary outcome is BPSD (proxy) of the person living with dementia, measured using the Neuropsychiatric Inventory-Questionnaire (NPI-Q) at 90 and 180 days post-randomisation. Longitudinal analysis will compare NPI-Q severity between music and standard care versus standard care alone. Secondary outcomes include quality of life and depression (both person with dementia and caregiver), cognition (person with dementia only), distress, resilience, competence and caregiver-patient relationship (caregiver only). Treatment effects will be obtained at 90 and 180 days post-randomisation, where applicable. Safety outcomes (adverse events, hospitalisations, deaths) will be summarised. Discussion This statistical analysis plan provides a detailed methodology for the analysis of HOMESIDE and will improve the validity of the study and reduce the potential for bias. Trial registration Australian New Zealand Clinical Trials Registry ACTRN12618001799246. Registered on November 05, 2018. ClinicalTrials.gov NCT03907748. Registered on April 09, 2019.}, language = {en} } @article{OdellMillerBlauthBloskaetal., author = {Odell-Miller, Helen and Blauth, Laura and Bloska, Jodie and Bukowska, Anna A. and Clark, Imogen N. and Crabtree, Sarah and Engen, Runa B. and Knardal, Solgunn and Kvamme, Tone K. and McMahon, Kate and Petrowitz, Carina and Smrokowska-Reichmann, Agnieszka and Stens{\ae}th, Karette and Tamplin, Jeanette and Wosch, Thomas and Wollersberger, Nina and Baker, Felicity A.}, title = {The HOMESIDE Music Intervention: A Training Protocol for Family Carers of People Living with Dementia}, series = {European Journal of Investigation in Health, Psychology and Education}, volume = {12}, journal = {European Journal of Investigation in Health, Psychology and Education}, number = {12}, publisher = {MDPI AG}, issn = {2254-9625}, doi = {10.3390/ejihpe12120127}, pages = {1812 -- 1832}, abstract = {Background: The number of people living with dementia (PwD) worldwide is expected to double every 20 years. Many continue living at home, receiving support from family caregivers who may experience significant stress, simultaneously to that of the PwD. Meaningful and effective home-based interventions to support PwD and their caregivers are needed. The development of a theory- and practice-driven online home-based music intervention (MI) is delivered by credentialed music therapists, nested within the HOMESIDE RCT trial. Methods: Dyads including the PwD and their family carer are randomised to MI, reading (RI) or standard care (SC). MI aims to support health wellbeing and quality of life by training caregivers to intentionally use music (singing, instrument playing, movement/dancing, and music listening) with their family member (PwD) in daily routines. MI is underpinned by cognitive, relational, social, and psychological theories of mechanisms of change. Results: Preliminary sub-cohort results analyses show MI can be delivered and is accepted well by participants and music-therapist interventionists across five countries. Conclusions: The specialist skills of a music therapist through MI enable carers to access music when music therapists are not present, to meet carer and PwD needs. Music therapists embrace this changing professional role, observing therapeutic change for members of the dyads.}, language = {en} } @article{StedjeKvammeJohanssonetal., author = {Stedje, Kristi and Kvamme, Tone KS and Johansson, Kjersti and Stens{\ae}th, Karette A and Odell-Miller, Helen and Bukowska, Anna and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {Influential factors of spousal relationship quality in couples living with dementia - A narrative synthesis systematic review}, series = {Dementia}, volume = {22}, journal = {Dementia}, number = {1}, publisher = {SAGE Publications}, issn = {1471-3012}, doi = {10.1177/14713012221137280}, pages = {281 -- 302}, abstract = {Aim: The aim of this systematic review is to identify factors that influence relationship quality in couples living with dementia. Previous research has shown how maintaining a positive spousal relationship quality is important for quality of life and coping for both the caregiver and the person with