@article{TezcanGuentekinOezerErdogduYilmazAslanetal., author = {Tezcan-G{\"u}ntekin, H{\"u}rrem and {\"O}zer-Erdogdu, Ilknur and Yilmaz-Aslan, Y{\"u}ce and Aksakal, Tugba and Bird, Rona}, title = {Ethical and Methodological Challenges in Research With Hard-to-Reach Groups: Examples From Research on Family Caregivers for Migrant Older Adults Living With Dementia}, series = {The Gerontologist}, journal = {The Gerontologist}, publisher = {Oxford University Press}, doi = {10.1093/geront/gnab179}, url = {http://nbn-resolving.de/urn:nbn:de:kobv:b1533-opus-4803}, pages = {1 -- 9}, abstract = {Family caregivers of migrants with dementia constitute a population group that is hard to reach for research participation due to factors such as shame about the disease and past experiences of discrimination. In this article, research-ethical challenges associated with participant recruitment and qualitative data collection among relatives of migrants with dementia are discussed. Over a period of 8 years, 3 studies were conducted to investigate the experiences of family caregivers for persons with dementia of Turkish descent in Germany. Across these studies, a total of 32 family caregivers were interviewed. In this article, based on the "Principles of Biomedical Ethics" according to Beauchamp and Childress (2009), research-ethical conflicts associated with sampling methods and the presence of third parties during qualitative interviews are discussed. The potential risks emanating from sampling strategies and the presence of third parties during interviews regarding the voluntary nature of study participation are examined. Additionally, this article formulates recommendations for ensuring truly voluntary participation and protecting both the participants (family caregivers) and relatives with dementia from harm. These practical recommendations aim to help future researchers to avoid ethical pitfalls and represent a roadmap for making necessary methodological decisions.}, language = {en} } @article{BirdOezerErdogduAslanetal., author = {Bird, Rona and {\"O}zer-Erdogdu, Ilknur and Aslan, Meryem and Tezcan-G{\"u}ntekin, H{\"u}rrem}, title = {Healthcare Provider Perspectives on Digital and Interprofessional Medication Management in Chronically Ill Older Adults of Turkish Descent in Germany: A Qualitative Structuring Content Analysis}, series = {Frontiers in Public Health}, journal = {Frontiers in Public Health}, number = {10}, publisher = {Frontiers}, doi = {https://doi.org/10.3389/fpubh.2022.838427}, url = {http://nbn-resolving.de/urn:nbn:de:kobv:b1533-opus-5021}, pages = {1 -- 11}, abstract = {Medication management for chronically ill older adults with a history of migration can be associated with specific challenges, for instance language barriers. This study examined healthcare provider perspectives on interprofessional cooperation and digital medication management tools as approaches for increasing medication safety for chronically ill older adults of Turkish descent in Germany. Semi-structured interviews were conducted with 11 healthcare providers, including general practitioners, pharmacists, a geriatric consultant, a hospital social worker, and an expert on digitalization in nursing care. The interviews were analyzed by means of qualitative structuring content analysis. This article presents selected results of the analysis relating to medication management, barriers to optimal medication management, interprofessional cooperation, and digital tools. Compliance was perceived to be high among chronically ill older adults of Turkish descent and the involvement of family members in medication management was rated positively by respondents. Barriers to medication management were identified in relation to health literacy and language barriers, systemic problems such as short appointments and generic substitution, and racism on behalf of healthcare providers. Additionally, the respondents highlighted structural barriers to interprofessional communication in the German healthcare system. Furthermore, two technology acceptance models presented in this article to illustrate the respondents' perspectives on a) a digital application for medication management to be used by chronically ill older adults of Turkish descent and b) a digital tool for interprofessional communication. The discussion highlights the implications of the results for medication management within the German healthcare system.}, language = {en} } @article{NaefWilhelmTezcanGuentekinetal., author = {Naef, Aur{\´e}lia Naoko and Wilhelm, Christoph and Tezcan-G{\"u}ntekin, H{\"u}rrem and Amelung, Volker Eric}, title = {Impact of digital health interventions for adolescents with type 1 diabetes mellitus on health literacy: a systematic review}, series = {BMC Endocrine Disorders}, volume = {70 (2023)}, journal = {BMC Endocrine Disorders}, number = {23}, publisher = {BMC}, isbn = {1472-6823}, doi = {10.1186/s12902-023-01321-6}, url = {http://nbn-resolving.de/urn:nbn:de:kobv:b1533-opus-5456}, pages = {1 -- 21}, abstract = {Background Evidence shows that living with diabetes mellitus type 1 (T1DM) in adolescent age is particularly challenging and difficult to manage. A high level of health literacy is important to prevent and avoid debilitating complications. Despite the increasing prevalence and incidence of T1DM by adolescent and the large use of digital health interventions, little is known about the association between this use and health literacy. This systematic review provides an overview on the impact of digital health interventions for adolescents with type 1 diabetes on health literacy and derive recommendations for further research. Methods Electronic searches were performed in five databases in Medline (Medline, PubMed + via PubMed), The Cochrane Library, EMBASE (via Ovid), Web of Science and PsycINFO from 2011 to 2021. In addition, grey literature searches were conducted in Google Scholar, OAlster and Trip. Relevant studies that have been missed by electronic and hand-searching strategies were searched in the reference lists of all included studies. The review followed PRISMA guidelines. Two researchers independently screened abstracts for initial eligibility and applied the inclusion and exclusion criteria to the relevant full-text articles. Quality was assessed using the tools RoB2 Cochrane, ROBINS I, NOS (Newcastle-Ottawa Scale), CASP (Critical Appraisal Skills Programme) for primary studies and Amstar-2 for secondary studies. Results Out of 981 studies, 22 were included in the final review. Most primary studies included in this review were judged as moderate overall risk of bias or with some concerns and most of the secondary studies as critically low quality reviews. Our findings suggest that the interplay of health care providers (HCP) and patients through social media helps the management of the disease. This corroborates Br{\"o}der et al.' (2017) dimension of 'communication and interactions' in their concept of health literacy. Conclusions For adolescents with T1DM, social media may be a specific and beneficial intervention for an improved communication and interaction with their HCP. Further research should investigate what specific form of social media suits best for which adolescents. Trial registration The study protocol was registered on the 15th of November 2021 on Prospero (reg. NR: CRD42021282199).}, language = {en} }