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Be unique, be open, be art
(2010)
This article serves as an introduction to the FQS special issue 'Participatory Qualitative Research'. In recent years there has been a resurgence of interest in participatory research strategies. The articles in this special issue come from different disciplines. Against the background of concrete empirical research projects, they address numerous conceptual considerations and methodological approaches. After reading the contributions, and engaging with the authors' arguments, the authors were prompted to focus in particular on those areas in which further work needs to be done. They include, on the one hand, fundamental principles of participatory research, such as democratic-theory considerations, the concept of 'safe space', participation issues, and ethical questions. And, on the other hand, the authors focus an practical research considerations regarding the rote and tasks of the various participants; specific methodological approaches; and quality criteria - understood here in the sense of arguments justifying a participatory approach. The authors' aim is to stimulate a broad discussion that does not focus only on participatory research in the narrower sense. Because participatory methodology poses certain knowledge- and research-related questions in a radical way, it has the potential to draw attention to hitherto neglected areas in qualitative methodology and to stimulate their further development.
The essay describes a primal scene, imagining how it might have been in the very beginning. Undoubtedly, it was a “homo ludens” who started the project of becoming human by using hand, eye, and the ability to imagine. Technical, phonetic, and figurative gestures gave way to the so-called second nature – cultural expressions that lead to technology, supported understanding, created pictures, music, theatre, or artistic legacies like the labyrinth that serves as a format for this essay. The “line of thoughts” (somewhere between fiction and reality) performs its own truth while one walks through: The text is constructed along the path of a labyrinth, the production of speech interrupted by its seven turns – allowing the experience of linear and cyclical time and creating rhythm and a motion of progression. It was written to be performed – not only to be read, but also to be seen and heard. Readers may imagine it as speech whose sound, rhythm and gestural elements inscribe themselves on the body.
This paper describes a novel emotionally intelligent cognitive assistant to engage and help older adults with Alzheimer’s disease (AD) to complete activities of daily living (ADL) more independently. Our new system combines two research streams. First, the development of cognitive assistants with artificially intelligent controllers using partially observable Markov decision processes (POMDPs). Second, a model of the dynamics of emotion and identity called Affect Control Theory that arises from the sociological literature on culturally shared sentiments. We present background material on both of these research streams, and then demonstrate a prototype assistive technology that combines the two. We discuss the affective reasoning, the probabilistic and decision-theoretic reasoning, the computer-vision based activity monitoring, the embodied prompting, and we show results in proof-of-concept tests.
This paper presents an exploratory study conducted to understand how audio-visual prompts are understood by people on an emotional level as a first step towards the more challenging task of designing emotionally aligned prompts for persons with cognitive disabilities such as Alzheimer’s disease and related dementias (ADRD). Persons with ADRD often need assistance from a caregiver to complete daily living activities such as washing hands, making food, or getting dressed. Artificially intelligent systems have been developed that can assist in such situations. This paper presents a set of prompt videos of a virtual human ‘Rachel’, wherein she expressively communicates prompts at each step of a simple hand washing task, with various human-like emotions and behaviors. A user study was conducted for 30 such videos with respect to three basic and important dimensions of emotional experience: evaluation, potency, and activity. The results show that, while people generally agree on the evaluation (valence: good/bad) of a prompt, consensus about power and activity is not as socially homogeneous. Our long term aim is to enhance such systems by delivering automated prompts that are emotionally aligned with individuals in order to help with prompt adherence and with long-term adoption.
Angststörungen, insbesondere Panikstörungen und Agoraphobie, sind weitverbreitete psychische Störungen, die eine hohe Komorbidität mit Persönlichkeitsstörungen aufweisen. Randomisierte kontrollierte Studien, die sich mit dieser sehr relevanten Gruppe von Patienten befassen, fehlen bisher. Die multizentrisch durchgeführte Studie zu Angst- und Persönlichkeitsstörungen (APS) untersucht 200 Patienten mit Panikstörung und/oder Agoraphobie mit komorbiden Persönlichkeitsstörungen in einer randomisierten, kontrollierten Vergleichsstudie zwischen Analytischer Psychotherapie (psychoanalytic therapy, PT) und Kognitiver Verhaltenstherapie (cognitive behavioral therapy, CBT), wobei jede Gruppe 100 Patienten enthält. Jeder Patient wird über einen Zeitraum von sechs Jahren untersucht, unabhängig von der Dauer der individuellen Behandlung. Die wesentlichen Fragestellungen dieser Studie beziehen sich auf den Vergleich der Effektivität von PT und CBT in dieser speziellen Patientenpopulation, auf den Vergleich der Nachhaltigkeit der Effekte von PT und CBT, den Vergleich der langfristigen Kosten-Nutzen-Relation von PT und CBT, sowie die Untersuchung von prädiktiven Patientenmerkmalen für individuelle Therapieempfehlungen (Differenzielle Indikationsstellung). Die APS-Studie vergleicht Effektivität, Nachhaltigkeit und Kosten-Nutzen-Relation von PT und CBT für Angst- plus Persönlichkeitsstörungen in einem randomisierten, kontrollierten Design. Das Studiendesign erfüllt damit die Anforderungen an eine Effektivitätsstudie für PT, die unlängst definiert wurden.