dementia. Knowledge of influential factors could contribute to a deeper understanding of the value of a couple-centred clinical practice and research, within the field of dementia. Research design and methods Systematic procedures to database search, screening, data extraction and synthesis were followed. Qualitative, quantitative and mixed methods studies were included. A narrative synthesis was conducted through narrative summaries of included studies, thematic analysis and narrative descriptions of factors influencing relationship quality. Results: 39 studies were included in the study: 28 qualitative, 8 quantitative and 3 mixed methods. Through the narrative synthesis, 20 factors were identified. The factors were grouped into two overarching themes: The world of us and The world outside of us, and further to six influencing factor categories: (1) Attitudes and strategies, (2) Behaviour and activities, (3) Emotional connectedness, (4) Activities and experiences outside of the home, (5) Social behaviour and roles, and (6) Belonging and safety. Discussion and conclusion: The identified factors influence relationship quality in couples living with dementia on various levels. The findings of this review study should inform clinical, couple-centred dementia care practise and intervention studies, and further research should seek to gain deeper understandings of the individual factors and broader understandings of the correlations between factors.}, language = {en} } @article{CrabtreeBakerBukowskaetal., author = {Crabtree, Sarah and Baker, Felicity Anne and Bukowska, Anna A. and Hsu, Ming-Hung and Kvamme, Tone and McMahon, Kate and Odell-Miller, Helen and Sousa, Tanara and Stens{\ae}th, Karette and Wosch, Thomas and Tamplin, Jeanette}, title = {Exploring the use of musical activities implemented in home-based dementia care as part of the HOMESIDE study}, series = {Arts \& Health}, journal = {Arts \& Health}, publisher = {Informa UK Limited}, issn = {1753-3015}, doi = {10.1080/17533015.2025.2525334}, pages = {1 -- 18}, language = {en} } @article{EickholtTamplinClark, author = {Eickholt, Jasmin and Tamplin, Jeanette and Clark, Imogen N.}, title = {Therapeutic songwriting to enhance wellbeing and decrease depression in older people living in residential care: A lyrics analysis of participant-composed songs}, series = {Nordic Journal of Music Therapy}, journal = {Nordic Journal of Music Therapy}, publisher = {Informa UK Limited}, issn = {0809-8131}, doi = {10.1080/08098131.2025.2497802}, pages = {1 -- 19}, language = {en} } @article{BloskaCrabtreeWollersbergeretal., author = {Bloska, Jodie and Crabtree, Sarah and Wollersberger, Nina and Mitchell, Oti and Coles, Jenny and Halsey, Caroline and Parry, Geraldine and Stewart, Robert and Thacker, Susan and Thacker, Mark and Claydon-Mueller, Leica and Winnard, Yvette and McMahon, Kate and Petrowitz, Carina and Smrokowska-Reichmann, Agnieszka and van Doorn, Beatrix and Baker, Felicity A. and Blauth, Laura and Bukowska, Anna A. and Stens{\ae}th, Karette and Tamplin, Jeanette and Wosch, Thomas and Odell-Miller, Helen}, title = {Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers}, series = {Research Involvement and Engagement}, volume = {10}, journal = {Research Involvement and Engagement}, number = {1}, publisher = {Springer Science and Business Media LLC}, issn = {2056-7529}, doi = {10.1186/s40900-024-00574-2}, abstract = {Background This study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that investigated music and reading interventions for people living with dementia and their family caregivers across five countries: Australia, Germany, Norway, Poland, and the UK. The aim was to capture experiences of PPI across the five countries, explore the benefits and challenges of PPI in dementia research, and identify contributions made to the study. Methods We surveyed PPI members and academic researchers who collaborated on the HOMESIDE study. The survey was co-designed through consultation with PPI members and academics, alongside a small scoping literature review. Survey questions covered four topics: (1) expectations for PPI, (2) perceived contributions of PPI to the research