@article{OdellMillerBlauthBloskaetal., author = {Odell-Miller, Helen and Blauth, Laura and Bloska, Jodie and Bukowska, Anna A. and Clark, Imogen N. and Crabtree, Sarah and Engen, Runa B. and Knardal, Solgunn and Kvamme, Tone K. and McMahon, Kate and Petrowitz, Carina and Smrokowska-Reichmann, Agnieszka and Stens{\ae}th, Karette and Tamplin, Jeanette and Wosch, Thomas and Wollersberger, Nina and Baker, Felicity A.}, title = {The HOMESIDE Music Intervention: A Training Protocol for Family Carers of People Living with Dementia}, series = {European Journal of Investigation in Health, Psychology and Education}, volume = {12}, journal = {European Journal of Investigation in Health, Psychology and Education}, number = {12}, publisher = {MDPI AG}, issn = {2254-9625}, doi = {10.3390/ejihpe12120127}, pages = {1812 -- 1832}, abstract = {Background: The number of people living with dementia (PwD) worldwide is expected to double every 20 years. Many continue living at home, receiving support from family caregivers who may experience significant stress, simultaneously to that of the PwD. Meaningful and effective home-based interventions to support PwD and their caregivers are needed. The development of a theory- and practice-driven online home-based music intervention (MI) is delivered by credentialed music therapists, nested within the HOMESIDE RCT trial. Methods: Dyads including the PwD and their family carer are randomised to MI, reading (RI) or standard care (SC). MI aims to support health wellbeing and quality of life by training caregivers to intentionally use music (singing, instrument playing, movement/dancing, and music listening) with their family member (PwD) in daily routines. MI is underpinned by cognitive, relational, social, and psychological theories of mechanisms of change. Results: Preliminary sub-cohort results analyses show MI can be delivered and is accepted well by participants and music-therapist interventionists across five countries. Conclusions: The specialist skills of a music therapist through MI enable carers to access music when music therapists are not present, to meet carer and PwD needs. Music therapists embrace this changing professional role, observing therapeutic change for members of the dyads.}, language = {en} } @article{CrabtreeBakerBukowskaetal., author = {Crabtree, Sarah and Baker, Felicity Anne and Bukowska, Anna A. and Hsu, Ming-Hung and Kvamme, Tone and McMahon, Kate and Odell-Miller, Helen and Sousa, Tanara and Stens{\ae}th, Karette and Wosch, Thomas and Tamplin, Jeanette}, title = {Exploring the use of musical activities implemented in home-based dementia care as part of the HOMESIDE study}, series = {Arts \& Health}, journal = {Arts \& Health}, publisher = {Informa UK Limited}, issn = {1753-3015}, doi = {10.1080/17533015.2025.2525334}, pages = {1 -- 18}, language = {en} } @article{BloskaCrabtreeWollersbergeretal., author = {Bloska, Jodie and Crabtree, Sarah and Wollersberger, Nina and Mitchell, Oti and Coles, Jenny and Halsey, Caroline and Parry, Geraldine and Stewart, Robert and Thacker, Susan and Thacker, Mark and Claydon-Mueller, Leica and Winnard, Yvette and McMahon, Kate and Petrowitz, Carina and Smrokowska-Reichmann, Agnieszka and van Doorn, Beatrix and Baker, Felicity A. and Blauth, Laura and Bukowska, Anna A. and Stens{\ae}th, Karette and Tamplin, Jeanette and Wosch, Thomas and Odell-Miller, Helen}, title = {Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers}, series = {Research Involvement and Engagement}, volume = {10}, journal = {Research Involvement and Engagement}, number = {1}, publisher = {Springer Science and Business Media LLC}, issn = {2056-7529}, doi = {10.1186/s40900-024-00574-2}, abstract = {Background This study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized controlled trial that investigated music and reading interventions for people living with dementia and their family caregivers across five countries: Australia, Germany, Norway, Poland, and the UK. The aim was to capture experiences of PPI across the five countries, explore the benefits and challenges of PPI in dementia research, and identify contributions made to the study. Methods We surveyed PPI members and academic researchers who collaborated on the HOMESIDE study. The survey was co-designed through consultation with PPI members and academics, alongside a small scoping literature review. Survey questions covered four topics: (1) expectations for PPI, (2) perceived contributions of PPI to the research study, (3) benefits and challenges of PPI, and (4) recommendations for future PPI in dementia research. Results There were 23 responses, representing 50\% of the PPI members (n = 16) and 29\% of academics (n = 7). PPI was found to be beneficial to the research and individuals involved. Contributions to the research included supporting recruitment and publicity, advising on the design of participant-facing materials, guiding the design and delivery of the interventions, and identifying cultural differences affecting research delivery. PPI members benefited from building connections, sharing experiences and receiving support, learning about dementia and research, and gaining new unexpected experiences. Academics learned about the realities of living with dementia, which they felt informed and grounded their work. Several challenges were identified, including the need for clear expectations and objectives, inconsistency of PPI members across research stages, limitations of meeting online versus in-person, scheduling difficulties, and language barriers. Conclusions This study identifies important considerations for implementing PPI within dementia studies and international healthcare research more broadly. Our findings guided the development of five recommendations: (1) involve PPI members as early as possible and throughout the research process; (2) create a space for constructive criticism and feedback; (3) have clear tasks, roles, and expectations for PPI members; (4) involve PPI members with a diverse range of experiences and backgrounds; and (5) embed infrastructure and planning to support PPI.}, language = {en} }