@article{StedjeKvammeJohanssonetal., author = {Stedje, Kristi and Kvamme, Tone S{\ae}ther and Johansson, Kjersti and Sousa, Tanara Vieira and Odell-Miller, Helen and Stens{\ae}th, Karette Annie and Bukowska, Anna A. and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia - An Adapted Convergent Mixed Methods Study}, series = {International Journal of Environmental Research and Public Health}, volume = {20}, journal = {International Journal of Environmental Research and Public Health}, number = {4}, publisher = {MDPI AG}, issn = {1660-4601}, doi = {https://doi.org/10.3390/ijerph20042863}, abstract = {Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study's aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.}, language = {en} } @article{BakerBlauthBloskaetal., author = {Baker, Felicity A. and Blauth, Laura and Bloska, Jodie and Bukowska, Anna A. and Flynn, Libby and Hsu, Ming-Hung and Janus, Edyta and Johansson, Kjersti and Odell-Miller, Helen and Miller, Hayley and Petrowitz, Carina and Pool, Jonathan and Stens{\ae}th, Karette and Tamplin, Jeanette and Teggelove, Kate and Wosch, Thomas and Sousa, Tanara Vieira}, title = {Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial}, series = {Contemporary Clinical Trials Communications}, volume = {32}, journal = {Contemporary Clinical Trials Communications}, publisher = {Elsevier BV}, issn = {2451-8654}, doi = {10.1016/j.conctc.2023.101079}, language = {en} } @article{BakerPoolJohanssonetal., author = {Baker, Felicity A and Pool, Jonathan and Johansson, Kjersti and Wosch, Thomas and Bukowska, Anna A and Kulis, Aleksandra and Blauth, Laura and Stens{\ae}th, Karette and Clark, Imogen N and Odell-Miller, Helen}, title = {Strategies for Recruiting People With Dementia to Music Therapy Studies: Systematic Review}, series = {Journal of Music Therapy}, volume = {58}, journal = {Journal of Music Therapy}, number = {4}, publisher = {Oxford University Press (OUP)}, issn = {0022-2917}, doi = {10.1093/jmt/thab010}, pages = {373 -- 407}, abstract = {AbstractPositive effects of music therapy for people with dementia and their family carers are reported in a growing number of studies. However, small sample sizes or low recruitment rates often limit the success of these research studies. More adequately powered evidence-based studies are needed to impact policy and funding in dementia care. This systematic review examined recruitment strategies in music therapy clinical trials involving people living with dementia and/or their family carers. Eligible studies described enrolment, consent, accrual, or recruitment methods as well as recruitment or consent rates. Thirty studies with a total of 1,192 participants were included. Recruitment and conversion rates in residential aged care facilities (RACFs) (14 studies) were substantially higher than in community-based studies (16 studies). Whereas studies in RACFs most commonly recruited participants through staff approaching residents face-to-face or conversing with residents' legal guardians, community-based studies utilized a vast array of strategies, including staff referral, demonstrations/information sessions by researchers, advertisements, and direct contact with residents. Recruitment rates are likely to be higher when recruiters have an existing relationship with potential participants and when an independent third-party dementia organization is involved. Randomized controlled trials led to equally or greater recruitment conversion rates than other designs. Findings suggest that recruitment in dementia trials is complex, challenging, and needs thorough planning and consideration to be time- and cost-effective. Future studies should include reporting of recruitment strategies, enrolment rates, and related aspects so that researchers can better design recruitment strategies and estimate resources needed to reach the target sample size.}, language = {en} } @article{BakerPacSooBloskaetal., author = {Baker, Felicity Anne and Pac Soo, Vanessa and Bloska, Jodie and Blauth, Laura and Bukowska, Anna A. and Flynn, Libby and Hsu, Ming Hung and Janus, Edyta and Johansson, Kjersti and Kvamme, Tone and Lautenschlager, Nicola and Miller, Hayley and Pool, Jonathan and Smrokowska-Reichmann, Agnieszka and Stens{\ae}th, Karette and Teggelove, Kate and Warnke, Sven and Wosch, Thomas and Odell-Miller, Helen and Lamb, Karen and Braat, Sabine and Sousa, Tanara Vieira and Tamplin, Jeanette}, title = {Home-based family caregiver-delivered music and reading interventions for people living with dementia (HOMESIDE trial): an international randomised controlled trial}, series = {eClinicalMedicine}, volume = {65}, journal = {eClinicalMedicine}, publisher = {Elsevier BV}, issn = {2589-5370}, doi = {10.1016/j.eclinm.2023.102224}, language = {en} } @article{StedjeKvammeJohanssonetal., author = {Stedje, Kristi and Kvamme, Tone KS and Johansson, Kjersti and Stens{\ae}th, Karette A and Odell-Miller, Helen and Bukowska, Anna and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {Influential factors