study, (3) benefits and challenges of PPI, and (4) recommendations for future PPI in dementia research. Results There were 23 responses, representing 50\% of the PPI members (n = 16) and 29\% of academics (n = 7). PPI was found to be beneficial to the research and individuals involved. Contributions to the research included supporting recruitment and publicity, advising on the design of participant-facing materials, guiding the design and delivery of the interventions, and identifying cultural differences affecting research delivery. PPI members benefited from building connections, sharing experiences and receiving support, learning about dementia and research, and gaining new unexpected experiences. Academics learned about the realities of living with dementia, which they felt informed and grounded their work. Several challenges were identified, including the need for clear expectations and objectives, inconsistency of PPI members across research stages, limitations of meeting online versus in-person, scheduling difficulties, and language barriers. Conclusions This study identifies important considerations for implementing PPI within dementia studies and international healthcare research more broadly. Our findings guided the development of five recommendations: (1) involve PPI members as early as possible and throughout the research process; (2) create a space for constructive criticism and feedback; (3) have clear tasks, roles, and expectations for PPI members; (4) involve PPI members with a diverse range of experiences and backgrounds; and (5) embed infrastructure and planning to support PPI.}, language = {en} } @article{StedjeKvammeJohanssonetal., author = {Stedje, Kristi and Kvamme, Tone S{\ae}ther and Johansson, Kjersti and Sousa, Tanara Vieira and Odell-Miller, Helen and Stens{\ae}th, Karette Annie and Bukowska, Anna A. and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia—An Adapted Convergent Mixed Methods Study}, series = {International Journal of Environmental Research and Public Health}, volume = {20}, journal = {International Journal of Environmental Research and Public Health}, number = {4}, publisher = {MDPI AG}, issn = {1660-4601}, doi = {10.3390/ijerph20042863}, abstract = {Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study's aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.}, language = {en} } @article{StedjeSatherKvammeOdellMilleretal., author = {Stedje, Kristi and S{\ae}ther Kvamme, Tone and Odell-Miller, Helen and Stens{\ae}th, Karette A. and Bukowska, Anna A. and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {Music therapy approaches to support relationship quality in couples living with dementia: A hermeneutic-phenomenological study of music therapists' reflections}, series = {Nordic Journal of Music Therapy}, journal = {Nordic Journal of Music Therapy}, publisher = {Informa UK Limited}, issn = {0809-8131}, doi = {10.1080/08098131.2025.2497805}, pages = {1 -- 18}, language = {en} } @article{BakerBlauthBloskaetal., author = {Baker, Felicity A. and Blauth, Laura and Bloska, Jodie and Bukowska, Anna A. and Flynn, Libby and Hsu, Ming-Hung and Janus, Edyta and Johansson, Kjersti and Odell-Miller, Helen and Miller, Hayley and Petrowitz, Carina and Pool, Jonathan and Stens{\ae}th, Karette and Tamplin, Jeanette and Teggelove, Kate and Wosch, Thomas and Sousa, Tanara Vieira}, title = {Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial}, series = {Contemporary Clinical Trials Communications}, volume = {32}, journal = {Contemporary Clinical Trials Communications}, publisher = {Elsevier BV}, issn = {2451-8654}, doi = {10.1016/j.conctc.2023.101079}, language = {en} } @book{CampbellWoschTamplinetal., author = {Campbell, Elsa and Wosch, Thomas and Tamplin, Jeanette and Petrowitz, Carina and McMahon, Kate and Thurn, Tabea and Stuart-R{\"o}hm, Kary and Eickholt, Jasmin and Thompson, Zara and Warnke, Sven}, title = {Music Therapy for Older Adults - Promoting Wellbeing, Health Outcomes, and Cost-Effectiveness}, editor = {Campbell, Elsa and Wosch, Thomas and Tamplin, Jeanette}, publisher = {Dr. Ludwig Reichert Verlag}, address = {Wiesbaden}, isbn = {978-3-7520-0887-6}, pages = {200}, language = {en} }