of spousal relationship quality in couples living with dementia - A narrative synthesis systematic review}, series = {Dementia}, volume = {22}, journal = {Dementia}, number = {1}, publisher = {SAGE Publications}, issn = {1471-3012}, doi = {10.1177/14713012221137280}, pages = {281 -- 302}, abstract = {Aim: The aim of this systematic review is to identify factors that influence relationship quality in couples living with dementia. Previous research has shown how maintaining a positive spousal relationship quality is important for quality of life and coping for both the caregiver and the person with dementia. Knowledge of influential factors could contribute to a deeper understanding of the value of a couple-centred clinical practice and research, within the field of dementia. Research design and methods Systematic procedures to database search, screening, data extraction and synthesis were followed. Qualitative, quantitative and mixed methods studies were included. A narrative synthesis was conducted through narrative summaries of included studies, thematic analysis and narrative descriptions of factors influencing relationship quality. Results: 39 studies were included in the study: 28 qualitative, 8 quantitative and 3 mixed methods. Through the narrative synthesis, 20 factors were identified. The factors were grouped into two overarching themes: The world of us and The world outside of us, and further to six influencing factor categories: (1) Attitudes and strategies, (2) Behaviour and activities, (3) Emotional connectedness, (4) Activities and experiences outside of the home, (5) Social behaviour and roles, and (6) Belonging and safety. Discussion and conclusion: The identified factors influence relationship quality in couples living with dementia on various levels. The findings of this review study should inform clinical, couple-centred dementia care practise and intervention studies, and further research should seek to gain deeper understandings of the individual factors and broader understandings of the correlations between factors.}, language = {en} } @article{StedjeKvammeJohanssonetal., author = {Stedje, Kristi and Kvamme, Tone S{\ae}ther and Johansson, Kjersti and Sousa, Tanara Vieira and Odell-Miller, Helen and Stens{\ae}th, Karette Annie and Bukowska, Anna A. and Tamplin, Jeanette and Wosch, Thomas and Baker, Felicity Anne}, title = {The Influence of Home-Based Music Therapy Interventions on Relationship Quality in Couples Living with Dementia—An Adapted Convergent Mixed Methods Study}, series = {International Journal of Environmental Research and Public Health}, volume = {20}, journal = {International Journal of Environmental Research and Public Health}, number = {4}, publisher = {MDPI AG}, issn = {1660-4601}, doi = {10.3390/ijerph20042863}, abstract = {Relationship quality is important for well-being and quality of life in couples living with dementia. Home-based music therapy interventions may be conducted with the aim of enhancing relationship quality. However, the effects or influences of such interventions are only briefly investigated in previous studies. This study's aim was to identify how a 12-week home-based music therapy intervention may influence relationship quality in couples living with dementia, through an adapted convergent mixed methods design. In this case, 68 participating couples from the HOMESIDE RCT study, and four individually recruited couples, received the music therapy intervention. Relationship quality for all participants was measured by the standardized Quality of Caregiver-Patient Relationship scale, and qualitative interviews were conducted with the four individually recruited participants at baseline and post intervention. Quantitative analysis indicated no statistically significant intervention effect. However, relationship quality remained stable over the intervention period. The qualitative analysis identified that the music therapy interventions primarily led to positive emotions, closeness, intimacy, and communication between the persons with dementia and their care partners. Intervention influences could also be ambiguous, as sharing music experiences might involve a risk of evoking vulnerabilities or negative emotional responses.}, language = {en} } @article{BakerBlauthBloskaetal., author = {Baker, Felicity A. and Blauth, Laura and Bloska, Jodie and Bukowska, Anna A. and Flynn, Libby and Hsu, Ming-Hung and Janus, Edyta and Johansson, Kjersti and Odell-Miller, Helen and Miller, Hayley and Petrowitz, Carina and Pool, Jonathan and Stens{\ae}th, Karette and Tamplin, Jeanette and Teggelove, Kate and Wosch, Thomas and Sousa, Tanara Vieira}, title = {Recruitment approaches and profiles of consenting family caregivers and people living with dementia: A recruitment study within a trial}, series = {Contemporary Clinical Trials Communications}, volume = {32}, journal = {Contemporary Clinical Trials Communications}, publisher = {Elsevier BV}, issn = {2451-8654}, doi = {10.1016/j.conctc.2023.101079}, language = {en} }